dr. recommends my using PROLIA for osteoporosis.
Posted , 9 users are following.
i am interested in knowing about anyone's experience using prolia.
0 likes, 39 replies
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Notes on dr. recommends my using PROLIA for osteoporosis.
linda1004 edith67597
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edith67597 linda1004
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Anhaga edith67597
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kathleen65757 edith67597
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Please tell us your tscores as my sister was prescribed these drugs when her scores were not too bad.
I am trying the natural way and will check the effect on my tscores in about a year.
There is much you can do like taking vitamin K2 and checking your vitamin D3 levels. Many people who have broken bones were found to be deficient in magnesium so check those levels too.
A diet including fruit, vegetables, yoghurt, prunes, avocados, bone broth etc is recommended to make sure you are getting all the nutrients your bones need.
There is now a lot of research that you can check online.
Weight bearing exercise like walking is also important. Build up the muscles around your bones to help support your bones as well.
Your body: your decision!
Reeceregan edith67597
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So..4 weeks in and oddly enough I’ve posted a question on another forum just today, asking if whether my symptoms at the moment could be Prolia related or a resurgence of the PMR/GCA. The symptoms are so similar it is hard to tell. My PMR/GCA has been under control until just 2 weeks ago, 2 weeks after my first Prolia injection, now I find the aches and pains are coming back...albeit no where near the initial debilitating pain etc of PMR. While I don’t have the headache that goes with GCA, I now have a sore temple, as if I’ve been pressing my fingers into it, and it’s there all the time. It’s where I had the biopsy, so not sure whether there is anything playing up there because it’s a weak spot, or just what else it could be. All in all, my symptoms are bearable, but remember I’m not PMR/GCA free so I would expect, given those diseases, I’d be expecting something to come back and bite me after starting
Prolia.
edith67597 Reeceregan
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alison28608 edith67597
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edith67597 alison28608
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alison28608 edith67597
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Reeceregan edith67597
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Hi again Edith,
i just wanted to add that because my osteoporosis was such a shock, and my t score so severe, despite years of doing everything right health wise, that I did do a lot of research on Prolia prior to accepting the need for it...for me. It is a rather newish drug I believe, a Denosumab, and different to most of the others, such as Fosemax, Forteo, AA, etc which are biphosphonates. They work differently. My dr explained that it has less side effects than those in the past, and is more easily tolerated than some of the others. It depends what your t score is and what you need it to do, but only your dr can advise you on that. It will also depend on what else is going on in your body., if you have other conditions that need treatment. Just remember all drugs will have side effects but that doesn’t mean you will get them. I have been on high dose prednisone starting at 50mg since last May, and it is one POWERFULL drug, and yes, I have side effects but not many, not severely, and it has gotten me back on my feet and in the land of the living when I was bedridden. If you read the side effects of prednisone you’d run a mile, in fact they are probably much worse than Prolia side effects. I accept that because I still take pred, and now Prolia, that it would be a miracle if I didn’t have some reaction but so far my aches and pains are mild, compared to what I expected, and could be more because I am reducing my pred dose at the same time as introducing the Prolia. My poor little body may just be a little confused at the moment. GO ME! 💪
Reeceregan edith67597
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edith67597 Reeceregan
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Anhaga edith67597
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Oh, Edith, your situation is so different from Reeceregan's! Your t-score is just barely in the osteoporosis range (2.5 is the boundary established somewhat arbitrarily by the WHO some years ago) and your chance of NOT having a fracture is about 94%. I feel quite confident in advising you to go the natural way. There are people on the forums with worse results than yours who have been going "natural". i.e., nonmedicated. That being said, your result does mean you must do something to improve your bone density, and there is a great deal you can do.
A friend of mine pointed me in the direction of Vitamin K2, also advised me to take up Nordic walking, which I did. I also do tai chi. Because I'd lost a lot of weight I bought a weighted walking vest to try to add back a bit of the weight which helps keep bones strong. It's best to get one which allows you to gradually increase weight by just a couple of ounces at a time.
Eat lots of leafy greens, and fermented foods are good. Apparently there's been some recent research showing that yoghurt helps the body to make the best use of calcium supplements
.
The choice is yours, of course, but please do a lot of reading before you make your decision. Doctors are rather keen to put us on medicine but in fact not many of us need it, and even those who do should only take it as long as the benefits outweigh the risks, which could be something like two or three years. I personally think (and this is just my opinion) that the OP drugs, being as strong and potentially dangerous as they are, should be reserved for those who really, really need them, as an intervention which should also be accompanied by as much of the nutrition, basic supplementation, and appropriate exercise as they can manage, which we should all do to keep ourselves as healthy as possible, given that we are all aging....
The friend I mentioned above started out with an osteoporosis diagnosis. She went completely natural and her successive DXA scans over the years show her gradually improving to osteopenia, and a continual improvement. I started out with osteopenia, mistakenly told by my doctor I had osteoporosis and it took several months before I found out the truth so I also went through the whole I've got osteoporosis freakout. In one year, although still on pred at a dose higher than 5 mg for more than half that year, my t-score improved from -2 to -1.6. Completely because of what I did, no medication.
Anhaga
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Just saw your'v made your decision, to give yourself a year of the natural method. All the best - and do let us know how you get on. I've found caring for my bones does take time, but it gets me out in the fresh air for exercise, and I quite enjoy the tai chi, and so forth. In fact, just about to go out into some rather chilly sunshine with my Nordic poles! Cheers!
kathleen65757 edith67597
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I do not know what the hip risk factor is! What is the hip tscore, hopefully it is not - 5.3 because that would be unfortunate.
Reeceregan kathleen65757
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kathleen65757 Reeceregan
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Also, you can build up the muscles around your bones to help support them.
That is what was advised for my knee after a fall where the meniscus was torn. I did that and it worked.
People have been found to be deficient in magnesium who have broken bones so making sure one has all the nutrients needed is important.
Vitamin K2 aims the calcium onto the bones which is vital.
There probably needs to be more research to find howbest to help our bones like studies of people taking various nutrients and those taking th drugs. Underreporting seems to be rife.
Reading what people are writing on here is interesting as there still needs to be more information provided that truly reflects what is happening with the drugs and the natural way and what people are reporting being recorded properly.
If this is a sample of what is actually happening then much needs to be investigated.
Anhaga Reeceregan
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I don't know how to calculate the risk factor, but more than the t-score is taken into account. In my case they used t-score, fact that I'd had what they claimed was a fragility fracture (I still disagree about that, given circumstances of the injury) and the fact that I was taking prednisone, and I think age, but I'm not sure about that..There are tools on the internet where you can enter your information and calculate your risk, often called FRAX.
Reeceregan kathleen65757
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Reeceregan Anhaga
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Oh good! Thank you Anhaga, I’ll get onto Mr Google a D’nL’s see what he hasn’t to say. 👍
Reeceregan
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D’nL’s ??? How did it get that from “ and see”..🤦???
kathleen65757 Reeceregan
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Reeceregan kathleen65757
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And I just noticed I wrote “what he HASN’T to say”..that whole comment is in double dutch! 👩?💻
sirenetta Anhaga
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It is very clear to me now that is was all to get me on the meds and it makes me angry. Even though it took me less then 24 hours to decide not to take any medication for this, I felt really fragile and unable to get to the gym. Speaking to the NOS was really helpful. I am now back to my normal routine, I just do not put a heavy bar on my back for squats and I do not do stomach crunches just in case. We should be able to trust doctors, it is a very sad state of affairs.
Reeceregan sirenetta
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