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I'm praying someone has some helpful advice! I am a 36 year old female who started having this problem just after I turned 18 and started college. When I walk at a slightly fast pace (walking the dog, crossing a parking lot, etc) or go up any type of incline my calf muscles start to burn. It gets very hard to walk. It's almost as if my calf muscles are locking up yet I can still walk. As soon as I stop walking, the pain is completely gone in 15 minutes or less. I don't seem to get a second wind if I keep moving, only if I totally stop and rest. My arms and upper legs are effected as well, but not as much. For my thighs, it's mostly more of a tired/out-of-energy feeling when climbing stairs. I get about halfway up a single flight of stairs before the pain starts. My arms are effected by writing more than a couple of sentences and repetative motions like putting things away in an upper cabinet, loading groceries into the car, brushing my hair, etc. I have to sit down to put on lace-up shoes because bending over causes leg pain as well. The calf pain with walking really seems to depend on the day. Some days I can only walk half a block before the pain starts and other days I can go a few blocks. I have seen a neurologist off and on for 18 years but she hasn't been much help. I have a long list of things it is NOT, but no definite diagnosis. After doing my own research, I'm convinced that it's a metabolic muscle disease but I'm not sure which one. Mahybe Glycogen Storage Type 7 or 5? Or maybe myoadenylate deaminase deficiency. I would love to find people with similar symptoms or these specific disorders so I can pick their brains for ideas! I am switching to a new neurologist in 2 months but with all that I've been through, I'm not holding out too much hope for an answer. I have had lots of blood tests, EMGs, a brain MRI, a muscle biopsy, a genetic test or 2 (myotonia congenita test was done for sure), autonomic testing, etc. There are a few irregularities in some of the results, but nothing specific to any one disorder. Can anyone help me????
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