endometriosis and shoulder pain

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Hi. Does anyone else suffer with shoulder pain especially after eating and is it related to endo? I Dont mean pain after laparoscopy just generally?

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  • Posted

    Hi i am going through the same sort of problems i have terrible shoulder pain and used to couch up loads of blood each month i went to hospital but recieved no help so was left wondering what was wrong with me  anyway years later i am feeling much worse it seems whatever it is has also attacked my bowel so when i open my bowels there is loads of bits of skin floating and i cant breath properly the couching blood dosnt happen anymore i had the marina coil fitted but i dont have periods anymoe because of the coil i think but now i am feeling worse than ever i am beginng to think i have lung cancer or something serious i went to the doctors last week and he said that as im not bleeding each month it cant be endometriosis i dont know what to do anymore im in such a terrible state   when i went to see the gyno years ago they suspected endometriosis but i never got any further help im out of breath all the time now and have constant back pain and pain in mt abdomen that feels like someone is twisting my sides but the most bizarre bit is when i go to open my bowels and there is loads of bits of tiny skin this all got so much worse when i had to have an emergency ceserian 11 years ago i have 5 children can anyone help me as i cant take anymore 
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    • Posted

      Omg. Change your dr. Endometriosis is there whether you have a period or not. Surgery can clear from pelvic area though they cant guarantee it wont come back. The hormone coil will go towards slowing growth. Have you had chest xrays etc I think you need to write all the problems down and ask to be referred to a specialist. I bit the bullet and had hysterectomy and ovaries removed 2 weeks ago so early days to know if it has helped as still sore from surgery. I have children so just because you can conceive doesn't mean it's not there. Did your symptoms get better during pregnancy at all?
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    • Posted

      Hi sorry to hear you are suffering so severely. I have had endo for 10 years now and had 8 laproscopies to removed it unfortunately it has come back every time. Every so often my gynae consultant makes me take me pill back to back so i dont have a period because so it does grow. I asked for an hysterectomy but he said in order to stop the endo they would need 2 remove my ovaries as thats where it stems from. For years i have suffered horrifically with abdo pain and back pain but i have never coughed up blood. I have also had pre cancerous cells on my cervix known as CIN 1 and CIN 2 which i had removed. I really think u need to go back to your G.P and damand an chest xray if u dont get any joy need time you cough up blood cough it up in a bowl and go straight to the A/E department they will do an xray. Coughing up blood is not normal and you need to find out what you are dealing with. Maybe an idea to look up on internet COPD and see if you have same symptoms i hope u get some answers soon
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  • Posted

    Hi yes when i was pregnant i didnt have the symptoms but i cant go on any longer im so worried and feel so ill like im going to collapse  i dont know what to to anymore 
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    • Posted

      In which case it sounds very much like endo causing it. Please ask to see a specialist or try and find one. If you get nowhere with gp ask to see another one. Write all down so they dont fluster you. Good luck xx
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    • Posted

      You will sort it but you need help. Look online for endo specialists in you area and phone them up it maybe that they will accept appointment without referral. Im not sure how it worksbut guessing you need referral if doing thru nhs rather than private. Your entitled to healthcare but you may need to be more forceful with your gp to get somewhere. Tell them that it is not fair that quality of life is being compromised by not getting answers. Have you ever had a laparoscopy to just have a look at whats going on in there?
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