Does this sound like lyme?
Posted , 10 users are following.
Well I would like to say i haven't actually been diagnosed with lyme, although i really do think my Dr is leaning towards it.
Chronic constipation starting in October 2013 (bowel movements have not been the same since)
Root canal in November
Pregnancy in December( Started to feel spaced out, sort of like a drunk feeling/sensitivity to artificial lighting)
Miscarried after only 2 weeks, and felt ok for 3 weeks, and then randomly one day the spaced out/drunk feeling/artificial lighting sensitivity came back and has been constant since January (8 months)
I saw a gastro in February who found yeast overgrowth in my stool. He gave me nystatin, and my symptoms never changed. Started researching yeast, and was certain it was causing my issues. I went on a strict diet, and found a doctor who put me on nystatin/diflucan for a month, and i had no relief in symptoms.
Things i have tested for:
Thyroid-Fine
Diabetes-Negative (Although blood sugar slightly out of range)
General blood testing- Ok (neutrophils that fight bacteria 2 points out of range at last blood test), overall white blood count within range
CT head scan-Normal
Food allergy testing shows no allergies
Doctor has tried (Metronidazole)Makes symptoms 10x worse
Nystatin and diflucan make symptoms feel 10x worse
GP a while ago said i had a sinus infection. I had some post nasal drip and my nose runs a bit), so she gave me ceftin- This also made my symptoms feel 10x worse.
Western Blot for lyme-Negative
Symptoms
Constant drunk/high feeling
Lack of focus/ Poor memory
Loss of libido
Bouts of fatigue
Light sensitivity (Not so bad outside in natural light, much worse with indoor lighting) It feels like when you first wake up and turn a lamp on, but my eyes never adjust to the light, and it is constant.
Sound sensitivity
Head pressure around temples and eyes pressure sometimes
Stabbing sensations sometimes at temples
Undigested food in stools
Hard pellet stools/ mucus in stools
Carbs/Sugar/Caffeine make drunk feeling worse
Random itching over skin but with no rash
Heavy feeling eyes/Sometimes feel very sleepy after food
Feel at best first thing in the morning
Sneezing/runny nose
Post nasal drip (constant feeling of build up in throat)
Sore tip of tongue, sometimes middle/back area of tongue slightly white coated
Itchy anus/itching inside ears/nose
Chronic vaginal yeast infections/vaginal itching
Acid Reflux
Heartburn
Cold hands and feet sometimes
Tingling in hands and feet
Stabbing sensations over body
Recently chronic sore throat- Hurts to swallow/Swollen lymph nodes in neck
Recently doctor told me i have a heart murmur
Had a food sensitivity test that showed no food sensitivities, but a high IgE
Random body twitching all over. (in eyes, stomach, back, legs, and feet)
Urgency/frequency of urination- Saw urologist who saw no infection present, and did a cystoscopy which showed no issues with the bladder. Urologist suspects possible chronic cystitis
Stiff feeling hands
Back pain middle/lower area- stabbing sensations sometimes
Nausea sometimes
Tummy pain/bloating sometimes
Chest pain sometimes
Extremely achy neck most of the time
Motion sickness I never had before this started
Random vertigo, especially when tilting head
Positive test for Epstein Barr Virus
I want to have hope, but I am losing it rapidly. They did an ultrasound of my abdomen and found I have gallstones. The doctor called me and also said I have enlarged liver which really scared me, because I know enlarged liver can cause some threatening complications. I am only 25, and I feel helpless.
These past few weeks i have also had this weird sensation in my legs which is hard to explain. It is in the calf muscles. Stabbing sensations, pain, tingling, and sometimes it even feels like my legs are heavy and shaky to walk on. Cancer runs in my family, and this worries me so much also with these weird sensations. I even worry about ALS. Needless to say, whatever illness i have makes me very anxious, and i never had anxiety problems before it all started.
I see my Dr in 2 weeks to discuss results, although they called me yesterday to tell me my ANA and RA tests were negative, my cd57 was 64, and my ATP was 19. I am not really sure what any of this means, but i guess we will discuss next time. Anyone have an idea? I spend most of my days just crying, praying that i don't die, because i honestly feel like i am dying.
Sorry this post is so long, i just had to include everything.
1 like, 18 replies
david59662 emzie89
Posted
I think it's likely you have 'chronic fatigue syndrome' or 'PVF' like me rather than lyme. My body used to be vital and strong now it feels so weak and pathetic, my heart feels like it is barely beating and sleeping at night is difficult because of it.
delphine86543 david59662
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delphine86543 emzie89
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emzie89 delphine86543
Posted
delphine86543 emzie89
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delphine86543 emzie89
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cheetahjade emzie89
Posted
I was clincally diagnosed with Lyme. My test came back negative, but statistics show anywhere from 50% or more tests come back as false negatives. As I understand it, you feel terrible because your immune system is comprimised and not able to fight the disease. Because it's not fighting the disease it's not creating creating antibodies. Since that's what they check for in most testing, no antibodies usually means negative. But that doesn't mean you don't have it.
Try and locate a Lyme literate doctor, someone who understands the disease and how to test it. A majority of your symptoms sounds like Lyme, especially the tingling, was and still is a major issue for me. It sounds like you may have confections as well. If you have this many symptoms and everything else came back normal or negative then they tend think you have Lyme.
You are not crazy and you are not dying. Anyone whose had Lyme had felt that way. Once you start your treatments, you will get better.
david59662 cheetahjade
Posted
I am 10months into being unwell. Prior to Nov2014 i was a very fit and active 34 year old. I was initially diagnosed with post viral fatigue now i have the CFS diagnosis. I wanted to ask i recall in the beginning of my illness i fely utterly horrific, i called an ambulance for the first time in my life as i thought this is it, going to die. I am just curious if people with lyme have felt this way. I've felt this way more than once. I had lsevere viral like symptoms Nov but since April things are nowhere near as bad as that and i am left with fatigue and generally feeling like a zombie, literally, from the inside as if my heart is dead. Do people with lyme have an onset which is terrible then there is a partial recovery of sorts ? I have had the standard tests for lyme negative and also private tests for babesia, bartonella and ricketssia also negative.
Thanks
cheetahjade david59662
Posted
http://www.healingwell.com/community/default.aspx?f=30&m=1606610
This link might help. It gives a lot of information if you think you have lyme and what to do. My recommendation would be to try and locate a Lyme Literate Doctor. They are usually well versed and understand they signs and symptoms better than your regular doctor. The link can help with that too.
Also if you can, try and watch the documentary "Under our Skin." It's about Lyme being discovered, the political drama behind it and watch Lyme patients go through before, during and after treatment. Very eye opening and you might see some similarities.
I hope you find the help you need soon.
cheetahjade david59662
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tay80455 emzie89
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I have these same symtoms.
We live in an old house and I'm thinking it could be an indoor allergen.
I have also read these symtoms could be related to past sexually transmitted diseases.
Can you describe to me your living environments. I would like to figure this out.
miked1964 tay80455
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tay80455 miked1964
Posted
So we're saving up for one.
miked1964 tay80455
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miked1964 emzie89
Posted