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Does this sound like MAV

Posted , 8 users are following.

patty818
patty818

Hi

I've been having these symptoms since July 2015.  I saw and ENT who specializes in dizziness, and still have to get my testing done but he believes it vestibul migraine or MAV.  The symptoms i'm having are rocking and swaying sensation most of the time I would say 95% of my day, everyday, i have it when i sit, stand, lay down, i've also noticed when i'm in traffic i can't tolerate the cars moving in front of me, can't watch tv shows that have fast movement or look at my phone while scrolling have to scroll slowly, nausea, depression, anxiety, fear, don't like it so much in big stores, when i walk and turn a corner i feel like i'll fall, floor feels like its moving when i walk, feel like i'm sinking when i sit down, feel like i;m being push forward sometimes when i walk, can't concentrate, memory off, vision wierd alot, slight headache and neck pain alot of this when i have a vertigo attack.  Does this sound right?  

Last night i had a bad attack, started when i got home, felt off balance like usual, went to my psychologist office felt swaying there and got back home and eating dinner and sudden awfull dizzienss, with slight headache and neck pain, had to put ice and heat on neck, lay down, turn off the lights and the volume way down on the tv.  I feel alseep and this morning having anxiety.  When i got to work and sat down I felt like the room was swaying, took a 1/2 of a .25 xanax cause thats all i have, i had to get calmed down.  When i left for work i was crying, so i had to get calmed.  

I have been reading about this and it sounds like it never goes away, this has me worried to the extreme.  I'm scared to death to have this, the dizzienss just frightens me so much.

Can anyone help.

THanks

0 likes, 26 replies

26 Replies

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  • Jennmarie42083
    Jennmarie42083 patty818

    Posted

    I feel the same exact way. My dr said the anxiety is making it worse. I feel lightheaded almost all day. My dizzinessosnt room spinning its like a swaying feeling. I was originally diagnosed with vestibular neuritis but after antivirals for a year didnt help he is now saying ocular migraines with persistent something dizziness. I feel hopeless. I am taking valium for the anxiety and he wants me to allegra for allergies. I have been dealing with this for 9 years with the last 2 being absolute hell.
  • helen91488
    helen91488 patty818

    Posted

    Hi lovely. Yep I have al, these symptoms. Vestibular neuritis or labrynthitis my GP says. I have stemetil which doesn't help that much. GP says it will go but after 4 weeks of this more or less continuously I'm fed up. Can't work can't do very much at all really. I do know that anxiety makes everything much worse. I hope you are ok x
  • rocksolid
    rocksolid patty818

    Posted

    Me too for 4 yrs. First don't give the feeling a life of it's own, so try not to freak out. Yoiu have to tell yourself that this is just a feeling and it will pass. If you let it freak you out then it will be worse. Try to do something to take your mind off of it. Look into a few things. Google Vertical Heterphoria which is an eye condition, also look into SCM muscle issues, this is the large muscle in your neck, and last consider your wisdom teeth. I have seen a forum where people still had theres and once they were removed they felt better. For that forum just google widom teeth dizzy and you should find it.
    • Jennmarie42083
      Jennmarie42083 rocksolid

      Posted

      I want to look more into the vertical heterphoria. I have all those symptoms but never heard of this
  • jacqueline01135
    jacqueline01135 patty818

    Posted

    Hello. Has anyone checked the blood flow to your head, the artery that runs

    up your neck. It can get blocked like the arteries to the heart, hence heart attacks

    Blockage of the one in the neck reduces the amount of oxygen that gets to the 

    brain and causes dizziness .It can be sorted ,have words with your G.P

    Sorry you are having a bad time .I suffer Labrynthitis now and then, but I can sort that out myself 

     

  • deb39563
    deb39563 patty818

    Posted

    Sounds like u do have vestibular neuritis for sure I have had this for years plus vertigo inner ear is a hard thing to deal with actually does get better but then u probably will have episode off and on i do anyway have u had the epsey manuer for vertigo if not please try that at physico therapist they will really help u hang in there thinking of u on this nasty journey it will get easier stay strong
  • lisa08672
    lisa08672 patty818

    Posted

    Hi patty,I've had most of your symptoms for almost 4 months and it scares me to death,I think you are amazing working with it, I've been off work the whole time as too dizzy,anxiety is trying to set in now but I'm trying to keep calm and relaxed.its horrible not knowing what's wrong,I sometimes feel like I'm going to die,I was normal 4 months ago,no panic attacks,anxiety, was going out with my family for day trips,I was jogging and now I can't do anything hardly I feel do down.have you got any support? If you need to talk I'm here for you,Lisa
    • helen91488
      helen91488 lisa08672

      Posted

      Hi Lisa. This is exactly how I am. Everything seems to set off an attack. I just want my life back.and to get back to work. Every time I phone my sick note into work I feel worse and worse. The dizziness even trying to walk my dog at times! Even cooking the tea! GP is so certain it's just! Labrynthitis or similar. Says there's no point in giving me stuff for the anxiety as that makes dizziness worse! So it's lots of deep breathing etc for me. Xx
    • lisa08672
      lisa08672 helen91488

      Posted

      Are you in the UK?I've got to pop in work tommrow with another sick note,I feel so embarrassed but no way I can go back yet,I know how you feel as i want my life back too,I can't see myself getting better anytime soon but trying to stay positive is so hard.I don't know about you but I have days where I'm not too bad then i get it really bad,I feel like I need to go to hospital and I won't get better,its so scary Xx
    • helen91488
      helen91488 lisa08672

      Posted

      Yep I. Uk, Worcestershire. How about you.. Some days you can function then at other times  I really feel that's it I'm on my way. I'm not a melodramatic person at all . I see life and death every day being a nurse but this has got me really scared. Keep smiling xx
    • lisa08672
      lisa08672 helen91488

      Posted

      I'm in UK,Worthing west Sussex.I work at a care home and also see life and death,I hate attention and not a dramatic person but as you understand this dizziness is scary,I can't see the light at the end of the tunnel.I've had a MRI scan and balance tests also a camera up my nose,all test results came back normal,I was told I could have silent migraines and benign positional vertigo, my ent doctor performed the epley on me and whether it was a coincidence or not but I had two really good weeks,this was 5 weeks ago,going to ask for it to be done again.first time I had it done focussing on the left side I was sick and really dizzy for days the next time the right side was when I had two good weeks.Xx
    • helen91488
      helen91488 lisa08672

      Posted

      I've got MRI on Monday morning( they tried the other day but I was too dizzy lying flat!) then just to add to my fun my doc is going to do the epley on me on Monday evening! I think I will write off Tuesday!! Xx
    • lisa08672
      lisa08672 helen91488

      Posted

      I hope it goes well Monday,I will be thinking of you,let me know how it goes,I want to have the epley done on the right side again as I had 2 great weeks last time I had it done,fingers crossed for you,it be lovely to hear how you feel after as my ent doctor said it wouldn't have made me worse the first time but it did Xx
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