Dr Goldstein - 79% of women report chronic vulva pain
Posted , 12 users are following.
Despite treating my LS since January I still experience pain in the form of burning, stinging and tension/tightness in the vulva. And basically a heightened state of awareness/hypersensitivity of the area. I went on Dr Goldstein's website and read that 79% reported chronic vulva pain. Chronic I'm assuming that they have persistent pain despite treatment with steroids?
I spent almost 7 years on an antidepressant for generalized anxiety only to fear I'll have to take something again to manage this ongoing pain which I fear will never stop. I've read women can develop secondary vulvodynia from LS. Sorry if I sound a little down but it can get tiresome. Appreciate this forum as I've gained lots of valuable information and able to vent my frustrations. But does it ever get better?
1 like, 22 replies
kathleen65757 dani2590
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samantha1970 kathleen65757
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Do you mind me asking how old you were when symptoms started and how old you are now. My symptoms started at around 40 and now I'm 44. Seems like it's going to be never ending.
Thanks
kathleen65757 samantha1970
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dani2590 kathleen65757
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Chrisy kathleen65757
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alison54950 dani2590
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dani2590 alison54950
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But yes the discomfort persists. I hear vulvodynia is difficult to treat. Did you find the amitryptiline helps at all?
I'm booked in to see a dermatologist in October as I've been seen by 2 gynecologists since January. But yes otherwise it feels never ending.
alison54950 dani2590
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annewin alison54950
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dani2590 alison54950
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Guppy007 dani2590
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For some women diet is the key to pain free and symptom free LS, and for others it has no effect, and so if you have not already done so it is definitely worth giving it a shot.
dani2590 Guppy007
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carolina80209 dani2590
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Highly suggest you change your diet, take care
dani2590 carolina80209
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My doctor diagnosed me with pelvic floor dysfunction too. I'm seeing a physio at the end of the month. Do you find dilating helps?
I haven't read Dr Goldstein mention that but that's really interesting. Did he say that during the presentation or was it on a separate article. I must've missed it.
hanny32508 dani2590
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Would you be able to describe your pelvis discomfort to me? I have been having difficulties with sitting as well and have tried all kinds of pillows to give some relief and/or support. (At present I'm sitting on a pillow that is filled with buckweat hulls and that starts to give some relief. The thing is that you also need to give support to the rest of your spinal cord to avoid a sore back.)
dani2590 hanny32508
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My doctor diagnosed me with pelvic floor myalgia. I'm seeing a physio at the end of the month. She said the burning/soreness is actually nerve and muscular from the spasms in the vulva and not from the LS. Who knows. I'm willing to try anything though.
The buckwheat pillow sounds interesting. If it helps maybe I should give it a try?
hanny32508 dani2590
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dani2590 hanny32508
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Oh massages are always great. Any pain I have seems to almost disappear during the session.