Esmya side effects

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hi. I am 39 and recently had a hysteroscopy to remove a fibroid that was causing heavy bleeding and blood clots. I have other smaller fibroids (17mm) which were not removed but I took a 3 month esmya course which gave me all sorts of side effects like tiredness, body ache and vaginal discharge. There is such little information available on esmya and I want to know what are the side effects once you stop esmya. It's been 11 days since my course ended and while my period hasn't returned today I had vaginal l discharge which was bloody. Is this normal? Any experience anyone can share? Thank you!!

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  • Posted

    My side effects on Esmya were slight hot flushes, and a headache the first few days.  I was period free though on the positive side.  I have had a coil which failed and expelled, a failed myomectomy, the ablation which failed and just before i had my UAE which was this time last year, I was experiencing wet releases, nobody could answer why, not a discharge but very irritating when you are not bleeding there was no let up.  I am 47 and my family is complete, the UAE was the best thing i have ever done, hope this helps, still have uterus and one ovary, no sign of menopause.

     

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  • Posted

    Hi! I had 2 hysteroscopy, plus burnt inside the uterus, I don't know what the medical term is in English, about 18 months ago to remove 2 large myomas. I was 39 at the time. And was put on esmya to help shrink what was left. I had headaches, dizziness and hot flushes, and spotting. so stopped taking it after 2 months as it wasn't helping. My periods began again after six weeks of stopping and only three days long and hardly any blood! Now clotting has started again and the intense pain during my period. But not flooding and not bleeding for weeks on end. Hope this helps, and good luck.
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    • Posted

      Thank you so much. Hugely helpful. I have had a bad time with Esmya and since it is a new drug all the side effects arent even known so you dont know if your symptom is a temporary side effect or something else... I finished the three month course - no idea if it has helped shrink the fibroids though. Meeting my specialist in a month so will know then. I hope you feel better soon - you may want to consider some diet changes to help with the pain. I have also read that acupunture helps with fibroids. 
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    • Posted

      Hi again! Diet does help some people, but not me. I have been really careful with my diet and make healthy choices but have seen no change. But I had acupuncture and it did work! I highly recommend it! It helped with pain and my menstrul cycle and sleeping. X
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  • Posted

    Its hard to know isn't it as no one really tells you anything. side effects will not be the same for all. For me, I had no side effects from the Esyma and my period came one month after stopping it. 
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    • Posted

      thats the problem isn't it, this site is great as you can get real experinces from other people in the same situation. No sure if you are also in the UK, but feel totally left to your own devices here - people were shocked when i said i had to remove/ redress my wound myself and check for infection.
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    • Posted

      Yes I am in the UK and coming from India, the interaction with doctors (and I am on private insurace) has been a real shock for me... I haven't engaged with a doctor in the last ten years. Last year I fell ill and no one could understand what it was. I spoke to my doc in India who shipped the meds across and I was fine in a week. Don't get me wrong - I think the NHS is great and we have some of the best doctors in the world but sometimes just talking to a patient helps. 
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    • Posted

      totally agree. The NHS is amazing just for the simple fact you can fall ill, go to hospital and get treated for free. But the need for getting their figures right, like seeing patients, discharging patients does cause negative effects. I was first seen with fibroids and discharged on the same day being told to go have  kids as the doctor would not do anything to my fibroids until i did. Spent a year, getting worse and ended up needing a blood transfusion and night in hospital, so they may have got the numbers right for dishcarging me, but ended up spending more putting me right at a later date. 

      Hope your body gets back to normal soon. It will take time, as all the hormones are messed up.

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    • Posted

      Thanks! I believe Esmya mirrors the side effects of menopause... so maybe that is what is happening to me. I was also very anemic prior to the surgery (had two iron infusions) so that has impacted the recovery as well as heightened the side effects of Esmya. Hopefully all will be normal soon. 
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  • Posted

    This post is good to read as I am about to start on it for the next three months.  It seems that side effects vary enormously, according to people posting on this site.  I will let you know how I get on with it.
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    • Posted

      I've been on Esmya for 3 months but am just about to stop taking it as I have had my fibroid removed (TCRF).

      I am a little worried about my periods coming back as heavy as they were - hopefully not though!

      I had no horrible side effects but did experience aches in my shoulders and uterine cramping for the first week.

      A little acne on my chin is a fair swap for a lack of blood clotting and flooding!

      I hope if you have been given Esmya it works for you.

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    • Posted

      So far it is working working great for me.  I have been a bit more tired than usual, but the bleeding was much lighter after the first day of taking it.  The length of the first period was 5/6 days of light spotting.  I have been taking it for 16 days, so it is still early days.
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