Extreme dizziness

Posted , 6 users are following.

I have been suffering with dizziness for some months now but up until 3 weeks ago it was only when I moved my head from side to side.  In the last three weeks, I have had constant dizziness 24 hours a day and I really dont feel with it.  My doctor though it was bppv and asked me to the the modified epley manoevre at night which I did for over a week with no improvement.  Now over the past weeks, I have become worse.  The doctor has given me stemeil which didnt work and now betahistine dihydrochloride which make me feel sick all the time.  I have now been referred to Ear Nose and Throat at the hospital with several weeks waiting list.  In the meantime, I am not fit to drive or do very much.  I feel dreadful and do not feel at all switched on to do anything?

Anyone any ideas  Please?

0 likes, 26 replies

26 Replies

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  • Posted

    Sounds like it could be a vestibular Migraine.
    • Posted

      Although I have the dizziness and blurred vision I do not suffer with many headaches.  Why do you say Vestibular Migraine, just out of curiousity?
    • Posted

      Another girl mentioned it before - there is one type of migraine that causes all these problems but without the headache called - I think - silent migraine - She said she had 2 conditions and not to always think everything is 1 dx per her dr. 😆

    • Posted

      I had 'silent migraines' you don't know you have a migraine but just the aura of a migraine which can affect your balance. I adjusted my diet as chocolate and cheese were a trigger, got put on nortriptyline and now am much better.   Took 2 years to get a diagnosis as also have BPPV which was blurring the picture.  See a neuro otologist to speed up the diagnosis, I wasted time being seen by just ENT.

    • Posted

      Thank you for your advice.  I am now waiting for my appointmnet to come through from neurology. Its a waiting game.
    • Posted

      I will certainly look into that further.  I have never heard of this before.  Tbh im not overly impressed by my doctor!
  • Posted

    Just thought that I would let you know that I am much better and my dizziness has gone,  It turns out that the mirena coil that I had fitted recently had caused the vertigo and when it was removed I became better.  Who would have guessed!
  • Posted

    Hi,

    I have been dealing with extreme dizziness going on 2 months. I went to my PCP and he gave dizziness med and no relief. He referred me to the ENT Dr. On my second visit she did a balance test. The results was vestibular nuerontis which I'm still not very clear on but it can be caused by inflammation of the ear also the nerve that sends signals to the brain is affected and i also have headaces. Maybe go see the ENT Ear, Nose, throat Dr. Im now waiting to be scheduled for physical therapy to help reset my balance. I am being driven around can't drive. Hope you get answers soon. Feel better.

    • Posted

      Make an appointment with an Otologist or a neurotologist.  The ENT's don't know much.  You have what I have.  Over time I got somewhat better.  Mostly due to Vestibular Rehab Therapy.  There is a book that can be downloaded from Amazon by Bobby Gibbs: The Vertigo Treatment:  A simple step by step guide for treating vertigo.  It shows all the exercises and lays out a schedule.  Don't do too much at first.  This is not a more is better thing.  You can quickly overwhelm your system.  

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