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Extreme fatigue, weakness, exhausted and don't know why

Posted , 22 users are following.

LyLy
LyLy

I am suffering from extreme fatigue and exhaustion and every test is coming back negative. Except for vitamin d deficiency. Vitamin d is just a missing part to my symptoms. I am worried that it's my adrenals and maybe thyroid. I finally got my doctor to refer me to an endo.

Still waiting for approval from my insurance. I was wondering if anyone with adrenal problems have similar symptoms as mine.

I awake very tired in the mornings unreplenished from sleep and I am very hungry, I have to eat something. I have to eat every 3 hours or I get weak.

My fatigue is physical and some what brain fog. I can't function normally any more on a daily basis. Doing simple chores exhaust me. Some days I am unable to do anything not because I am lazy but I don't have the energy. It feels like I am recovering from running a marathon.

My fatigue started in October with a stressful job and doing too much. The fatigue just started getting worser as time went on. The lighthead, head pressure, irregular hearbeat, palpitations, irregular highblood pressure spikes, neck and shoulder pain and hands and legs get heavy at night, fingers sometimes get numb.

I don't get replenish from eating or sleeping. I don't understand it. What is wrong with my body? I've never been this sick in my life. Always been healthy except for doing a little bit more than I should.

Some days I feel like this his how it feels like to slowly die. Wondering if my body will eventually shut down. It's been 7 months just sitting and waiting for more tests and suffering.

Any insight or advice on what test to request to take from endo and questions to ask.

Thank you

1 like, 38 replies

38 Replies

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  • jeff06842
    jeff06842 LyLy

    Edited

    I’m not getting better.    Keep getting worse.     Probably because of depression from losing my health and happiness.    Made myself get fired cuz I can’t do anything anymore.    How did you wind up stop working?   

    We’re yiu able to get disability?    I called a firm to get started but they said I need official diagnosis first and then go from there?    Tomorrow have dr appointment and I have told him that we’ve ruled everything out and that I have CFS.   I think he knows that now.   It’s time to get diagnosed.    I try so hard to find anything else.  Can’t find anything anymore.   Only thing we found was vitamin d deficiency and I was so excited because I thought it’s time for recovery.    Obviously that didn’t happen for us.    Also I see your comment on B6 where you were excited to for recovery.    Apparently CFS is a whole different level of fatigue and other symptoms.  

    Everyday I cannot believe how this has all went down.   I had this gradually hit before  I turned 50 and symptoms just kept on building.    Had no idea what I was dealing with.    Still don’t.   Just feels like it’s way too much to have a happy productive life.    Have to accept new life and hope for some recovery.  

    I’ll have to look into root cause protocol.    Who got you going on that.    When were you finally diagnosed with CFS?    What did you think?  Was it somewhat of a relief?  

    I know it’s scsry because nobody knows anything about it.   Wish I had cancer or HIV or something that was understood and treated.  

    Do you think you actually should have more testing to find something else?     Any other possibilities?    It sucks when you run out and have to settle for CFS.    How old are you? 

    Glad I contacted you.     Wish it was for a good reason.   

    Hope you are well as can be and I’ll stay in contact.    

    If you ever want to talk we could figure that out I imagine.     

    Have a good day Taro

    Jeff

    • maria85986
      maria85986 jeff06842

      Posted

      Hi Jeff, am new on here and I feel exactly like you do. I'm 54 and started with this weakness 3 years ago!

  • tracey32041
    tracey32041 LyLy

    Edited

    Hi, taro93814. Have you had a workup for Hyperparathyroidism? I was diagnosed with it in 2003 and it sounds like you could possibly have it. It causes a lot of problems within the body. The best website to read for this is www.parathyroid.com. It was created by a doctor in Tampa, FL, USA who specializes in it and does surgery on the parathyroids. When I was diagnosed with it the Endo I was seeing at the time prescribed 50,000 international units of Vitamin D to take once a week. I'm still on it and it has helped me. Take care.

  • maria85986
    maria85986 LyLy

    Posted

    WOW! I could have written your post,!!! I have the same exact problem minus the high blood pressure.

  • maria85986
    maria85986 LyLy

    Posted

    taro I also have the exact same symptoms and feel the same and also the only thing that came back not right was vitamin D.

  • diane73605
    diane73605 LyLy

    Posted

    has anyone found out what there fatigue was??

    i'm bed bound atm with lack of energy weak & tired my legs seem heavy on standing & i breathe like i've got full now two things i keep thinking heart failure or adrenal gland issues been on going & dts dont seem to give a toss

  • diane73605
    diane73605 LyLy

    Posted

    so i've been struggling bad with fatigue high blood pressure fight of flight up weakness in bones legs feel heavy tightness of ankles pins & needles i get to point one job feel like i've got a weak heart cant getting up feeling a 100 yrs old i do get tremors to hard getting out of bed some days that drained that bed bound i'm starting to think its hormone linked cant cope with the lack of energy anymore i get kno where fast with my dr ive booked a echo just to check my heart is coping with the stress of the hormones always being up!..i just wanted to know if my adrenal glands wasnt working proper wot test can be dont to detect it ?

    i went on hrt patches yesterday but woke up with mega headache not sure i'm doing myself any favours applying a patch of there failing to work proper any advice ?

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