Exposing clitoris again

I am terrified that within a month my clitoris fused! Just like that! I have been diagnosed with LS and it is aggressive! It is such a vulnerable place to have an issue. I am trying the prescribed creams, estrogen cream and cortezone cream but have read about the borax cure--the site I came across gave a recipe for taking it internally. As my clitoris is all but almost gone I am feeling desperate. I have out some borax in my baths but nothing or working and I am in shock! What an awful autoimmune disease. I am scheduled to work with a acupuncturist and try to get my immune system functioning better. Any other suggestions? I am considering plastic surgery if nothing else works...I figure I may need to have repeated surgeries unless I get to the bottom of what LS really is and why it affects the genital region. I will post my progress on this page in the hopes of sharing with others who have been given this bizarre diagnosis. 

Question-could antibiotics used when I was a child hospitalized for menangitis have caused my LS?

anyone had a vulvar biopsy and how painful was it and how long to heal?

Has anyone had surgery to unfuse the clitoris ?

Hi, Nicole. I am considerably older than you, but I have been dealing with LS for a few years I believe. I had terrible itching and pain first, then the fusing. After using some different creams prescribed by my doctor which only improved the condition to a point, I was lucky enough to get referred to a sexual medicine nurse specialist and then gynocologist who both have a special interest in vulvar medicine. After the exams and biopsy, I started on an aggressive treatment program using clobestasol propionate ointment (steroid 0.05%) three times a day for the first month, and then cutting back per the doctor's instructions the next two months. Additionally, I use an estrogen cream at bedtime twice a week. The white patches and lesions I had are gone, but the "seams" of skin are still there. As the skin has become more soft and pliable, I have tried to gently stretch the fused spots. My right labia minora is much smaller, and there is a fold of skin on the side of my clitoris, but the skin feels healthy and more sensitive so I continue with all that I have been doing. Please try and find a reputable gynocologist first before going a surgical route. And best of luck, Nicole. Take care.

Just had stem cell lift done and after suffering for at least 10 plus years with this diagnosis the unfusing took place today during the procedure.

look into stem cell therapy. It is amazingly responsive to ls. Shocking that something which has such positive results isn't touted much more by the gynecological professionals!

I use baking soda or borax in a spray bottle/Perin bottle. I put three pinches in the bottle and fill with warm water. This I use after I have urinated to rinse off. Then I dry with a small towel that I use for this purpose.

Hi Nicole,

I acknowledge it's been six years since you posted this but just to say that last December at the age of thirty- six, I found out that I had no labia minora and that my clitoris was fully fused. I also think that I have had LS since I was a child and am not sure that I ever had a Labia Minora but did have a Clitoris. Due to my LS not being diagnosed for nearly twenty years (despite numerous trips to the GP with an inflamed Labia Majora, pustules, etc), my Clitoris became fully fused. I was told by a consultant Gynaecologist that I had lost my Clitoris and that it would never come back- I cried. Luckily, I emailed a LS Charity who gave me lots of information and advice and I went back to my GP who referred me to a dermatologist.

Separate to this, I massaged my fused clitoris with a pea sized amount of steroid ointment for around twenty to forty minutes a day until it started to un-fuse (it started to un- fuse after about five days). The information that the gynaecologist gave me about losing my clitoris was incorrect and my GP was not happy that I was told this.

Your clitoris will still be there it will be hidden. There are two ways that a clitoris can fuse (I think either North to South or West to East and it is harder to un- fuse west to east). I think my was fused West to East so it not completely un- fused but is much better (loads more sensitive).

Good luck.