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Endometrial Cancer Diagnosis

Posted , 10 users are following.

lynda20916
lynda20916

Well, I had my uterine biopsy this week, and my Dr. called with the news, I have endometrial cancer, types 2 and 3. I've been referred to an oncologist, who's supposed to contact me after the weekend. My Dr. told me that because I caught this early (I started to spot on April 14) that we're on top of it, and that the cure rate for this is about 99%.  But, I don't know what to think or feel.  I'm pretty scared. If anyone has some words of wisdom it would be much appreciated.  Thank you. 

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  • cindy60904
    cindy60904 lynda20916

    Posted

    I was diagnosed with endometrial cancer after having a biopsy. I was experiencing spotting and then more bleeding and my doctor wanted to be sure before treating me. I am 54 and have been post menopausal for 2 years.  I was shocked that it came back as cancer.  I am really scared, however the ultrasound on Friday looked promising and they feel it was caught early.  My husband is in denial I think, he asked if I need the surgery since ultrasound came back good.  He doesn't seem to understand that the cancer cells will not just go away.  How do you deal with family denial?  I know he will be supportive of me but I am tired of trying to be strong to ease the worry of everyone else. I'm having trouble sleeping because I wake up just thinking.  I see the oncologist gynecologist on Tuesday. I'm taking my daughter with me for a second set of ears. I asked my husband if he would like to go with me, and I could tell he would rather not, but when I suggested our daughter, he said she would understand more of what is being said.  I guess right now I am just full of emotions and need reassuring. I've only told a few people right now until I hear what the oncology dr. says.  I was told a hysterectomy is the only way to remove the cancer. I just do not know what to expect.

    • sue08648
      sue08648 cindy60904

      Posted

      Hi Cindy,

      Be strong. Let time and God lead you. I am 38 and was diagnose with endometrial cancer Jan this year. I had open abdominal hysterectomy in Feb. It is tough to accept the reality for family members and even tougher for us to accept it ourself. It takes time to heal.

    • lynda20916
      lynda20916 cindy60904

      Posted

      Hi, Cindy, 

      Sorry to learn you're going through this.  I am 67 and had a total vaginal hysterectomy and removal of adjacent lymph nodes on July 18 to treat endometrial cancer.  Fortunately, it was caught in time. I started to spot in April, but hadn't been feeling well for a while.  

      By all means, take someone to your doctor's appointments who can be there for you and remember what the doctor said.  I know that when I was first diagnosed I was so scared that I forgot immediately almost all the information I received.  

      I suggest you ask your daughter if she is willing to support you through this process.  Your husband may be so frightened that he also finds it difficult to function; hence the denial.  If you are having difficulty sleeping or coping, ask the doctor for medication to help you. You will need to be able to rest and have enough clarity to make decisions.

      If you are comfortable with your oncologist, make sure you are comfortable with your surgeon.  Usually, they (or their staff) try to be helpful and let you know what to expect, including the type of surgery that will be performed.

      Know that there are people, family and friends, who love you and are concerned for your health, happiness and well being!  

      Please let us know how you do, and come back to this site for information, comfort and support!

      xxx 

  • carol08195
    carol08195 lynda20916

    Posted

    Hi Lynda.. Even though Pelvic Radiation is long.. logically it makes sense. The surgeon removes all the visible cancer..but microscopic cells remain..especially around the vaginal cuff and any other surgical site.  

    Chinese medicine seems like an add on therepy.   Do not experiment or fool around with Cancer... I just think you are way better off with Pelvic Radiation if recommended.  FYI I did have bowel problems during..but nothing after..except my vagina will never be the same because it was scarred and I have to dialate every couple of days.. Beyond that apart from it being a pain to go every day for 25 minutes..I feel I have done the best I can..

    • lynda20916
      lynda20916 carol08195

      Posted

      Hi Carol,

      I was staged at 1A after my surgery, so my surgeon/oncologist told me that radiation wasn't warranted.  

      It's been about a year since my surgery, and I see my doctor every 3 months for a check up.  I'm doing much better than I was, but it has taken me a long time to get my stamina back.  I can work hard--housework or gardening, but not two days in a row.  Still I am hopeful.

      I've also had UTI's and have vaginitis.  My vagina feels like a paper bag at times, though I do use a replenishing product every other day.  

      I'm sorry that you're having to dialate it..I know I don't look forward to inserting that product, but otherwise, I get scratchy pain...ugh!  

      xx

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