Fainting

Posted , 12 users are following.

Hi again 

Does anyone else have the symptom of feeling faint with their CFS ? And have you actually fainting ?

I constantly have a faint type feeling and I’m worried one day I’m going to faint . 

Any tips to help with this symptom ?

Many thanks again

Cath 

0 likes, 27 replies

27 Replies

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  • Posted

    Its still may be dysautonomia. My blood pressure isnt way off but im taking midodrine for POTS anyway. Did you teat your blood pressure when lying then standing? If it fluctuates then that may be the reason. I dont have the dizziness too bad. Only when bending over then back up sometimes. My main symptom is heart pain if i stand too long or do too much so i follow the remedies for POTS and it helps! High salt, tight leggings or hose, leg lifts when laying down. I elevate my leg or legs even when standing , lol, I'll raise it up on the counter while fixing food. It helps! Good luck!

    • Posted

      I get quite a lot of chest pain too . But I haven’t had my bp tested from sitting to standing though . 

      I recently had a 24 heart monitor fitted and currently waiting for the results from that . 

    • Posted

      I had a hard time accepting the diagnosis POTS becuz the usual symptoms werent that bad. The difference in my bps werent terrible. My bp always runs a little low like 110ish. But i do get the tachycardia if i stand too long. I have to lay down alot. My echocardiograms were normal as i thought for sure the heart pain was from the Ebv or cfs. So i thru in the towel and started taking the midodrine (still a lower dose of 5mgs opposed to 10). Whenever my heart start to hurt i do leg lifts as they say blood pools in your thighs and abdomen, and it really does help.
  • Posted

    Hi Cath, 

    Feeling faint is my number one symptom as is visual disturbances (blurred, tunnel vision, sensitivity to light, trouble focusing).   When feeling faint I make sure I've eaten enough food, especially carbohydrates.  I have a history of eating disorders so eating enough and keeping my blood sugar stable is a challenge as my hunger signals appear to be suppressed.  I also check to see if I've been hydrating myself enough.   I don't advise drinking a huge amount of water though as it can make things worse in my experience.  A few years ago I had an awful time feeling dizzy and blacking out every time I stood up, and feeling faint daily.  I remember a bit of sea salt added to my water helped.  

    To be honest I don't think it's so simple as keeping hydrated and stabling blood sugar.  Any hidden infections or illness can cause these symptoms, as can severe anxiety, which I also have from time to time.

    Wish you the best and I hope you find some answers soon! 

    • Posted

      Hi

      That would make sense about the salt because too much water can leave your sodium levels low so always good to make sure you have some salt.

  • Posted

    Hi Cath. I suffer with feeling faint which makes my anxiety worsen. Sorry I have no solution but rest rest rest.
    • Posted

      Probably the only solution .

      Thanks for your reply ❤️

  • Posted

    Hi Cath.

    Sympathies. Fainting or feeling faint, alas, is all too common with M.E. I fainted at a urinal once in Germany and collapsed backwards my head spinning. I hit the floor and came to with vague distant sounds of worried foreign blokes looking down on me. Another time on a plane I had to spend the entire journey on the floor in the recovery position. Part of the package I'm afraid - though embarrassing and unpleasant.

    Postural hypotension is a common CFS symptom - you get up from a bed or chair, your blood pressure doesn't adapt, or drops suddenly, and you feel faint, or actually do faint. That's what happened to me in the urinal I think.

    Many of us report constant nausea, which can be drug-associated, stomach-associated or neurological in origin. Its important to work out the cause. If its drugs then maybe your doc change provide an alternative without the side-effects. If its neurological there is nothing you can do, but at least you know its just your CFS playing tricks on you, nothing dangerous. If it's due to chronic excess stomach acid or allergies to certain foods it can cause long term damage like ulcers and if untreated for many years can lead to cancer. I am on Omeprazole for the rest of my life due to reflux oesophagitis. I also had a duodenal ulcer. However, the good side to excess acid as a cause of nausea is that it can at least be treated.

    Prayers,

    Philip

    Labyrinthitis is a condition where a viral infection - like the common cold - affects the inner ear. You feel like you are falling head over heels in mid air whenever you turn or c**k your head quickly. You can get tablets for that from your doc, and it goes away when the infection clears up.

  • Posted

    I also feel faint a lot but have not actually fainted. A therapist told me to clench and unclench my fists several times if walking outside and feeling faint as it's meant to help pump the blood round your body better. If I stand in the one position for too long I always feel faint as if all the blood has gathered round my ankles and I'm going to pass out. If I'm like this and at home I lie down with my feet raised above my head. I also eat smaller meals and snacks throughout the day to try and stabilise my blood sugar levels. Things like bananas and oatcakes make good snacks. Hope you manage to get things under control!

     

    • Posted

      That’s a good tip . I’ll have to try that .

      I have to try and convince myself I won’t faint over and over until i know I’m in a safe place just incase I do .

      Feeling like this is making me feel like I can’t go out as much as I used to as I constantly feel anxious about it .

      Starting to feel extremely isolated. 

    • Posted

      I do this too! They recommend it for POTS patients. And crossing your legs if you have to stand- looks like you have to potty. Lol. Also just folding your arms like you're bored. Wish i could attach the literature they have me at cardiologist. Lots of leg exercises while laying down.

    • Posted

      I used to feel like that too and had CBT to try and help my CFS at one point. I mentioned my feelings of anxiety about fainting when out to my therapist who made me realise that the chance of me actually fainting when out was really slim as I've never actually physically fainted just felt like I was going to faint. Even if the worst did happen and you fainted, realistically all that would happen is that you would lose consciousness and fall down and most likely someone would be passing by who would help you and you'd be fine. I find listening to guided meditations really helpful for anxiety or you could try breathing exercises. Don't let your fears rule your life. Remember a thought is not a fact!!! 

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