Feel scared to do anything. ..newly diagnosed

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I am still waiting for echo and consultation. Started on bisoprolol and new anti coag. Shocked and scared that I've knackered my heart just by being healthy?

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  • Posted

    Hi Fraces, yes it is quite harrowing when you are first diagnosed. Best thing to do is find out as much as you can about AF. Knowledge is power, and I found that understand my condition well really helped to put it all in perspective. There is lots of info out there. AF and its Effects can vary a lot from person to person, but at the same time, there are some general trends. I have found that Dr John Mandrola's articles on the Medscape website are very informative, particularly a 10min video interview between him and Dr Prash Sanders. If you google their names combined with 'medscape" it should come up in the search. Wishing you all the best on your AF journey.

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  • Posted

    Hi Frances,

    I’m sorry to hear that.

    Whats the story? How were you diagnosed?

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    • Posted

      Only 2 weeks ago ben. Have echoe this Wed and consult Fri. What should I be asking...anything you would have liked to have known at the outset that I might not think of that you think would help me? Thanks for responding!
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    • Posted

      Are you in AF all the time?

      Did your Go practise diagnose it?

      Its good that they are giving you an ECHO before you attend arrhythmia clinic - it will mean the consultant can actually give you proper info.

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  • Posted

    I shouldnt worry

    Your hearts not knackerd.

    Even top atheletes get this its quite common.

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    • Posted

      I second that, bassbob54. I have had Paroxysmal AF for three years now - hoping to get ablated at the turn of the year. It's annoying, but I don't consider it to be anything as bad as heart disease, heart attack etc. Mind you, symptoms vary greatly between individuals. (And I found Bisoprolol didn't suit me.)

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    • Posted

      Thanks I suspect I've had it for longer but only vaguely conscious of it. Does anyone out there know much about caffeine intake. I have been hypersensitive to it for many years and feel really speedy if I have just one coffee. I love tea but am having just one cup in the morning and herbal rest of day. Is anyone else majorly effected by it....I'm scared to have hardly any caffeine now.

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  • Posted

    Hi there. I'm about 3.5yrs into my PAF journey and can honestly say Ive found so much information, advice and positive support through this forum. There's no such thing as a stupid question on here - ask anything, anytime and someone is bound to share their experiences. That knowledge will help you to get through and regain control. Its scary at first, but everyone will help you understand and support you - total strangers with a commonality. If you feel you can share some details, you'll soon see how many of us likely share similar issues! 😁 All the best.

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  • Posted

    Have to agree with cardiac congo,  this site is amazing, post a question and there are so many ready to help, and they are from all over the world.  Doesn't matter what time of day or night there will be someone who can answer a question..

     

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  • Posted

    Tell us what happened to you Frances? Did you end up in A&E?

    I had paroxysmal AF for 22 odd years before it became a real problem so dont worry Your heart cant be damaged by being healthy! My AF was inherited but that's probably a minority. 

    You can live with paroxysmal AF ( it appears every so often) for years. Learning to live with it is the key to not scaring yourself to death.

    What were the circumstances in which you discovered  your AF? What were you doing or had eaten (or drunk)?

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    • Posted

      Thanks Okapi. I had just noticed palps getting louder so took myself to A and E on 27th Oct. I've only spoken to A and E drs so far and am awaiting echo Wed 17th and follow up 19th . Hoping for some answers.y palps are absent today but blood pressure is 90 over 70...I feel ok but can't jump up quick...less energy and certainly scared to cycle or run. Thanks for telling me about your 22 years! ! Very affirming😆

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    • Posted

      I'm not much up to running and cycling anyway. Not sure if it's down to the beta blockers, the AF or both. And my BP goes down to about that level when I have AF, which is debilitating.

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