Extremely itchy vulval and anal area for 6 years

Hi, it may be worth seeking a vulva dermatologist as it may be Lichen Sclerosis. Check out the symptoms and discussion board on LS. A dermatologist will be able to advise you. 

I agree with Samantha. You shouldn't see a gynaecologist, you need to see a dermatologist who specialises in vulva skin. Nevertheless, I am surprised the gynae didn't take a biopsy to test for lichen sclerosis or other things. I had a Vulval biopsy when I was suffering from severe burning and soreness but looked normal. Came back negative for everything, so I was diagnosed with vulvodynia. The vulva dermatologist is the one who helped me get cured. It could be an allergy, a type of dermatitis, lichen sclerosis. One thing that I found soothing was coconut oil. Not only is it a great natural emollient but it has antifungal, antiviral and antibacterial properties. It clears up any rough patches of skin anywhere on the body, it is my go-to for any skin problems. I even use it in my eyes to cure stys.

I’m sure I have the same thing! 

For me this has been going on (on and off) for years. I’m not sure how long. I’ve taken heaps of treatments for thrush and worms. I have spoken to multiple doctors and specialists about it. For me I also feel super embarrassed about it though too! Every test I’ve had done has basically been clear. Sometimes I wonder if the “itch causes the itch” I’ve used coconut oil (pure raw organic yada yada) and I don’t think it worked. I’ll try it again. I also wonder if it’s because I used sanitary pads for menstration but have just read tampons can cause it..? But then again I got it way more when I was pregnant although I thought it was thrush..?  I use paw paw ointment which helps slightly and been prescribed so many ointments now I get confused between what is what. I’ve also had allergy tests done and what I’m allergic to isn’t applicable for my vaginal area. I always have a hard time ensuring I do the 14 day treatments with the creams though, I usually manage to do the first week perfect and in the second week keep forgetting. There was one cream I got given about a year and a half ago by a different doctor I went to in desperation and I’m sure it worked for a little while but my doctor didn’t know what it was and I had so many different creams for it and other things I didn’t know which one! I don’t eat too much sugar although I do drink quite a lot (but it doesn’t seem to be specifically connected in anyway) and I’m starting to wonder if I have diabetes because vaginal itching can be a symptom of undiagnosed diabetes condition... I have to go to the doctor and ask them. It’s just good to know I’m not the only one! Currently up at 130am unable to sleep because of it! It’s a fricken nightmare isn’t it! 

My issue wasn't exactly the same as yours but the crazy itching I had for almost 10 years before I found a cure. I tried everything from Doctor's to natural paths and every cream, lotion and potion, I was so desperate I would have tired anything and did!  I found the cure by accident really. Since then I have had complete relief from the itching, burning, redness I told my sister who had menstrual problems and it has helped her. Somehow this balances hormones and boosts the immune system. Let me give you the cure then the story. Black Cumin Seed and Coriander seed  made into a Tea. I bought a book for my ex-husband called " The Prime Diet" He didn't want to read it so I read it. They talked about a tea that helps your body and "primes" it for weight loss. So I made the tea and started drinking it. While it did nothing for weight loss for me, it stopped the itching!!!! When I stopped drinking the tea a month later the itching came back. When I started the tea again within 24 hours or less it was gone!!! Honestly it was like a miracle. I suffered for 10 years countless tests, creams, pills ect. I live in Canada and this is the brand I use " Amazing Herbs" Black Seed which is a 100 percent pure black cumin seed or Nigella Sativa Seeds. I put one full heaping TABLESPOON of this with a TEASPOON of coriander seeds, must be seeds not ground coriander. I put them in a infuser tea pot for 2 hours and then drink. You can also buy the liquid of black seed which gives you an extra boost but it was the combination of both daily that helped and has continued to help for the last 2 years. I couldn't have sex and it was so bad sometimes I would have to put a ice cube on my vagina just to numb it so I could sleep. I don't know if this will help you but if your at your wits end it couldn't hurt to try. Both my sister and I have been helped by this tea for different reasons. If you try it and it works please let me know. So many women are suffering needlessly without any answers. Diane [smile]  

Any luck with a cure? I’m suffering with same, waiting to see consultant, first doctor has said dermatitis. It’s awful isn’t it?

If any of you have not had a biopsy done, please do. Most GYNs and dermotogolgists do not have experience with LS, VIN or vulvar cancer ( not saying you have cancer ) I had an itch for a year and a half. I tried all the creams, docs ran all the tests ( herpes they did twice) . My gynecologist didn't know what it was but removed it in the operating room and it was VIN 3. It's a precancerous condition that must be treated.  Both LS and VIN can lead to vulvar cancer if not treated correctly.To date, I have had 3 surgeries to remove these lesions.

I am so glad I am not alone! I’ve been dealing with a constant itch going on 5 yrs now. I changed laundry detergent, fabric softener, bath soap, switched to coton  panties, you name it I did it, because I was completely miserable!! 

I wake up in the middle of the night clawing my skin. I have been to obgyn (every year) she tried treating me for several months before sending me to a dermatologist (I think the Dermetoligist thought I was completely crazy) Dermetoligist could never find the problem/ cure. I was then sent to another Dermetoligist, still nothing. Then I was sent to a specialist & the compound cream worked pretty good for about a month then back to clawing my skin. I also had two biopsies done (not fun!) & the only thing they could come up with both times was contact dermatitis.