Eye problem: PMR or GCA?

Posted , 9 users are following.

A couple of months ago, my right eye felt as though there was something in it.  My MD looked under the lid, saw nothing, and gave me Erythromycen eye ointment to avoid “pink eye.”  The sticky gel was hard to apply and did not seem to help.  I will be seeing the MD tomorrow.  My eyes are rather puffy early in the day and feel dry although tears do come out.  Could this be a symptom of GCA?

I am currently on 6 mgs prednisone, down from 15 over a year ago, for PMR.  My worry is that the MD who diagnosed my PMR, is not aware of the possibility of getting GCA. I am preparing for knee surgery this month and want to be as healthy as possible. 

0 likes, 23 replies

23 Replies

  • Posted

    Why not see eye doctor for this problem? I would treat is as an independent problem until it is proven otherwise. With spring season, it could be allergy related.. Instead of guessing, see the specialist.
    • Posted

      My transportation is limited. The eye dr. is in another town and I do not drive, am dependent upon someone to take me there.   I will attempt a referal from my dr. tomorrow. 
  • Posted

    Hello Peggy,

    I too have had this problem. I suffer from a condition called iritis which is a rheumatic condition of the eye. I have had it for over 30 years and it does give you very dry eyes as one of the symptoms. The only cure for it is Prednisolone eye drops called Pred Forte. ( you do not have the side effects we all experience with the tablets) I have Had PMR now for a year and at the moment am suffering from the sort of eye you are talking about but will let my optician check it out to let him decide if he can see the iritis cells. Please get yours checked out with an eye specialist before going further.

    If you are in the UK your optician rather the your GP is the first point of contact.

  • Posted

    I think it is far more likely to be a symptom of dry eyes which is quite common in autoimmune disorders. In some cases it can be a full-blown autoimmune disorder in its own right called Sjogrens but you also find "just" sicca syndrome - which just means dry.  What you describe really isn't a typical sign of GCA.

    The dry eye bit doesn't mean you don't make tears - it means the high quality tears that keep the surface of the eyeball moist aren't being produced so the eye produces larger amounts of thinner tears to try to compensate. 

    Do you have an optician close to you? Not sure how your system works - in the UK they would be able to advise. 

    This thread discusses blepharitis:

    https://patient.info/forums/discuss/please-share-your-blepharitis-treatment-routine-other-info-258318

    with a lot of suggestions of things to try which help. 

    If you google blepharitis you will find several helpful articles.

  • Posted

    I'm with Eileen on this. When I first started experiencing dry eye my eyes would just run with tears and I mentioned that to my eye doctor and he said that was a sign of dry eye. When my eyes were not running they felt like they had something in them all the time. That was years ago, he suggested I take 1100 milligrams of Omega-3 which solved my problem for years. Until I got PMR. When I started taking prednisone he told me I had to get off of the omega 3 that I couldn't take them both together. Ever since then my dry eye problem has been horrible. I've even gone to see an opthamologist and have had a treatment done by him for some relief. I am now on a quest to find out if there is really some reason I can't get back on the Omega-3 while on prednisone.

    • Posted

      Re: omega 3 while on pred: I just checked a professional drug data base for interactions and found absolutely no interaction between the two drugs. I do not know where that Doctor dreamed that up. 

      My rheumi and internist never said such things to me either. 

    • Posted

      I am also interested if there is aconnection between prednisone and omega-3. While I don't take Omega-3 suplement , I eat a lot of fish which is the main source for Omega3. Please post what you find.

    • Posted

      Thanks! We must have typed at the same time, since your answer was not posted when I started.
    • Posted

      I really don't get it either. Nor, it would seem, does the Johns Hopkins Lupus Center, whose site says:

      "Diet

      A healthy diet is important for everyone, but it is especially important for people with lupus and those taking steroid medications. While taking steroids, your cholesterol, triglyceride, and blood sugar levels may increase. For these reasons, it is absolutely essential that you not increase your calorie intake and follow a low sodium, low-fat, and low-carbohydrate diet. You do not need to cut out all of the foods you love, but concentrate on eating whole grain breads and cereals and lean sources of protein such as chicken and fish.* When you need a snack, look to vegetables—they are low in sugar and calories and provide the perfect food for “grazing.” ..."

      and the asterisk by fish has this footnote:

      "* The omega 3 fatty acids in fish and fish oil also have anti-inflammatory properties, which may help to reduce some of the discomfort in your joints and muscles."

