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Dont know whats wrong.

Posted , 5 users are following.

faye71324
faye71324

I had bacterial pneumonia in May this year and was in hospital for 4 days. I haven't been right since. It started with very bad health anxiety and a constant obsession with having a serious illness. Other symptoms (physical) progressed. Shaking, twitching, not being able to gain weight, aching (muscles) legs mainly, feeling low, constant sinus pressure, change in periods, weakness, floaters and cobweb patterns in vision, headaches, hair thinning. Now my symptoms are really achey arms sensitive to the touch, achey legs, achey neck and upper back, lower back ache (prob due to 2 bulging lumbar discs, ddd and arthritis in spine). I've had enough now and had various bloods done, all ok. Has anyone been through similar symptoms? Many thanks x

1 like, 28 replies

28 Replies

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  • moyra94678
    moyra94678 faye71324

    Posted

    Hi Faye,

    I have had fibro for 15 years.The reason I am writing is that I was in hospital with Pneumonia three weeks ago while on holiday.Since then my recovery has been very slow and my fibro is inflamed,very painful limmbs, lower back and hips, I find it hard to move.Yet prior to pneumonia,my fibro can virtually go for months,then something triggers it off again.

    I have suffered from floaters and cobweb patterns in the past but it has cleared up.Recently I have had hair loss on one side of my head! basically all of your symptoms except I have put so much weight on over the years.Think it could be medication.This is mainly to let you know not to be scared.We are all different with our fibro,I have learned to "ride it out" as much as possible,knwig there will be occasion I am painfree.I wish you luck and gentle hugs from me.x

    • faye71324
      faye71324 moyra94678

      Posted

      Hi moyra94678. Thankyou for your reply. My friend has fibro and a lot of what she says is what I experience. I was very ill with pneumonia and so weak and exhausted after. I feel like I'm falling apart, lol!!! I am quite scared as I have had some health anxiety since the pneumonia which drs seem to constantly fob me off with. I'm not convinced at all that it's all down to that. Feel like I've ran a marathon most of the time and hurt like a 90 year old. I'm 39. I even asked Dr about perimenopause but he dismissed it straight away. I wish you all the best and hugs (gentle) to you too x
  • manda08392
    manda08392 faye71324

    Posted

    Have you had them check out your thyroid? If not, have them do an ultrasound. Some of your s symptoms do sound like fibro but if they are all new since you were sick then it is possible it did not recover.
    • faye71324
      faye71324 manda08392

      Posted

      Hi. Thanks for your reply. Yes I've had all thyroid tests. All ok. Not sure what to do next. Got appt with orthopaedic specialist next week about my back. Wonder if all this has come from that. Hope you are well x
    • kaz_40
      kaz_40 faye71324

      Posted

      hope you get on ok when you see the orthopedic about your back. I saw a back specialist he was very rude and totally dismissed their was anything wrong with my back. I knew their was I had an mri it showed arthritus in neck back and tears in my discs. I am in pain all the time with my back and neck. Pnumonia can take a while to get over it took me over 6 months to get over it. take care gentle hugs xx
    • faye71324
      faye71324 kaz_40

      Posted

      Hi. Thanks for your reply. I had an MRI on lower back which showed 2 bulging discs, one pressing on nerves. Arthritis in the spine and also narrowing of the spinal canal. Got appt with specialist next week but not holding much hope of much being done 😞 I'm sorry you too have had a tough time and that's awful that you were dismissed by the specialist. Take care, hugs, Faye x
    • kaz_40
      kaz_40 faye71324

      Posted

      nothing was done for me but I sincerley hope you have better luck than I did. hope all goes well for you with the appointment take care gentle hugs karenxsmile
    • manda08392
      manda08392 faye71324

      Posted

      For your sake I certainly hope they find something they can treat. That would be preferable to fibro which would lead to a bunch of tests that come back fine. I'm hopeful that your body is going to recuperate eventually since all of your symptoms started only after you had been sick. I would have been much more concerned if they had been gradually coming on worse and worse over the last several years. Not that you shouldn't be concerned about your symptoms, just in regards to it being fibro.

      Arthritis in the spine can also spread out to other areas of the body like migraines, vision problems, muscle spasms, exhaustion in the limbs and muscles. I hope they find something they can treat, i really do.

    • faye71324
      faye71324 manda08392

      Posted

      Thankyou so much for your reply and kind words. Have drs appt this morning. Got specialist appt next week. Will let you know how I get on. It's never ending isn't it? Lots of doctors have fobbed me off with anxiety in the past and although I do believe I have some anxiety, I don't believe it's all down to that. My neck has been hurting lately and upper back. Probably got stuff going on there too!! I hope you are doing ok. Take care, Faye x
    • faye71324
      faye71324 manda08392

      Posted

      Hi manda08392. How are you? Saw my gp yesterday and he is sending me for more bloodwork. Autoimmune antibodies, esr, crp etc. I think he thinks all this is a mixture of 2 things, post viral (from the pneumonia) and my back issues. Lower back hurting today 😞 Will see what orthopaedic specialist says next week. Hugs, Faye x
    • manda08392
      manda08392 faye71324

      Posted

      I'm sorry you are in pain but at least you know you are on your way to answers! Let us know what the speciialist says!
    • faye71324
      faye71324 manda08392

      Posted

      Thankyou manda08392. I'm glad I found this site. Everyone knows how it is and are very supportive. All the best to you too. Will update when I've seen the specialist. Hugs, Faye x
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