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Feel Like No One Believes Me :(

Posted , 43 users are following.

wearykitty
wearykitty

Anyone else feel dizzy/off-balance every day? I don't think my doctor(s) believe me when I tell them that I feel this way (almost) every day....I've not actually fallen down, but it feels as though I'm swaying even when I'm standing (or sitting) still....in fact, it's almost worse when I'm standing/sitting still....I was talking to someone in the hallway at work yesterday and thought I was going to fall over (although I don't think anyone can actually see me swaying)....I also feel a weird "internal" shaking in my legs sometimes...I've had a ridiculous number of medical tests, and they all came back normal....my doctors have suggested that it's anxiety, but I'm wondering if it might be perimenopause? My periods have been very erratic for the last eighteen months or so (which is about when all of this began happening)....coincidence? Looking for some advice from anyone who has these physical symptoms....how do you get through the days? I'm so frustrated...I just want my life back!!!

6 likes, 231 replies

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  • caroline53261
    caroline53261 wearykitty

    Posted

    hi im 38 years old and i have been surrering from the very same symtoms for over 10 years now every single day is a struggle for me i get up in the morning and think yes this is the day im guna be normal 10 mins in and it all stars the swaying feeling as though im going to pass out all the time the tirdness i have had this since my son was 5 years old and i have missed out on so much with him he is 15 now and he and my husband are my rocks. going out of my front dorr is such a struggle if i have a doctors appointment at gets soo badmy face gets realy hot like a flush i stand still it gets worse i sit still is gets worse so i have to stand up and walk around before i fall down im on edge all the time i have had mri scans blood tests everything you can think of i thought i was down to my periods and hormonal if i have a period days before i carnt get out of bed it is that bad but only to be told i have polycystic ovaries but it didnt show in my blood tests i have been to the hospital and they said they think it is hormonal. but the doctors say i am too young and tryed my blood and said i wasnt .... im like tell my body this please all i want is help and when the doctor told me there isnt anything left to try thats is when my depression started and anxiety  please can anyone help me i want my life back and inderpendence i want to be able to open my front door and walk to the shop or the park im not asking for much i just want to live thank you soo much for taking the time out to read this 
    • Fudgeybear1
      Fudgeybear1 caroline53261

      Posted

      Hi Caroline,I m so sorry you are suffering.I could have written your post,I have the same nightmare life as you,Mine started when my daughter was 6 and she is twelve now!!! I wish I had the answer for you.It has killed my self confidence,I can just about to manage to walk my dog up and down the street,I didn't have anxiety,but as the years have gone by I now have severe anxiety,not surprising,I challenge anyone to live with feeling like we do and not be anxious.I do agree with the lady who talks about massaging your muscles,my neck and shoulders hurt a lot and I think it's because I m  tensing my neck I think it's a habit I have formed to try and balance myself.i m sorry I have no answers,but I just wanted to let you know you re not alone take care xx

       

    • jayneejay
      jayneejay Fudgeybear1

      Posted

      Hi fudgey

      I also relate to you and no self confidence. I am age 51and almost 2 years post meno after a ten year natural peri ( no hrt)

      I was having severe hot flushes 20 plus a day in this intense spanish summer heat and reoccurring shingles after 3 slipped disks.

      My doc suggested escitalopram low dose for hot flushes - its a stronger newer Citalopram ( anti depressant) i am not given it for depression but to relax body - its apparently the new HRT - low dose - i wanted to share its stopped my awful intense flush waves - and my anxiety - i am driving here - there - everywhere - feel so much better - and i was only given it for flushes 😃 i was given 10mg a day - but i split them to get gently in body - so took 5mg a day - and just that small amount suited me and had made me get my life back

      I also take vits - a mega B 100 complex is very good -

      Good luck hun

      Jay x

    • caroline53261
      caroline53261 Fudgeybear1

      Posted

      thank you soo much fudgeybear im just glad i am not alone it gets annoying when people think you are making it up i remember my nan once said to me ohh just walk it off .................i have lost a my friends spending time with them i have not been out alone for 10 years now i have no independence at all and i worry also what happen if my hubby is no longer her i dont even want to think of being on my own but thank you soo much it has lifted me knowing i am not alone x
    • caroline53261
      caroline53261 jayneejay

