Endometrial Cancer Diagnosis
Posted , 10 users are following.
Well, I had my uterine biopsy this week, and my Dr. called with the news, I have endometrial cancer, types 2 and 3. I've been referred to an oncologist, who's supposed to contact me after the weekend. My Dr. told me that because I caught this early (I started to spot on April 14) that we're on top of it, and that the cure rate for this is about 99%. But, I don't know what to think or feel. I'm pretty scared. If anyone has some words of wisdom it would be much appreciated. Thank you.
1 like, 76 replies
d19606 lynda20916
Posted
i missed a period in febuary i thought i was starting meno as im 47.
but i had bloods done and dr said im not menoporsal. im worried i dont have any other symptoms just the light constant bleed, i dont seem to have a period either it just seems the same all the time not getting any heavyer any time in the months since starti g to spot. im mad with my dr as iv been going since end of march sayi g i havnt stoped bleeding and althoe iv had a smear to that said i was ok it still not stoping and he could have sent me for a scan april or may or june but now its 29 july when i go and its been going on since begining or march.
lynda20916 d19606
Posted
Hi, D19606,
I'm 67 and had been in menopause for nearly 20 years. My spotting is about the same as yours. Worse, since the biopsy. Your doctor is assuming you're menopausal, I think. During my first appointment, my GYN Dr. asked me if I wanted to do a biopsy. I said no. I should have done it then. (I'm in the US.) I cried lots last night, and am still crying off and on. Didn't sleep well. My husband is being really supportive. The truth is, until we see the oncologist we can look on the web all we want to and scare ourselves silly, but we really won't know what's going on and what we need to do. I don't wear a tampon, because of the risk of infection. Best of luck to you! xx
d19606 lynda20916
Posted
iv been worrying so much about the tumor in my ear that iv had taken out i havnt had time to worry about my bleeding and cancer there so now im through with having the op for ear im not worrying about womb cancer.
have you any other symptoms? i want a biopsy of my womb done iv only had my cervix done, and that was normal. but you dont bleed for for months and it be nothing so im worrying.
i have read that womb cancer is mostly cured with a histerectomy and if caught eaely you ok, im hoping i dont have it at all but if i do then il be having a histerectomy probably to. i hope youl be ok must have been realy scaey to start bleeding at your age . il let you know how i get on. we may both be going to go through the same things soon.
lynda20916 d19606
Posted
Hi, and thanks! I was so upset when I wrote my first post! As to symptoms, I just started to feel tired, not much stamina. I would rest but not recoup, you know what I mean? Then, on April 14 I went to the toilet and had a smear of dark brown blood, the kind I would get at the end of my period. Then, I started to pass streaks of red blood and bits of tissue. I contacted my GP first, then decided I'd just find an OB/GYN. The first appointment I had with him he did a pap smear, then suggested that I go down to the basement where the lab was and get an ultrasound. He sent me for blood tests for the uterine cancer markers. Those all came back fine, but I got so scared about the biopsy that I had to postpone two appointments--I have IBS-D because I had my gallbladder out in 2009, so I couldn't leave the house. I called and asked for a tranquilizer and took that the day of, and started taking an anti-diarrehal the day before. I took lots of it, so I could go. My husband went with me and held my hand. Since April 14, my womb has felt heavy and cramped. Not painful, just there.
I sure hope you don't have this. Do let me know how you get on, and I'll do the same.
d19606 lynda20916
Posted
im more bloated than normal but then i get bloated with ibs.
i hope i do t have womb cancer as im still gettting over having tumor removed from my middle ear, i was ok till last night i had to go hospital as i started with lots of pain and today im in agony still even with the oills they gave me so icpv got to go hospital in morning to see the dr who did my op iv got packing in my ear and tneyl be taking that out im hoping nothing is badly wrong with that so i have two worrys im so fedup, my ear yet again is taking first stage and if i end up need i g operation on my womb to il be a mess for a wile with having to have two ops in a short space of time. i hope youl be fine let me know how you get on.
d19606
Posted
lynda20916 d19606
Posted
If it isn't one thing, it's another! I am praying for both of us! Let's get through this, and come out the other side!
Please keep letting me know how you're doing, and I'll do the same! xx
stacey77646 d19606
Posted
I'm going thru same thing was bleeding constantly saw gynecologist did ultrasound couldn't find anything wrong. Bleeding only got worse was almost a year of this saw another obgyn he did ultrasound said I had enlarged uterus. He did hysteroscopy and did biopsy it came back stage 1 uterine cancer he sent me to gynecological oncologist he did cat scans and now says it's in lymph nodes waiting on biopsy on lymph nodes to decide treatment. If you have doubts get a second opinion if I had cancer might not have spread
lynda20916 stacey77646
Posted
Hi, Stacey, Please know you're in my thoughts and prayers! xxx
stacey77646 lynda20916
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lynda20916 stacey77646
Posted
sue08648 lynda20916
Posted
I am 38, survivor of endomentrial cancer. Stage 1A with well differentiated cell. Felt your pain and worries. Do get hysterectomy done soon.
