feel lousy
Posted , 10 users are following.
I've had this for about 5 years. Whilst co codomol take he edge off the pain I am finding it very difficult with always feeling in some form of pain and stiffness. My family don't understand. Tests dont show anything. I know there are people worse off. I just dont know what to do and its hard working over 50 hours per week and colleagues asking what is wrong whenever I stand up and need a few seconds to get moving. I now understand this fog people talk about and have to write things down so I dont forget. People tell me I look well but I feel so desperate.
I never hear that it ever leaves, does it?
1 like, 24 replies
TeresaJS Sorrentogirl
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be69188 TeresaJS
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tiswas24537 be69188
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its a med used to treat opiate and ahcol withdrawel
but in small studies has shown good results in very lloew does
of 1mg .some doctors will prescrinbe it others just want to cover there backs .
i think its bloody stupid myself its been on the market for 30 yrs and has a proven safty record even safe enough to prescribe in pregnancy .
but as its not lisecened for use with fibro etc doctors want to cover there backs , dr chris steel tv gp and mbe is backing a petition to get it researched ,by goverment funds .
but as with everything that makes sense its always a battle,
ask your gp maybe if all sufferers asked there gp for it you might not get it
but at least the info is getting to them my doctor didnt even no what it was
low does naltrexone
in cfs,fibro ,and ms . even autisum ,
kath2 Sorrentogirl
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kath2
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anne90395 Sorrentogirl
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I am sorry to hear you feel so bad, my heart goes out to you. But you work 50hours per week - respect to you. That is a great achievement with this tricky condition! Tests won't show anything, that is the nature of this illness. Families won't understand, you have to guide them and show them information on-line. I have heard that it never leaves, and is now the new 'normal'. It has to be managed, and for everyone it is different. I wish you luck in finding your 'new normal', and let us know how you get on.
Take care, Anne
Maggers Sorrentogirl
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tiswas24537 Sorrentogirl
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dont mean to make you feel even more down but its the truth for me and a couple of other people i know with it .
iv heard good things about ldn might be worth you looking into it see what you think . its been on the market for 30yrs used in high does to combat withdrawal from opites and achol .
but some small studies have shown remarked improvment in fibro ME and MS .sufferers in much smaller doses than used for its oringal use. its not liscesed for the treatment of fibro but your doctor can precsribe it if she or he thinks it could help .. iv read several patceints experinces with low dose of this med and they have all said side effects minamal ,and not a hinderence . mostly the inability to sleep vivid dreams nausea but none reported that it was unbearable and they all said it only lasted for a couple of weeks .untill the body got used to it .worth considering
shirl21730 Sorrentogirl
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ups..for me it has been spicy
foods..dairy...mushrooms...cheese...stress..worry...things that have helped ease the pain are...swimming...water aerobics..short walks...getting lost in a good book...playing games on my iPad... now I keep my mind and body as active as I can without over doing it for me it has been trial and error and exploring what works for me...I was told in the early stages there wasn't any meds I could take due to me taking anti immflamatory tablets I am on these for life for the chron's which keep it under control
for the last 10 years the pain and stiffness has become milder and more manageable...I hope this helps and you mange to find some way of controlling the bad pains and stiffness...my heart goes out to you I empathise with your suffering...gentle hugs
Shirl girl x
tracey00938 Sorrentogirl
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tracey00938 Sorrentogirl
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Sorrentogirl
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tiswas24537 Sorrentogirl
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tracey00938 Sorrentogirl
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shirl21730 tracey00938
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shirl21730 tracey00938
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Shirl x
shirl21730 tracey00938
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and playing candy crush games help me I feel it is so important to keep our minds as active as possible just as much as keeping our muscles moving there is an old saying that comes to my fibro fog mind if we dont use it we are in danger of losing it I have had experience of seeing my mother go through so many cruel debillitating illnesses and just existing until she gave up and died 13 years ago I have been through some rough times over the years and I have never forgotten what she meant when she told me to live my life sorry if I may have scared you I didnt mean to I just felt emotional thinking about my mum take care x
tracey00938 shirl21730
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