Facial Pain/Pins & Needless and Flushing

Hi Karen, 

Thank you for your response, everything you have described is what i get - I am going demented with it all! My dentist has gave me a splint to wear at night also but even with that i am still suffering. I have went from a happy normally chatty person to being very withdrawn do to being in pain. 

If you dont mind me asking who diagnosed you with TN?

x

I've currently been off work.for three weeks between medication for the TN my shoukder and neck which one of my GP thinks is all.linked as I have arthritis in my neck, I'm currently taking

1 x 400mg 3 times a day

1 x 1000mg paracetamol 4 times a day

1 x 400mg Gabapentin 4 times a day which works but I still get break through with pain but bearable and doesn't last long and sometimes hot water bottle helps I can't do anything cold or eat anything cold just aggravates it. I don't mix with people either it's not nice people just don't understand how excruciatingly painful.it is what effect being in pain for long periods of time has on yiu yiu become withdrawn and depressed tired worn out but the depression and withdrawn I think comes from being so tired all of the time, I do feel for you it's not nice ebut loads of people get to see the neurologist I haven't they won't send me because the tablets work however I can't drive on them they make me sleepy so to go to work mi have to come of them to be able to drive x

I'm currently taking 50mg of amitriptyline just now in the evening for pain thats all i have been prescribed, mind you any other painkillers dont work for me. I do find if i talk for long periods of time, smile or chew that seems to make the pain worse and i get the flushing on my face/ear/neck my doctor and dentist have used the word "weird" with what keeps happening to me. (Doesn't make me feel any better) My GP thought this was an allergy. 

Yes i am in the UK Karen, you? x

Yeh I'm. In UK it's great isn't it when they use words like weird, eating on that's side for me is psinful when I'm in the middle of a flare up I don't think it's weird at all I think it's straightforward don't give up keep at them yOU have to x

I'll keep at them, this has been going on since January and i'm back and forward from the doctors like a yoyo. It doesnt help when you have kids to look after and a job to go too. 

Do you take headaches along with the TN? x

Yeh I do and many sleepless nightsmy last flare up from 3 weeks ago brought me to my knees at 3am I was sick nearly passed out and had a temperature with pain that's the worst I've ever experiencedit is difficult when you have children and work and GPs don't listen to you I do feel. For you I know where you are coming from Im 46 and started a degree I've just had to defer it until October so I can sort this out really messes up.your life I get funny sensation in my eye sometimes too x

I really can relate to everything you are saying, you have my sympathy. The reason i asked about the headaches as mine when they come boy do they let me know they are here and any movement hurts, even lying down!! Its like an electric current pulsing round my right ear down my neck along the back of my neck and ending up on my left ear. Any movement i have with this makes it pulse more and i have been in tears with the pain. I was off work last Monday (which i am lucky i work for my Dad) to attend the doctor as I just couldnt cope - ive to go back on the 9th of April. I too have a werid sensation with my eye ... it tingles and can also droop a little especially when i have the headache. 

I hope you get this sorted so you can carry on with your degree, i've just turned 38 and feel about 68!!

x

Yeh my GP thinks mine is all linked into my neck and shoulder. But the trigeminal ganglion sita above the ear, the trigeminal nerve splits into 3 One branches into the forehead, the second and third upper and lower jaw, so you will get all sorts of symptoms related to nerve pain, teeth ache jaw ache pain different types of pain all what you have have saidhope you get something sorted soon if it gets really bad do what I did go to A +E

I don't think its weird.I think it's horrific

Who said anything about weird, we know it's horrific we know it's excruciatingly painful no.one said an thing about weird, apart from yOU cam get a weird sensation in your face mine has settled down after 4 weeks of work after it brought me to.my knees passing out at 3am.now get a weird sensation in my face difficult to describe but still get pain break through but been able to reduce meds enough to go back to work. With the new drug driving laws

What did the doctor say?Did he give you a script for medicine?

Hi Maggie, 

I have the doctor on Thursday morning so i will let you know how i get on. The only medication i am taking is 50mg of amitriptyline at the moment which i am hoping that she will precribe something to help me during the day as the pain is constant. Im not moving until something is done as this is not helping my state of mind right now, i am so down all the time and in tears - which in turn doesnt help with the pain. x

You can call NHS direct, I did that and they said it's ok to up the dosage and you can to pain killers too.