Posted , 9 users are following.
Hi
Does anyone else get paniky and anxious when going out of their familar surroundings? After being diagnosed in November with large PE in both lungs I have been trying to go out and about a little and recently been wanting to go further than the village we live in, however once we get out of familar surroundings I can feel myself getting anxious and just wanting to get home.
1 like, 21 replies
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Cocochanel2910 debby01
Posted
Hi Debbie, yes I do too, and like you I had massive clots in both lungs ! It's scary the thought of it happening again! My main problem is the breathlessness and chronic fatigue .. it's so depressing. I hope you get better with time .. mine was a year ago!!
debby01 Cocochanel2910
Posted
Hi Cocohanel2910
I get the feelings of chest heaviness, a bit breathless, rapid heartbeats and just feel horrible, it is really frustrating.
I hope you are get better too, they say it can take ages to feel 'normal!'
Cocochanel2910 debby01
Posted
I feel as though I'm going to be like this forever .. my life has changed dramatically.. it doesn't matter how much rest I get I still feel tired and out of breath even after short walks ...
debby01 Cocochanel2910
Posted
I totally understand how you feel. I used to love going out walking and cycling, now I hardly go out and feel like I am never going to get back to something how I used to be.
I have another CT scan this Friday to see if the clots have dispersed at all and I am getting pretty nervous about it, I want it to be good news but the way I feel at times makes me think otherwise.
Just have to try and keep positive
Cocochanel2910 debby01
Posted
Cocochanel2910
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hi Debbie I hope they've gone .. mine have so I can't understand why I'm like this ... fingers crossed for you and all the people like us ..
debby01 Cocochanel2910
Posted
Hi Cocochanel
Thank you
I am so happy for you that your clots have gone, it could be because your body has gone through a major trauma and it does take time to heal both physically and emotionally. I am sure that given time you will be back to your normal self.
Take care x
Sway Cocochanel2910
Posted
debby01 Sway
Posted
lizzie70061 debby01
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debby01 lizzie70061
Posted
I was diagnosed in November but had ben feeling bad for about a month before and was getting worse, kept getting told it was viral or anticbacterial before finally being diagnosed.
Now I get feelings of rapid heartbeats, a little breathlessness, and generally felling horrible, this also comes on when I am at home and for no apparent reason
Sway debby01
Posted
Windy8000 debby01
Posted
ann55375 debby01
Posted
My bilateral p.e's were three years ago. Been on warfarin since then but have developed anxiety too about things which didnt bother me before. I am considering apixaban as dr says i wont need inr checks. I am looking for anyone with experience.
lizzie70061 ann55375
Posted
Windy8000 ann55375
Posted
My rivaroxaban there are no one check ups either but I still worry because I have had bariatric surgery and don't absorb medications normally. That's why I have to take 3 vitamins a day 7calcium pills, b-12 shots, 100,000 units of vit D a week. Yet the Dr is sure the 1 20 mg pill is absorbing correctly. I don't absorb vitamins from my foods I eat just the calories. My iron is low.
Forgive me Doc if I just don't trust you.
lizzie70061 Windy8000
Posted
I agree with you. it is so hard to trust someone when your body and instinct is telling you something else. Enjoy your vacation 🌴. x
ann55375 Windy8000
Posted
i have read a lot of bad reports about these new thinners and at present am of a mind to stay on warfarin. You are right, dont trust drs as they have messed me up too much over trying out meds and making me worse
debby01 ann55375
Posted
I am Apixaban twice a day and have been since being diagnosed in November.
It seems to be working well and I have not had any side effects.
I am suffering with anxiety too and it is difficult when your body is going through these problems and trying to cope and recover.
Take care x
ann55375 debby01
Posted