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I may have asked this before but....
I have had B for years and been through varying phases with it. Currently no infection for 3 months..a miracle.
In the last 4/5 years of the condition I have experienced varying degrees of fatigue when infections take hold. The episodes go from debilitating where I have little or no energy, constant nausea and any kind of physical activity brings on a consequence to low level fatigue whereby you know its there but can generally get on.
I have dealt with my consultant across a couple of years who has essentially given up and was about to press the long term antibiotics button. I have a referral for The Royal Brompton in London. The appointments take about 4 months and I suspect that I may be well by the time it arrives.
My question is to all of you.
If you experience fatigue to whatever degree
a) is it recognised by medics as a apart of your condition? Or ignored
b) has anyone one been offered any treatment /advice on mamagement or been referred to a specialist?
Last year with constant infections and fatigue I became realy mentally low with it all - a round of counselling helped but I would like to know about your specific experiences with this issue. I definitly notice the fatigue in correlation to my B health.
Thank you in advance to anyone that is able to reply.
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