      This is all from the section "Treating Lupus with Steroids" and you have to take it that they are saying fish and fish oils with steroids may well be beneficial.

      Hardly a slightly dodgy blessing from the manufacturers of fish oil products but from a main-stream top level medical facility.

    • Posted

      Thank you Eileen and everyone for your comments.  I will update you on my progress soon.
    • Posted

      Thank you. That is good to know. Tomorrow I see my opthamologist which is not the one that told me I couldn't use Omega-3. I'm going to ask him if he's okay if I start taking omega-3 again and if he says he's okay with it then I'm getting back on it.

  • Posted

    Go to the BSR website and look at the Guidelines for the Daignosis and Treatment for GCA.

    Just in case you have not read them..................

  • Posted

    Don't know if this will help you, but I sometimes feel there's something in my eye and later I find one of the little blood vessels has burst.  Artificial tears help.  It seems to happen more often the last year or so, since I've been on pred for quite a long time now, but I don't know if that's the issue, or part of the auto-immune inflammatory thing, or aging.

    • Posted

      Some omega 3 foods are blood thinners and that can cause blood vessels to break. For example I can't take fish oil but I can eat fish and I can tolerate freshly ground flax seeds. My usual place for broken blood vessels is my hands - probably because I'm handling stuff and thus putting pressure on areas. And I had an eye vessel burst A couple times too - filled my whole eyeball with red - I didn't want to leave the house!

    • Posted

      It can happen without any excess omega-3s! My husband gets it - can't imagine when HE last ate something rich in omega-3!

    • Posted

      I don't think it's omega 3s, especially as I haven't been eating much fish lately and I don't take an omega 3 supplement (except what's in h--- oil).  This morning I woke up and it looked like my eye was swimming in blood, just awful.  I don't feel anything, though.  Wore sunglasses outside.cooleek

    • Posted

      I have to avoid things like olives/olive oil.  Foods high in Vit E are blood thinners for me too. 

      I hope the sun ?? was Shining!  On the other hand it's kind of cool to be an eccentric senior😆

    • Posted

      I'm on Pradaxa - and use industrial quantities of oil by non-Italian standards. No-one has EVER said avoid olives! But then, they adjust your warfarin-type medication while you are on your usual diet so as long as you keep to that and don't then binge on something it doesn't matter. Pradaxa works in a different way and there is no need to adjust diet I am told.

      But looking it up - I can't find anything suggesting that olives/olive oil in particular are very high in vit E. About a quarter of the almonds I eat. And a portion of sweet potato or avocado have more. One tablespoon of olive oil has just 7% of your RDA of vit E. I use that - I doubt most people do.

    • Posted

      I have several food issues, and maybe the olive oil is incompatible when combined with something else in my diet.  Who knows!  I just know that I need to avoid it or the blood vessels in my hands start breaking. And I love olives!
    • Posted

      There's been a thing about olive oil here recently, many of the brands sold to us are not pure olive oil, only it doesn't say on the labels.  To check, we were told to put our olive oil into the fridge, and if it didn't solidify it was adulterated.  Well, not only didn't the "special" oil my husband had been buying from a specialty shop remain completely liquid, but the "organic" oil from the supermarket only became slightly cloudy, so neither of them are pure oilve oil, though one seems  better than the other.  This is very concerning not only because it is fraudulent, but what about people who have sensitivities or allergies to certain things?

    • Posted

      I find that fascinating because I put olive oil in the refrigerator and it always becomes cloudy and kind of thick and I thought that's just how it always reacted to refrigeration. Do you remember where you saw this so I can look up the article or the information of where you got it from?

    • Posted

      Actually this is what we were told on the radio, or tv.  It's something that was first in the news a few years ago so I thought it had been sorted, but apparently it's worse than ever.  But I do remember in the old days that we kept our oils in the fridge, but not the olive oil because you couldn't pour it if it had been in the fridge.  As nowadays I only buy coconut oil (always solid) butter (always refrigerated) and olive oil (never refrigerated) I had no idea my olive oil was no longer pure.  I understand olive oil is one of, if not the, most adulterated foods.  I think googling olive oil fraud or counterfeit olive oil would bring up some articles.

    • Posted

      Thanks for the info. I will. Of course I don't refrigerate my olive oil either.

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