Get well soon and be strong!
lynda20916 sue08648
Posted
Hi Sue,
Thanks for replying. I spent yesterday in bed, crying and hearing from family and friends. I hardly slept the night after I found out, mostly because of the unknown. I took something last night and slept well. Then it occurred to me this morning, that the bed was a mess, that I had chores to do, and that my husband was probably missing me bossing him around.
So, I'm doing that. I know I do need the surgery soon, I won't put it off.
If you don't mind me asking, what happened to you? Did you have open or robotic surgery. Chemo?
Thanks again! xx
Lynda
d19606 lynda20916
Posted
lynda20916 d19606
Posted
Sorry to learn you're in such pain, and I'm sure that you don't need anything else to worry about. I started menopause very early, in my 40's, due to a thyroid condition. Was on HRT, but no that long. My periods got lighter, and then, just stopped after I stopped taking the hormones. I didn't have spotting like you are experiencing. Surgery is scary! Hope you do better tomorrow.
carol_57301 sue08648
Posted
Hi Sue,
I had a full hysterectomy May 3rd and thought I was in the clear. The cancer in my uterus was 1A grade 2. Oncologist called me in to explain there is a 5 to 10 % chance there could be spreading into lymph nodes been freaking out and crying because the doctor recommended a Robotic surgery to remove about 40 lymph nodes. It's my choice to do this because I was told they didn't want me to have any regrets. After learning the risk of this surgery, I could have more problems with permanent swelling in arms and legs. It's called Lympodema. If I do not go with surgery, They suggested Radiation in the pelvic area. Did you or anyone else go through this?
I also want to comment to the others who just got there biopsies and need a Hysterctomy, it is a very scary not knowing or even understanding. I cried and still cry sometimes. It does get better everyday. I am so sorry for all of us who had and have to go through this. Try and stay positive and let your family and friends love and support you. I had a lapascopic Hysterctomy. It was'nt as bad as I though it would be. My prayers are with you!
sue08648 lynda20916
Posted
Hi Lynda,
It is okay to ask as I need to accept reality that I am a cancer survivor now.
I was bleeding quite badly during my menses cycle end of last year and had an emergency admission at the hospital as my blood count fell to single digit. An ultrasound confirm thick uterus lining and d&c was done the next day. Biopsy from d&c said cannot rule adenocarcinoma. Cut story short, d&c was repeated as provera does work and then hysterectomy done feb this year.
I had TAH or the abdominal incision surgery as this give the onco gynae more rooms to observe our organs and to check whether to remove any swelling ligaments (if cancer is suspected to spread out). Since mine is early stage (stage 1a, well differentiated cancer cell), gynae onco did not remove my ovaries as he it is healthy.
Not sure what your gynae onco has offered to you but TAH sound a better option for me as at least I know my gynae onco has done what is best for me.
Best of luck to you and do post any questions in the hysterectomy forum. Trust me, I have lots of supports and words of comforts from there.
sue08648 carol_57301
Posted
I am confused. Correct me if I am wrong, is your onco gynae asked you to go in for another op remove lymph nodes or l called it ligaments?
Well, I am not sure whether you really need it but my onco gynae did not remove any of my lymph nodes as during op observation, he mentioned no swelling ( I had the abdominal incision hysterectomy as per his recommendation as he is quite senior gynae oncologist).
I did not undergo any radiation session but was put on 3 months close monitoring review. I think few of our Patients members did not undergo radiation as well.
I would suggest that you get a second opinion from another gynae onco. Removing 40 lymph nodes is of no joke taking into consideration of other complications you mentioned in your previous posting. Radiation session --- well not to offend you, but my onco said it will do more harm to our weak body than curing us as our cancer is stage 1A or in another word contains to the uterus only.
carol_57301 sue08648
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sue08648 carol_57301
Posted
Good to hear that. Some Doctors out there are just there to make money from helpless people like us. Shame on them!!
Like you, I am also on alternative medicine. I visited chinese oncologist and he precribed natural herbs. I still get tired easily but no more anemic. My lower back and muscle pulling surrounding both pelvic bones area are still there on and off. I go for acupunture session once every 2 weeks. Guess the healing process will be a long ones and this our Doctor did not inform us!
lynda20916 carol_57301
Posted
Hi, Carol!
So good to hear from you! I was wondering and wondering what had happened! Thank heavens you avoided the second surgery and all the attendant side effects. If you needed to be "sure" then I think it would have been better to remove the adjacent lymph nodes only and biopsy them at time of surgery. Can you file a complaint with the NHS?
My oncologist also said that radiation in the pelvic area often does more harm than good! Will also look into Turkey Tail mushrooms, as a friend of mine takes them, too. I don't do so well with the holisitc approach, though.
Many blessings to you! Please let us know how you continue to do!
xx Lynda
lynda20916 sue08648
Posted
Hi, Sue,
I hope that your recovery continues smoothly! I'm sure that the Chinese oncologist will help your body to heal itself, gradually, but well.
I wanted to let you know that I met with my doctor a bit early for my first post op and got the results. Bottom line is, no need for further radiation and now put on monitoring, like Carol and you. I am so grateful!
Thank you for your support! Please continue to write in and let us know how you do! Here's to good health and a bright future!
xxLynda