      Posted

      hi jayneejay i also take citalopram have done for years now i take 20mg a day and they told me is was the strongest dose but now knowing there is a new type ill be going to see the doc again thank you 
    • brendababy
      brendababy jayneejay

      Posted

      Hi jayneejay, I've been in a terrible state for months now. The dizziness/off balance has got worse and it's causing terrible anxiety. I've been crying hysterically this morning since I woke up its the same every day I'm worried I'm going to be left like this. I've had normal ct scan of head & neck, doctors telling me it's panic that's causing it but I know my hormones are all over the place.

      Gyno gave me HRT to try again, this is the 3rd attempt, I told him that FSH levels were high but last bloods showed estrogen still in normal range, think my problem maybe with progesterin. On 9th day now of HRT & I feel worse, first few day of taking I had heavy bleeding that's subsided now but I don't know how much more I can take of this. Hate being on my own, scared of everything including medication

      I would appreciate any hope you can give me

      Thanks

      Brenda x

    • jayneejay
      jayneejay caroline53261

      Posted

      Hi Caroline 

      its not brand new - its a twice as strong version of Citalopram and its 

      Escitalopram .. 

      Regards 

      jay x

    • jayneejay
      jayneejay brendababy

      Posted

      Hi brenda

      Sorry your suffering . I didnt take HRT hun - its bound to confuse your existing hormones - emotions etc.

      your boosting your declining ones.

      only HRT i use is Ovestinon vag Ovules by Gyno to soothe vag and prevent dryness - they are wonderful

      I cant and wont take HRT hun .

      Jay x

    • brendababy
      brendababy jayneejay

      Posted

      Thanks for replying, hubby on way home from work as I've been in phone to him hysterical, feel like I'm going insane. I need to find a way of controlling the panic, I've allowed it to get out of hand today.

      Enjoy your day in sunny Spain x

  • goatgirl
    goatgirl wearykitty

    Posted

    Have you tried the product "Anxiety Relief"? It is a sublingual pill you let melt under your tongue. It really works. Only down side is it is not long lasting. I have been trying a product with St. Johns Wort in it, and that seems to help too. I hate the anxiety!!!!! Definitely makes a person feel like they cannot function. I come from a family of seven ,and of four girls only I have had any symptoms like this. I am so thank ful for this site, and all of you who are sharing, makes a person feel like they are not alone.
  • Glitzy
    Glitzy wearykitty

    Posted

    Hi wear kitty just come onto this site my symptoms are exactly the same but I have put it down to allergy season I do have at the moment blocked nose muffled hearing in one ear but I do relate to your symptoms of dizziness loss of balance and weirded feelings in my legs and tingling I fingers I've noticed this comes on more when I go the shops I always get anxious before I go which I think brings on the symptoms I used to be like years ago now I feel like it's back ugh. Reading some of the letters I'm wondering now can this be menopause related I've not had a period now for 18 years. I don't know if it's hot flushed I get my face doesn't go red but I do get panicky and then I get a flush in my face which makes me more panicky lol.
  • caroline53261
    caroline53261 wearykitty

    Posted

    just been in touch with my doctor and he is oputting me on new medication called venafexeen ... anyone heard of this please
    • jayneejay
      jayneejay caroline53261

      Posted

      Hi Caroline 

      think it may be Venlafaxine ????? Is it

      Thats antidepressant in a group of drugs called selective serotonin and norepinephrine reuptake inhibitors (SSNRIs). Venlafaxine affects chemicals in the brain that may become unbalanced and cause depression.

      jay x

  • Lisaippie
    Lisaippie wearykitty

    Posted

    Yes I have been like this every day almost for 5 months all blood work was normal and everything was normal, just wondering if you found out what was causing yours?
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