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EUS scheduled, what to expect?

Posted , 6 users are following.

jkristine
jkristine

Just looking to hear from folks who had an EUS procedure and hopefully you'll tell me how awesome it was and that there were no complications! Feeling a wee bit nervous....

Also, were your results what you expected? Is this a good test to diagnose very early CP?

0 likes, 22 replies

22 Replies

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  • nettie76045
    nettie76045 jkristine

    Posted

    Hello Kristine,

    Just to let you know I had  EUS procedure done last year. Like you I was a bit nervous of course, but it all went very well..No complications, pain or discomfort at all.

    C.P. was diagnosed. I have  probably had it for a very long time already I was told, considering all the things wrong with pancreas.. i.e. calcification, cysts...inflammation, tissue changes etc.

    But I gather I am a lot older than you and have lived with it for all these years and never noticed that something was wrong until last year.

    Hope your EUS procedure will be as good as mine and wish you all the best.

    • jkristine
      jkristine nettie76045

      Posted

      Thank you Nettie! It was a relief to hear that everything went smoothly for you! How long have you had CP and what are your symptoms?

      It's really terrifying thinking I might be diagnosed with CP...I've had heartburn digestive issues after each pregnancy and never thought much about it but since August, I've been sick with heartburn, burning and squeezing pain in the center of my rib cage and green stool...my lipase levels have been slightly elevated since August but are going down to almost normal...

      I have 3 kids and somedays I am hopeful and feel like I'll be here for them in the future but then I have bad days and I feel I might not....unpredictability is hard to cope with...

      I hope you are doing and feeling well and thanks for your reply...!

  • william65322
    william65322 jkristine

    Posted

    You are going to do just fine.  I had mine done a little over three years ago and it did confirm my CP.  The medicine they gave for the procedure really relaxed me and before I knew it the procedure was over.  There were no lasting side effects at all.
    • jkristine
      jkristine william65322

      Posted

      Thanks for the reassurance! I needed to hear that! How long did you have symptoms before you were diagnosed? What are your symptoms and how are you doing now?
  • william65322
    william65322 jkristine

    Posted

    I had symptoms for about 2 months before they did the EUS.  I had a feeling it was chronic due to the multiple trips to the ER and it was just not getting any better and the pain lingered.  I am doing better, I had a spinal cord stimulator implanted about 2 years ago and it has helped with the pain a great deal.  It tells my brain to feel a tinggling sensation and not pain.  It can be adjusted to focus on certain parts of my abdomen.  Please let me know how your procedure goes.  God Bless!
  • maile3
    maile3 jkristine

    Posted

    Hi,

    I just came across your post and was wondering if you could tell me what your symptoms were/are.

    I feel like I'm in the same boat looking for answers as to what's causing my pain/discomfort.

    I initially had some lower back pain and left upper abdomen pain that is mild -- about a 3.  It's not there all the time but is intermitten and comes and goes since mid November.  Since then, the pain and discomfort has seem to settled on right side under my ribs and now i feel it in my mid and sometimes bupper back. 

    I have had normal blood work in november including pancreas enzymes.  My amylase was very slightly higher at 150 which dr. said is not even considered abnormal.

    I have had a CT scan which showed "everything within normal limits".  The most worrisome thing for me is how this discomfort and mild pain would keep returning.  It never seems to hit above a 4/5 (i know, i feel really wimpy for even complaining).  But it is so hard to keep positive and moving on day to day when I can be doing anything normal and I would feel it.

    I'm starting to feel anxious like can something be missed.  I was really worried about my pancreas because of the location of the epigastiric and back and have hounded my GI dr.  He was convinced int's not Gastro but did a Endo and Colonoscopy to finish the GI work up.  

    I am getting ready to ask my GP for a EUS and I'm nervous as well.  From what I read, the EUS is more sensitive and can pick up clearer picture.  I want that to rule out major stuff but I'm also really scared of no answer.

  • maryjq46
    maryjq46 jkristine

    Posted

    Hi....I have been told to see A Dr. That is a specialist in opening the drainage because of birth defect Pancreatic Divison..did you have the stretching done? Did it get rid of chronic pancreatitis ? Symptoms started over a year ago...after dxed a year ago ..I've had several attacks! Any info?

     

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