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Dont know whats wrong.

Posted , 5 users are following.

faye71324
faye71324

I had bacterial pneumonia in May this year and was in hospital for 4 days. I haven't been right since. It started with very bad health anxiety and a constant obsession with having a serious illness. Other symptoms (physical) progressed. Shaking, twitching, not being able to gain weight, aching (muscles) legs mainly, feeling low, constant sinus pressure, change in periods, weakness, floaters and cobweb patterns in vision, headaches, hair thinning. Now my symptoms are really achey arms sensitive to the touch, achey legs, achey neck and upper back, lower back ache (prob due to 2 bulging lumbar discs, ddd and arthritis in spine). I've had enough now and had various bloods done, all ok. Has anyone been through similar symptoms? Many thanks x

1 like, 28 replies

28 Replies

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  • Meg53
    Meg53 faye71324

    Posted

    Hi Faye I understand your frustration, I have had similar experience as have many others on the forum. We all have symptoms of feeling unwell with no abnormal blood tests to say why. In my case I had low B12 but that has been retified through injections but my symptoms have not abated. I my case many sore points in my body, stiffness, tingling in my limbs, tinitus, insominia, fatigue, brain fog etc, etc. Each of us have our own unique symptoms of toture but if there is a similarity you could talk to your GP about the possibility of FIBRO or sending your to a rheumotologist who is knowledge about inflamatory conditions.

    Best of luck. Meg

    • kaz_40
      kaz_40 Meg53

      Posted

      morning Meg How are you? hows things with you? I have finally put a picture on after much encouragement from hubby. Are you going to put one on. My dog charlie is in the picture with me he never leaves my side bless him. its lovely sunny hear but feels cold. Im still not over my virus its been a bad one. Hope your not in too much pain and your sleeping well. hope you have a lovely day and a good week. take care gentle hugs xxbiggrin
    • kaz_40
      kaz_40 Meg53

      Posted

      Hi Meg how are you? hows things with you. Hope you arnt in too much pain and your manageing to sleep ok. I have had 2 good nights sleep hope it continues. Im still not over that virus its dragging on. Im at drs tomorrow seeing the nurse for a blood pressure check and a blood test. Hope you have a lovely day take care hun gentle hugs xxsmile
    • Meg53
      Meg53 kaz_40

      Posted

      Good hear how you are going Kaz, so sorry to hear you are still not over that rotten virus. Good luck seeing the Doctor, hope the tests all come out okay? Isn't it great when you have a good night sleep, I had one the other night, I find if I go for a GENTLE walk, then I sleep better at night. Enjoy your Friday and I hope you can get out with hubby at the weekend?

      biggrin Meg

    • kaz_40
      kaz_40 Meg53

      Posted

      Morning meg How are you today hun? hope you slept well last night. I had 2 good days sleep, then last night was back to normal woke up twicerolleyes didnt want to get up this morning. Just got back in from having bloods taken blood pressure checked she gave me flu jab. Feeling out of sorts today never mind plod on. Hope you have a lovely day meg and a good weekend take care hun big hug from me to you xxsmile
    • Meg53
      Meg53 kaz_40

      Posted

      Hi Kaz, know how you feel, several nights of good sleep then absolute shocker, four hours if I am lucky and now in absolute pain. Oh life is so much fun!!! Never mind hopefully we both sleep well tonight and life will seem more rosie over the weekend. Many gentle hugs for you Meg 🙅

       

    • kaz_40
      kaz_40 Meg53

      Posted

      Hi Meg Hope your weekend is going well and your not in too much pain. I had 2 nights great sleep, and now \\im back to normal 2hr sleeprolleyes. I am still not over my virus its been a month now. I was suppose to go out for lunch yesterday mother in laws birthday. I wasnt able to go not well havnt been all week. Im just ploding along getting through each day as best I can. hope we both soon start to sleep better again we need our sleep. take care hun have a lovely weekend xx big hug from me to you xxbiggrin
    • Meg53
      Meg53 kaz_40

      Posted

      Hi Kaz, so sorry you couldn't get out for lunch, we really do miss out having this dredged curse. It is weird how we have good nights, when we sleep and then bad nights. I have been trying to practice good sleep hygiene, no long naps during the day and no sleeping in front of television at night, no matter how sleep deprived I am. In fact I set a timer for 15 mins so if I do fall sleep it stops me sleeping for a long time during the day, crazy aren't I? Do hope you sleep really well tonight, I am sending good sleep vibes to you, hope they help Megxx
  • Meg53
    Meg53 faye71324

    Posted

    Sorry Faye just typed a long message to you but it has been moderated no idea why, as it was perfectly courteous. In a nutshell maybe talk to your GP about the possibility of Fibro and then ask if you could be refered to a specialist Rhuematalogist, who will know about inflamatory conditions of the body.

    Best of luck Meg.

     

    • Emis_Moderator
      Emis_Moderator Meg53

      Posted

      Hi Meg,

      It is because there is an issue where some innocent posts get caught up in the moderation process. The problem is if a space is not left between sentences the software to "catch" links thinks the text is a link. In your post it was luck.Meg - the .me is an internet domain so it is treated as a link as shown here. We are aware of this problem and are going to improve the software. I edited the space into your post and approved it so it is now on the discussion.

      Regards,

      Alan

    • Meg53
      Meg53 Emis_Moderator

      Posted

      Hi Alan

      Thank you for your reply, I do understand the complexities of software, so understand how it could happen. You have a great weekend.

      Regards

      Meg

       

  • kaz_40
    kaz_40 faye71324

    Posted

    Hi faye71324 I have been very ill in the past with pneumonia, Ive had it twice.you need to be refered by your gp to see a rheumatologist its they that diagnose fibromyalgia lupus rhumatoid arthritus etc. drs normally like to rule out other conditions before refering you. most tests normally come back negative when you have fibro. I only had 1 test come back positive and that was low in vitamin d. I had many  many tests and saw every specialist imaginable, after 10 years was diagnosed by a rheumatologist march last year. write down all your symptoms see your gp see if they will refer you to a rheummy take care
    • faye71324
      faye71324 kaz_40

      Posted

      Thankyou Kaz40. My doctor has done tests for RA and is happy that it's not that. I have thought about fibro and lupus. I feel rubbish all the time. How long did it take you to get over pneumonia? Dr said it could be post viral. I don't think he really knows!!! All inflammation blood tests have come back ok. I just want to feel myself again. I hurt everyday and feel unwell. Do you have any conditions yourself? Thank you and take care x
    • faye71324
      faye71324

      Posted

      Sorry, I see you were diagnosed by a rheumatologist. What were you diagnosed with if you don't mind me asking? Thanks x
    • kaz_40
      kaz_40 faye71324

      Posted

      morning faye71324 I have fibro was diagnosed last year, it took 10 years to finally get a diagnoses after many tests, and seeing every specialist you can think of. I have ME diabetes high blood pressure thyroid problems asthma I have had 2 angina attacks a suspected stroke,pnumonia I was hospitalized both times. it took me over 6 months to get over each episode I was very poorly with both.Its a rheumatologist you need to see to diagnose fibro and they also diagnose lupus rheumatoid arthritus and arthritus. I have arthritus in neck and back some of my fingers. Like you Im sick of feeling unwell and in pain all the time just wish I could feel well and normal again. fibro throws lots lots of different symptoms at us. it affects us all differently in the severity of it, we dont all have the same symptoms. hope you soon get some answears it was a long time for me to get a diagnoses and the answears I wanted. take carex
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