Failed Urolift, 2 Failed Turp operations I give up
Posted , 8 users are following.
First I had a urolift from UHN in Toronto about 3 years ago. This was after sufferings from the usual urinary retention, trip to hospital, screaming pain... you guys know... but that failed after a year. Cost me $17000 dollars as I needed 6 sutures (they charge by the suture after 4).
So then a year ago, I had 1 turp at The Ottawa Hospital, that failed to address my complete blockage, and then a second one in May of last year. This after 6 months with a catheter and bag on me. Torture ! But after 2nd turp I could pee. But that didn't last long, now a year later, I can barely go. I expect any day to be totally blocked again. And my quality of life for 3 years now has been pretty bad. Constant worry about going, many trips to the hospital for urinary retention, and as I mentioned 6 months tethered to a bag. Self catheter did not work, could never get it through, no surprise since I've even had the hospital unable to install the catheter for a bag, and transferred me to another hospital to get that done.
My life has been hell. I don't sleep because for years now I've been up 4 or 5 times a night.
I guess I just don't get modern urology from paid to ohip based, all say their solution will work and yet to date... complete failure, and my continued suffering and lack of life quality as a result.
Don't believe what you are told. I know for some these things work, but I can't be alone in these techniques not working at all ....
1 like, 24 replies
kenneth1955 ScotsCanuck
Edited
I'm so sorry for what the doctors put you through.
I want to know what the hell was wrong with these doctors. With the Urolift you can read on the internet that a Urolift will not work if you are in retention. I guess it worked to a point. If it stopped it was not the prostate causing your problems. It had to be your bladder.
Did the same doctor do the Turps on you. He sure may money. The Turps should have opened you up where you can pee. There should not have been any blockage at the bladder neck. When the urologist can not pin point the problem they assume it is the prostate but with 3 procedures it is not the prostate. You should have not much left. Maybe you should have come to the US to check out a doctor
I'm sorry that you have been going through this . I had a Urolift done 7 years ago I'm still wide open.
I feel that you were giving a run around by these doctors. They did you wrong. What are you doing now are you looking into anything thing else. Did they tell you what the problem was it was not your prostate so you should never give up. There is a doctor that could help you out there. With out bleeding you dry
I was just thinking maybe the problem was your bladder neck. Maybe the procedure you needed was a BNI and they should have left your prostate alone.
God bless and I hope you can get some relief some day.....Ken
ScotsCanuck kenneth1955
Posted
Thank you for the comments. The turp uroligist is different from the 'for profit' guy in Toronto. We have a kind of mixed health system now where some procedures are available only to the rich (or foolish in my case). The turp guy is guv ins so that didn't cost me anything.
They definitely said my prostate was very large I think 75 cm ? Oh they did give me retro ejac for free thank you ! grrrr
I've written to the doctor asking for an appt, but with covid god knows when that will be. Back on flomax which is at least letting me dribble a bit out for now.
Its this loss of lifestyle I don't think they get when you can't pee. Everything in your life begins to revolve around the bathroom.
Oh well we are in lock down for now, so not going anywhere....
kenneth1955 ScotsCanuck
Posted
I'm sorry for what you are going through. I don't know what to say. One Turp should have fix the problem That is one thing a Turp will do Retro
Did you have a medium lobe. If the problem was the prostate it should have been talking can of. Maybe you have that type of prostate that continues to grow.
I hope someone can get this working for you. I know how you feel Retro does suck was on Flomax before I had the Urolift
Take care and try to relax.....Ken
ScotsCanuck kenneth1955
Posted
The thing about Retrograde Ejactulation is I've read how some doctors in the U.S. are skilled enough, that during a Turp they don't hack at that part. And, I was told by 2 urologists the 'good news' was that my bladder neck was fine. So why did they cut away there. Because that is in their urologist instructions for that operation which they blindly follow. And they will tell you things like 'The sensation is the same' when they have not a clue themselves what it feels like. For me, its ruined everything about sex. An orgasm is now a convulsive heaving painful event , something to be avoided !
On the turp side of things, I'm back on Flowmax and every day peeing is always a struggle. But I'm not blocked yet so I am thankful for that. Wish I had tried the Rezum thing, but after laying out $17,000 for a failed urolift I just couldnt bring myself to hand the urologist another $8000. dollars.
kenneth1955 ScotsCanuck
Posted
Yes in the US and in the UK there are procedures that they can save the ejaculation. You have to save the 1 cm of the tissue around the Verumontanum to save your ejaculation. I still would like to know how your Urolift failed. If the prostate was the problem and he opened you up right. It should have worked.
I had mine almost 8 years ago. 4 clips and I'm still open. I would never have anything else. The only thing I can think of is you had a median lobe and is was not pulled to one side to get it out of the way of the bladder neck.
