Exposing clitoris again

Yes I have just started using it. I am still unsure if i am applying it correctly. I usually use a pea sized amount and put it on the white patches, on my clitoral hood that has fused over and on my remaining labia minora lips. Is this correct?

Yup, that's right.

Have you talked with your gynaecologist about surgery? As far as I know, the probelm with surgery is that the cutting itself sets up the Koebner effect – a flare-up reaction to any skin trauma in psoriasis and LS patients.

The disfigurement we suffer is from adhesions – which are a big problem in other groups as well. The trick would be to keep what surgery opened up from scarring over. Dr. Goldstein sounds confident that using Dermovate religiously would keep that from happening. He does point out that there are at least four types of LS, so if you have a more aggressive form, this scarring could happen fast. Just my amateur thoughts. Who knows what they can do with laser, etc.?

How long has it been fused? I've had two adhesions release in the six months since I was switched from Dermovate to Protopic. If it hasn't been long, it's possible that with gentle stretching you could GRADUALLY separate the 'seam'. That's what I did when my vaginal opening had gotten suddenly smaller when my perineum pleated into an adhesion. Our Hanny was down to a pinhole opening and in hospital had a dilation procedure to open it up. She continues to use a set of dilators and is able to have intercourse.

It'll never be 'perfect' though.  The clitoris adhesians are hard to 'unravel'.  I'm in the midst of that now.  Imagine, however, how far I have come.  Just the clitoris area left.  But something is intervering with the urethra, which looks like a bladder infection but isn't.  More doctor visits to go.  That top part is a tricky area.

I believe that Dr.Goldstein had said that a sutgery is recommended and it will not cause a flare up ( I watched his seminar today ) He said it is a simple- 25 minute procedure. My question is where can I get this surgery performed....so many questions with this disease!

I can't post any links, but I just Googled 'surgery clitoral adhesions' and got lots of stuff. Trials – pretty small ones – going back to the early nineties. There's a doctor, Professor Ostrzenksi, who advertises cosmetic surgery around the vulva including 'excavating' a buried clitoris. Unfortunately, because there's been a trend toward women (who presumably have more money than brains) having surgery just to 'improve' the appearance of their labia and clitoral hood. So, I guess surgeons who specialize in this are busy doing commercial work. If you google him you'll probably get the site I'm reading.

I do the same but go further down around the vaginal opening where i have occassional twinges.

I do dermovate twice a week and trimovate twice a week.

I think many of us here had never heard of LS before their diagnosis.   Some have to cope with other auto immune issues as well.

I'm not in favour of surgery.  I went for a dilation procedure at one time.  Worked out well.

?Best results I had with baking soda baths and rinses, later borax baths and rinses.  Gradually all unfused. 

Really, it all unfused just with baths? Did it take long? And do you know if most of LS pts have an auto immune disease? I'm just thinking that had I stayed on a drug that was prescribed by rheumatologist it may not have occurred. It was d/c'd by MD.

Forgot how long it took, strange.  I was determined though totally fused up.  If this is only your clitoris, it won't be easy but chances are you get it back to almost normal. 

?If you use baking soda in a bath - one third of a cup.  For borax I would use half that.  After every bathroom visit I rinsed with three pinches of baking soda or borax in a Perin bottle, desolved well.  Deb dry. 

?And I stayed away from added sugar and tried to stay in control of any stress.  Those were the main things. 

?At present I just do maintenance - baths every other day,  twice a day rinsing after bathroom visit and apply a small amount of coconut oil.  Plus I have to keep doing the dilation, every few days now.  More frequent in the beginning.

?There is much more info you can find on this forum about the things I mentioned.  Different opinions as well.  But this was what worked for me.  Using the most gentle methods. 

hi janis , yes LS is an auto immune condition. I also have an underactive thyroid and they both conditions seem to go together. It seems to me that as we dont hear about LS we dont get it diagnosed early enough and hence fusion occurs and then we know theres a problem. Im still looking to see if someones had surgery.

what were the amounts for baking soda and borax please and did you stretch or massage?

Three pinches in a Perin bottle. I did also stretch with a special tool I can not remember the name off - looks like a penis in various sizes. Started small and used coconut oil for lubrication. Also do regular baths and add 1/3 cup of borax in a full bath.

Meanwhile, after a long period of several years I no longer have much LS symptoms. But I keep doing what I am doing. Can not go without or soon I feel the typical itch of LS returning.

Yes, and Thank you! I slacked off and am paying for that, I am back on my Borax regime daily at this point.

My clitoris has fused, I am soaking twice daily and using the saturated solution also after each bathroom visit. would massage help and is there anything else I should be doing to help unfuse ? I don't have a thyroid but keep my meds in check and do have extra stress due to my husband's illness.

thank you!