Failed Urolift, 2 Failed Turp operations I give up
Posted , 8 users are following.
First I had a urolift from UHN in Toronto about 3 years ago. This was after sufferings from the usual urinary retention, trip to hospital, screaming pain... you guys know... but that failed after a year. Cost me $17000 dollars as I needed 6 sutures (they charge by the suture after 4).
So then a year ago, I had 1 turp at The Ottawa Hospital, that failed to address my complete blockage, and then a second one in May of last year. This after 6 months with a catheter and bag on me. Torture ! But after 2nd turp I could pee. But that didn't last long, now a year later, I can barely go. I expect any day to be totally blocked again. And my quality of life for 3 years now has been pretty bad. Constant worry about going, many trips to the hospital for urinary retention, and as I mentioned 6 months tethered to a bag. Self catheter did not work, could never get it through, no surprise since I've even had the hospital unable to install the catheter for a bag, and transferred me to another hospital to get that done.
My life has been hell. I don't sleep because for years now I've been up 4 or 5 times a night.
I guess I just don't get modern urology from paid to ohip based, all say their solution will work and yet to date... complete failure, and my continued suffering and lack of life quality as a result.
Don't believe what you are told. I know for some these things work, but I can't be alone in these techniques not working at all ....
1 like, 24 replies
ScotsCanuck
Posted
As I am faced with a pending 3rd Turp soon, I began to recall my last recovery and remembered something everyone else thinking about a Turp should know.
After the last Turp I had a huge bend in my penis. Like I had a new elbow. It was horrible.
So after the wife noted this in our first 'fun night' I got a vacuum pump and began pumping to straighten it. I had found references to this on the net, of course nothing from the doctor on this.
Luckily after about a month, it was straight again.
Folks should know this though... it is not one of the 'advertised' side effects of a Turp.
Still hugely angy about the retrograde thing. I think on my next visit, I will suggest to the urologist that if there is an operation to correct this, what a business op that would be. Thousands of guys would just love to have this ability back, and would pay. I know I would !!!!!
Bringo ScotsCanuck
Edited
sounds terrible Scotscanuk. is there nothing a dr has suggested that might help. surely someone must be able.
kenneth1955 Bringo
Edited
It is terrible what Scotscanuk is going through but he has had 2 Turps and they cut to much of the prostate tissue away. He has had the connection cut and once this is done you will never have a ejaculation. I still think he has a median lobe that is causing the problem. If that is not it there is something wrong with the bladder.
If you do have to have a Turp which is the last resort procedure at least find a doctor that will do a Ejaculation Sparing Turp. This is when they save 1 to 2 cm of the tissue around the verumontanum to save the ejaculation. It has worked with 100's of men you just have to fined a doctor that will do it. It also depends on how good your doctor is.
Most do not like to do it because they have to take there time and a lot of them just want to go in and cut away. They do not care about your sex life. .
Bringo kenneth1955
Edited
Thanks Ken.
I may have to do something... But.... i already have erectile problems and use cialis. Plus i have an inguinal hernia. From what i can make out the nhs would want to do both at once (money and time saving).... And chances are it will be turp in that scenario.
if i had a choice what would your recommendations be for prostate... if anything?
at present i have reasonable flow but i have to go frequently.
i do have a split stream but have had from late 20s or early 30s.
carl29026 ScotsCanuck
Edited
ScotsCanuck, I have followed your travails. As a precursor for my future. The median lobe is our nemesis, my uro will not even speak eye to eye about it. He has advised Rezum, END OF discussion. My issue is the median lobe acts as a 'ball-valve' covering the bladder neck. My research shows significant improvement with monopolar or bipolar Turp of median lobe is one of the answers. The prevalence of severe IPP is seen 42% of population of men. Maybe that is why so many are UNHAPPY with results. Another acronym I see a lot is the IPSS scale of OBSTRUCTIVE SCALE. For those of us with large obstructive median lobe and small prostate for minimally invasive surgery looks like: HOLEP; Greenlight laser' PVP(Greenlight difficult for laser vaporization removal of large tissue with enlarged median lobe)AND Bipolar Turp. All can provide adequate relief of LUTS and long term effectiveness. Footnote: good luck finding specialized uro in these procedures and practice in your area and your health plan.
