Familar Surroundings

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Hi

Does anyone else get paniky and anxious when going out of their familar surroundings? After being diagnosed in November with large PE in both lungs I have been trying to go out and about a little and recently been wanting to go further than the village we live in, however once we get out of familar surroundings I can feel myself getting anxious and just wanting to get home.

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  • Posted

    Hi Debbie, yes I do too, and like you I had massive clots in both lungs ! It's scary the thought of it happening again! My main problem is the breathlessness and chronic fatigue .. it's so depressing. I hope you get better with time .. mine was a year ago!!

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    • Posted

      Hi Cocohanel2910

      I get the feelings of chest heaviness, a bit breathless, rapid heartbeats and just feel horrible, it is really frustrating.

      I hope you are get better too, they say it can take ages to feel 'normal!'

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    • Posted

      I feel as though I'm going to be like this forever .. my life has changed dramatically.. it doesn't matter how much rest I get I still feel tired and out of breath even after short walks ... 

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    • Posted

      I totally understand how you feel. I used to love going out walking and cycling, now I hardly go out and feel like I am never going to get back to something how I used to be.

      I have another CT scan this Friday to see if the clots have dispersed at all and I am getting pretty nervous about it, I want it to be good news but the way I feel at times makes me think otherwise.

      Just have to try and keep positive smile

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    • Posted

      hi Debbie I hope they've gone .. mine have so I can't understand why I'm like this ... fingers crossed for you and all the people like us ..

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    • Posted

      Hi Cocochanel

      Thank you smile

      I am so happy for you that your clots have gone, it could be because your body has gone through a major trauma and it does take time to heal both physically and emotionally. I am sure that given time you will be back to your normal self.

      Take care x

       

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  • Posted

    Hi Debbie. yes me too. Catch the bus instead of walking. Scared I might get ill somewhere. Tend not to go out if in doubt. Frustrated. Mine was diagnosed in august but had felt bad for a few months before. Bad pain either side of back when walking after just short distance and breathless. where is your pain or discomfort.? x
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    • Posted

      Hi Lizzie

      I was diagnosed in November but had ben feeling bad for about a month before and was getting worse, kept getting told it was viral or anticbacterial before finally being diagnosed.

      Now I get feelings of rapid heartbeats, a little breathlessness, and generally felling horrible, this also comes on when I am at home and for no apparent reason

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  • Posted

    I get that way sometimes. I dont live that far from a hospital so when i go somwhere where there is not one i get anxious.
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  • Posted

    I am planning a vacation with the boyfriend and a couple friends next month and am a little cautious being so far from home but remembering to pack all my meds and inhalers and I know I c go to any dr any hospital because my insurance is awesome helps.
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  • Posted

    My bilateral p.e's were three years ago. Been on warfarin since then but have developed anxiety too about things which didnt bother me before.  I am considering apixaban as dr says i wont need inr checks.  I am looking for anyone with experience.

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    • Posted

      hi Ann. I chose Apixaban when the doctors said I would not have to attend check ups regularly. It has worked well for me. Been on it for 7 months now.
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    • Posted

      My rivaroxaban there are no one check ups either but I still worry because I have had bariatric surgery and don't absorb medications normally. That's why I have to take 3 vitamins a day 7calcium pills, b-12 shots, 100,000 units of vit D a week. Yet the Dr is sure the 1 20 mg pill is absorbing correctly. I don't absorb vitamins from my foods I eat just the calories. My iron is low.

      Forgive me Doc if I just don't trust you.

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    • Posted

      I agree with you. it is so hard to trust someone when your body and instinct is telling you something else. Enjoy your vacation 🌴. x

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    • Posted

      Thanks for your input.

      i have read a lot of bad reports about these new thinners and at present am of a mind to stay on warfarin. You are right, dont trust drs as they have messed me up too much over trying out meds and making me worse

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    • Posted

      Hi Ann

      I am Apixaban twice a day and have been since being diagnosed in November.

      It seems to be working well and I have not had any side effects.

      I am suffering with anxiety too and it is difficult when your body is going through these problems and trying to cope and recover.

      Take care x

       

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    • Posted

      Well thats decision made, started apixaban last week. See how it goes. Meantime caught a cold virus so no energy. Is it the med change or the virus making me feel so tired out.  Th anxiety is still,there so i really agree with you it is difficult to cope when going through all this.  
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