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Facial Pain/Pins & Needless and Flushing

Posted , 5 users are following.

amanda53485
amanda53485

Hi, 

I have been suffering from pains and numbness on the right side of my face for a while now. I have attended the doctors on many occassions who at first thought this was due to migranes and put me on 10mg of amitriptyline to take in the evening. This helped but only for a few weeks and then i was back as the pains were still there along with the tingles/pins and needles feeling in my face (it feels like my face is numb and heavy) i am now upto 50mg of amitriptyline in the evening now and i am still feeling the pains and tingles. I have had alot of dental work done due to three years ago having electric shocks in my teeth this resulted in me losing all of my upper right teeth. 

What i'd like to know is this sounding like Trigeminal Neuralgia? I attended my dentist and she is now reffering me to the dental surgeon i also get major flushing on the right side of my face and ear - i feel like it is on fire it also appears on my back and chest. 

1 like, 47 replies

47 Replies

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  • karen25221
    karen25221 amanda53485

    Posted

    I never had an x ray didn't need one dentist x rayed my mouth and x rays will bring up bony mass, x rays won't bring up nerves to see nerves you wouls need MRI Scan from.my hospital. Experience and 6 years of Operating theatre. The thing is the more drugs you take the more likely you actor become immune if you are taking oromorph already not much more after that apart from surgery,
    • em_x
      em_x karen25221

      Posted

      hi!I didn't no that & the thought ov surgery fills me full ov fear & dread coz I recently red that sum people in u.s.a had surgery but that only lasted from 7-9mth so wot shud we do next duz any1 no? em x
    • karen25221
      karen25221 em_x

      Posted

      It depends doesn't it surgery if it last s 9 months or lasts2 years before re doing it is 2'years of being pain free and 2 years of not taking any meds you are taking a lot think my GP woukd have sent me to a neurologist by now if I was on oromorph I'm going to see a Rheumatologist and they have neurologist and orthopedics on there teams so hoping, but your diagnosis is only as good as your GP they can fob you of with drugs that's the easy option for them because everything else is time consuming x
    • em_x
      em_x karen25221

      Posted

      hi!I've ad an mri, been 2 c a neuralgist & I go 2 a pain clinic things av improved since I started goin 2 c these people so I'm not doing 2 bad em x
    • maggie80535
      maggie80535 em_x

      Posted

      Well Em good to hear that!i I have a referral to a pain clinic Can you let us know what happens there and how you have improved? Best Wishes
    • karen25221
      karen25221 em_x

      Posted

      It sounds like your getting sorted which is good god I would be unconscious if I was on what you were on.bless you am it amyltriptaline wipes me out on its own but I have other medical issues anyway B12 deficient, polyarthralgia but they think the TN is linked in with that x
    • em_x
      em_x maggie80535

      Posted

      hi!well I got leaflets wiv gentle jaw exercises & there's talk ov a mouthguard 4 nite time the doc i saw also mentioned relaxing tapes & taking time 2 completely relax,I am also 1 ov the biggest stress heads I no(I suffer panic attacks u c?)& we all no about soft foods or softer foods than b4,so far a mix ov all ov the above as given sum pain relief which makes a change eh?lol!Ihope iI've been a little helpful but not everything works 4 all ov us so it's just trial & error yeah? em x
    • em_x
      em_x karen25221

      Posted

      thank u I'm hoping my little things I do 2 try help me will b gud 4 a while,I've started 2day gud!!yipee!!lol! em x
    • maggie80535
      maggie80535 em_x

      Posted

      Wow Em. I am so pleased for you to make a start at the pain clinic. At last you got some help.I will go to the pain clinic if I keep getting breakthrough pain.  Best wishes.
    • em_x
      em_x maggie80535

      Posted

      thank u v.v.much,the pain clinic is a gud idea 2 any1 who thinks they can't cope wiv the pain,u get little ideas 2 help u de-stress which duz actually help lol! em x
  • maggie80535
    maggie80535 amanda53485

    Posted

    Hi Amanda.Did you ever have level I TN where It sits just on the eyebrow and hurts like hell when you wash your hair. When it happened  the doc showed me on the MRI where vein and nerve crossed,I feel for you having teeth out  in desperation to.find a diagnosis.Having teeth out is horrific in itself.Best wishes.
    • amanda53485
      amanda53485 maggie80535

      Posted

      Hi Maggie, when i first attended the doctor at the begining of February I was having a constant pain on my right eyebrow along with a twitchy eye the doctor thought that this was a migrane this has eased with taking amitriptlyne but i have other symptoms now. I was really upset at losing the teeth but i thought the problems were coming from an impacted wisdom tooth ... how wrong was I! 

      Do you suffer from TN? I've never heard of different levels of TN either this is all new to me. 

      I hope you are well? x

    • maggie80535
      maggie80535 amanda53485

      Posted

      Yes Amanda I sure suffer from TN.There are 3 stages of TN and now you are on Level 2..which is upper jaw and teeth and lips. I might just have level 2 under control with pregabalin 100mg night and 75mg twice daily because it cuts through when on 12 hours. I hear level 3 is the worst in the lower Jaw,but you may get remission before that. Pray for remission. I had remission when I broke my hip but this is not the way.TN doesn't like hospitals as didn't come with MRIs or A 5day stay for a lumbar op,or cataract op or heart investigation or a weeks stay for gastro.Maybe I'll sit in the hospital coffee shop.  Best wishes
    • RachisCool
      RachisCool maggie80535

      Posted

      Taking all those meds when holding down a full-time job is a no no. I shall gun for the op even if it doesn't last a lifetime and maybe have another.
    • maggie80535
      maggie80535 RachisCool

      Posted

      Hi RachisCool.I am 74 now and up till 2 years ago was having a good life .and no medications.Walking around the lake,going to craft classes and movies and coffees with friends,In 2013 I tripped on a rug and ended up in hospital for 6 weeks with a hip replacement and this triggered restless legs and heart arrythmia.,All this sent my TN away for 2 years.I forgot all about it.Last Nov it came back as Level 2.I am having so much trouble getting meds right I too will be having an op.Best wishes with this horrible disease. Love from Australia.
    • RachisCool
      RachisCool maggie80535

      Posted

      Hi Maggie,

      I visited the pain clinic today and the Doctor said I shouldn't have any invasive surgery as I am too young.... Strange I thought. I have alot of Sharp ear pain with my TN and he said that's highly unusual for a TN patients and is going to refer me to a ear noise and throat specialist. He also suggested I take more meds with my current meds and migraine pills. I've had a bad ear infection around the time when the TN began so he thinks my migraine and past ear infection has triggered TN. I must admit every monthly cycle kicks off TN so every three weeks I am hideously, horrendous pain. So let's see how it goes at the ENT clinic which no doubt the appointment will take forever on the NHS and my new drug cocktail. Se la vie.

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