ScotsCanuck carl29026
Posted
Sorry to hear median lobe is part of your issue. I was always told from the beginning mine was not an issue. And those procedures you describe are not available where I live in Canada, just a Turp. I can travel to get Rezum, but it seems too late now for that. I would have to pay for that as well $6000 (already paid $17000 for failed urolift)
My understanding is that with some urologists the Retrograde result is a certainty due to their procedure. My urologist told me before the operation 'I would have Retro...' no question. I can only surmise that as part of their cutting and hacking they don't look to not have this effect period.
I hate this result of course. It has ruined my desire for sex, since the ending as I've described is now just a painful convulsion and thus pointless to purse.
Here is the result of my last cysto, preparing me for my 3rd turp"
Cystoscopy
Date/Time: 17/9/2021 4:59 PM
Performed by:
Authorized by:
Procedure - Bladder Cystoscopy:
Procedure details: cystoscopy
Procedure: Cystoscopy,flow rate pvr
Indication: This patient had a previous transurethral prostate resection due to a very large prostate that had failed a UroLift procedure. He has had a transient improvement but then a subsequent deterioration his overall symptoms and is scheduled today for cystoscopy for clarification of his symptoms.
Description: Under the appropriate local anesthesia with legs in lithotomy a flexible scope was advanced down the urethra. The apex was somewhat torturous and was difficult to find the true passage of the urethra. The prosthetic fossa was then entered and there was some significant apical residual tissue and some recurrent tissue both the bladder neck and also the left prostatic fossa. The bladder neck appeared overall patulous however. The bladder was entered showing moderate trabeculation and a residual urine corresponding to the amount on the ultrasound noted below. No cancer was seen in his bladder. No other pathology was seen
Impression: Recurrent BPH which is obstructive in nature. This patient will therefore require a secondary transurethral prostate resection moving forward we discussed this today in detail.
kenneth1955 ScotsCanuck
Edited
There is nothing I can say but I feel sorry for what you are going through
carl29026 ScotsCanuck
Posted
#ScotsCanuck, we all have our own private little hell to deal with. Sorry, for yours. At least your uro was professional enough to give you: written indication and procedure performed. I did not even get the courtesy. Mine only verbalizes. The Bipolar Turp shows promise as being precise and adequate relief (? to each his own) of LUTS symptoms and long term. The other two, I am looking at Greenlight Transurethral Resection of OML and HoLEP. I always thought Canada had better health insurance for its seniors? My issue here will be does Medicare cover? We can only make the best decisions and pray for best results. AND to match the procedure with my anatomy. Take care, buddy
ScotsCanuck carl29026
Edited
HI Carl,
I get that feeling about everyone's 'hell' on this site. Story after story of suffering and urology failed promises.
We have a good health care system for most things. I could write for days on this subject, but it is something most canadians hold dear. But the doctors/businesses are pushing for a 2nd 'pay' tier for profit, much like you in the U.S. have. My urolift was an example. In the U.S. you would pay:
ServiceCost (US$)/cycleReference
UroLift® procedure and related$6,230
Mine was $17000 because I had extra clips. 4 would have been $8000.
This is not covered by our health insurance. Funny it is approved, but not covered. Allows clinics to profit , while still being in the guv health care system for their other efforts. Best of both worlds !
Isn't it odd that with all these treatment options, there isn't a consistent and efficient model to address this extremely common issue. Imagine having a heart attack and the doctor has to wake you to discuss the many options available to you. Why is the BPH treatment like this ?
It just seems to not make any sense the way the urology industry is around treatment of BPH. I chose the word industry because that is how it appears to those of us suffering from BPH, and urine retention etc.... We are somehow to spend hours going through sites and articles for over 12 at least treatment options, and then surrender to the doctor you choose and hope for the best.
Well wishing everyone on this site well....