Dr Goldstein - 79% of women report chronic vulva pain

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Despite treating my LS since January I still experience pain in the form of burning, stinging and tension/tightness in the vulva. And basically a heightened state of awareness/hypersensitivity of the area. I went on Dr Goldstein's website and read that 79% reported chronic vulva pain. Chronic I'm assuming that they have persistent pain despite treatment with steroids?

I spent almost 7 years on an antidepressant for generalized anxiety only to fear I'll have to take something again to manage this ongoing pain which I fear will never stop. I've read women can develop secondary vulvodynia from LS. Sorry if I sound a little down but it can get tiresome. Appreciate this forum as I've gained lots of valuable information and able to vent my frustrations. But does it ever get better?

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  • Posted

    I just googled the title of this discussion and found an NCBI study that said: "Provoked vestibulodynia, the most common form of vulvodynia (unexplained pain of the vulva), is a prevalent, idiopathic pain disorder associated with a history of recurrent candidiasis (yeast infections). It is characterized by vulvar allodynia (painful hypersensitivity to touch) and hyperinnervation."

    I believe that most of us who've had LS for many years have also had many yeast infections. Mine were always associated with a combination of the friction of sex, emotional stress, and too much sugar. Maybe the only reason I don't suffer from chronic pain is that at age 63 I've spent nearly half of my adult life celibate, divided over various periods. I also think LS and yeast kind of feed each other.

    I don't know whether 'chronic' means forever or just until you can break the cycle.

    • Posted

      This is really interesting. I also just looked it up and found a good explanation on Derm Net NZ called Dyaesthetic Vulvodynia. I haven't had issues with recurrent yeast infections however I believe my LS has been around for quite a few years and frequent sex hasn't helped. I wasn't uncomfortable having sex until very recently so I didn't think anything was wrong.

      These days I think celibacy is a great option lol. Feel sorry for my partner. He's patient and understanding but still..

  • Posted

    I am not going to lie, a gluten free diet is the easiest thing in the world compare to the low oxalates diet, I am sending you through private message a couple of links that I found really useful there are some PDF charts indicating which foods are low, médium, high or really high on oxalates. Is very confusing because literally every food is different you cannot eat carrots but you can eat lettuce, what I am doing is completely avoiding the high and very high and eating ocasionally the medium, it would be the best to work with a nutritionist, I cannot find anyone in Latín América were I live, they go like you dont want to eat carrots are you crazy??. I read about people almost healing completely from autoinmunes conditions by healing the gut, because 80% of our inmune system depends on our digestive system, I think there is a very strong link with our condition and our gut and that is why we improve so much with gluten free or low oxalates diets because we cannot digest this very inflammatory foods. I thought my gut was ok but after reading those informations decided to get tested by a molecular specialist that saw my liver and intestines were completely intoxicated, he told me that it tends to be the root of inflammatory diseases and hormonal imbalances at my age (26) which according to him creates also fibroadenomas, allergies and ovarian cysts, all of them which I have. So next week I am starting a complete cleanse, liver, colon, gut, I also have systemic candida and we are fixing that as well, no antibiotics that is what causes this kinds of issues on the first place so we are using homeophatic remedies... Is a lot of work, money and time but is worth the try.

    About the gluten free, I didnt saw that on an article or was mentioned on the webinar, he said it to me, I went to see him on Washington. I wish I could say there was a special remedy prescribed but clob is the treatment for this, dilators a must I have found it very helpful but is kind of soon to tell... I really believe we need to also do our part by cleansing and an accurate diet than just applying a cream..try to cover all the fronts

    Hope this info helps! Best of luck smile

  • Posted

    Hi dani

    I have vulvodynia for 6 years now. I.v had a series of treatment and they have pretty much all failed or only work short term ..

    But i did come across kegal 8 machine i use every night for 20 minutes on low sensitivity. . And for some reason i now been pain free for 6 months. Touch wood .. i.m now of all meds..

    I know how wearing it can be and it can ruin your life in many ways

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