To me this makes no sense. You had these procedure to fix the problem and you are still on medication. Seam like a waste of money
The sensation is not the same for all men. You should have told him to leave the bladder neck alone. This is your right
ScotsCanuck kenneth1955
Posted
No rights in socialized medicine. Doctors especially specialists are greek gods ! The clinic I go to is a factory with steps timed to the minute. Urolift held great promise, I was hoping, but with 8 screws/clips something let loose to block me again. Always told bladder neck etc.. was all good. Urologist dismisses all these new fangled procedures as not working long term in his words.
kenneth1955 ScotsCanuck
Posted
I know that Canada has it own brand of doctors. I hate to say this but are you sure that the doctor did not do something so it would fail so he would have to do what he wanted to do.
If you had 8 clips this tells me that you had a large prostate and you must have had a median lobe that he did not address. Urolift came up with a procedure for that reason. It is called a Midlift. What done is done so you can't go back.
Doctors do not care about your sex life. The reason more do not do the Ejaculation Sparing Turps are because they take more time and time is money
I hope you find some relief....God Bless
ScotsCanuck kenneth1955
Posted
Just to clarify, the urologist who did my urolift was in Toronto at a 'for profit' clinic. Health Canada is growing a 2 tier system in our medical system, so that those who can afford to pay, can jump ahead of the 'common' folk. That is why the urolift cost me $17,000 dollars. I think even for your system, that is out of line. The urologist who did my turp is in another city and is the top urologist in the city. As my GP described him the 'main guy'.
As you say what is done is done. I keep searching for some doctor who figures out how to reverse this. He/She will make a fortune !!!!!!! The lineups will be several states long !!!! lol
kenneth1955 ScotsCanuck
Posted
I thought Canada was so ahead of them self. It is sad that it cost you that much for the Urolift. I still would like to know what went wrong. Why could he not but a couple more clips in to open you up.
My insurance covered my procedure. All I had to pay for the the surgery center. That was $200.
I do not know if you want to try this but they have had good luck with men using Sudafed to get there ejaculation back but I do not know if it will work after 2 Turps
Take it easy
hank1953 ScotsCanuck
Edited
I think you are a perfect candidate for suprapubic catheter with a valve. Hank
danny08232 ScotsCanuck
Edited
I'm sorry to hear you are going through this. I had the urolift two weeks ago and cannot pee . I'm fearing I maybe travelling down your road. I'm self cathetering. My next dr. appt. is Tuesday and fully expecting a bullsh*t diagnosis. BTW, doc put in 5 clips.
ScotsCanuck danny08232
Posted
Hopefully not re: bullsh*t diagnosis.The urolift was great for me , it just didn't last. But the year I had was great. No retrograde, I could pee ok, it was a super year !
Here's hoping your experience is even better !
kenneth1955 ScotsCanuck
Posted
Scot & Danny
The Urolift does work if it is done right. I had mine when it first came out. It was only out 6 weeks when I had mine done 8 years ago. I was my doctor's 10 patients. I had 4 clips. 2 on top and 2 on the bottom. After 8 years I am still open and I am not on any medication. I went off everything before the procedure.
I feel doctors do not fellow things well. I asked for a catheter after the procedure because when I was doing research before the procedure I found out that right after you ,ay be able to pee but when you go home you are blocked because your prostate will be swollen from the procedure. Then you end up going to the ER to have a catheter put in. I don't know about you but I would rather have one put in when I'm out then when I'm awake.
Most of the time you can't pee is that the prostate is swollen. Dan I hope that is your problem. Another thing could be that the doctor did not take care of a median lobe if you had one. Give yourself a brake. Take a hot bath for about 20 minutes this will relax the groin area and help you if you are inflamed.
Take care and god bless....Ken
ScotsCanuck danny08232
Posted
Hey Danny
On the catheter business, I had one put in after the urolift (8 clips) op. I went back to the hotel and spent the night really sick, nausea etc... Called the doctor the next day, and he said maybe I was allergic to the catheter material. So I pulled it out (they had instructed me how to, since my GP refused to even remove the catheter or be involved in any way). Within an hour I felt great and was peeing. So that was day 2. So again, other than it not lasting I thought the urolift was great !
ScotsCanuck
Posted
September 2021 Update.
year and a half after my second turp, back to barely able to go, back on Flowmax, back to living all about urination (worry, concern etc...).
Had a cystoscopy today with urologist. Conclusion. My prostate is large, it has settled back onto the urethrae and recommendation: a 3rd turp. Heard a new term today, Two Phased Turp.
hmmmm
Don't know how long I have to wait for it, will find that out soon. They tried to drain my bladder during the procedure, but the urologist gave up after unsuccessfully trying to push a catheter through.
So here I go again. I know Doctor means well , but yikes I've been at this over 5 years now from Urolifts, mutiple turps and well there you go.