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Feeling bit low.

Posted , 6 users are following.

suzy94532
suzy94532

Don't really know what's going on with me ,but I am feeling very down with this .

This is new to me and not coping very well.

Few weeks ago this started, had metronidazole, things calmed down a bit ,then temp pulse and bp went mad, so blood tests ,but infection had come down.

So I am thinking great,not for long tho.😕

Started with mucus, temperature, pulse went up again. So had blood tests,came back no infection, although they said it can change by day.

So Doc said Metronidazole again, been on it for two days,still got temperature and mucus😕

Talked to Doc this morning, he said take the Metronidazole and hopefully it will calm down.

I haven't had a pain this time.

So glad I have found this site,it is so good to be able to talk.

0 likes, 17 replies

17 Replies

  • emma69977
    emma69977 suzy94532

    Posted

    I have found a Probiotic seems to be helping , know how down you must be feeling, try and think positively
    • suzy94532
      suzy94532 emma69977

      Posted

      Thanks Emma ,I am going to give them a go.

      Trying to stay positive, not easy.

  • madeline27614
    madeline27614 suzy94532

    Posted

    I usually take cipro  and metronidazole for diverticulitis. It is natural to be down. I know the exact feeling. How long have you been on the one antibiotic?
    • suzy94532
      suzy94532 madeline27614

      Posted

      Hi Madeline.

      I was on Metronidazole for five days,and wasn't feeling good ,so they put me on amoxlclav.

      There were times when I felt better, then on Wednesday, feeling sick temp up to 37,pulse 99,so Doc was thinking infection, blood tests,came back,nothing going on. Phoned Doc yesterday he said stay on Metronidazole because of temp 😕

      and it being weekend.

      Temp is still up well 37.4 which is high for me,pulse still a bit all over the place.

      My Daughter thinks it is my head I need to sort,she is right I know ,but as she said if the temperature wasn't up??

      Anyway going to see how I go ,if in doubt give Doc a call.

      Thanks again.

    • miriam65408
      miriam65408 madeline27614

      Posted

      Hi Madeline and Suzy,

      I'm sorry you have to take antibiotics and agree with you that other antibiotics might be effective for Suzy.  However, I need to warn you that Cipro (and the other FQ class of AB) are seriously strong and, while they may be OK for you at the moment, their damaging effect on your body is cumulative - which means you will eventually reach your threshold.   If you read the warnings in the Cipro packet you'll see there is a long list of things that may happen - your doctor will probably tell you these are all rare.  They may be rare, but once you take one tablet too many, any or all of these side effects can kick off - and some may cause permanent damage.

      I'm not making this up - look at the discussions about fluoroquinolone antibiotics here on this site or go to this thread started by the moderator:

      https://patient.info/forums/discuss/fluoroquinolone-toxicity-syndrome-427305

      An academic paper has just been published about these dangerous side effects plus the FDA made an announcement about them in July last year.  Please don't wait til it happens to you - it ruins lives and you don't need that along with DD. 

      Also, perhaps don't take Ibuprofen or any other NSAID, stick with paracetamol.  NSAIDs can also tip the balance and start off the side effects.

      Take Care x

       

    • madeline27614
      madeline27614 miriam65408

      Posted

      Hi: what is parectamol? I have never heard of it.

      I know all about what cipro can do but if there is and I want to stress there are no other antibiotics that help me and I have taken others and wind back in the hospital on IV antibiotics which are the IV version.

      I thank you for your concern.

      How many attacks and hospitalizations have you had and what do you take for your attacks?

      I wish I didn't have to take any antibiotics and I use heat and take dicylomine for cramping, stay on liquid diet to test the colon but sometimes more is needed.  

      Thank you again and please let me know how many and how frequent your attacks have occurred and what you take to get better.

      🙏

      Madeline 

    • madeline27614
      madeline27614 suzy94532

      Posted

      A fever is nothing to fool around with.

      It's a scary disease when it flares up and definitely makes you depressed.

      That antibiotic should work. It didn't help me but everyone is different. My opinion give yourself 5 full days on the new antibiotic and watch your diet(soft foods) and you should start feeling a bit better. Try to go out and get some fresh air. If after that time you still have a fever go back to doctor.  It's the fever that concerns me. Everything else takes time to heal. Have faith and watch any hard to digest foods.??🙏Madeline 

    • suzy94532
      suzy94532 madeline27614

      Posted

      Hi Madeline

      Thank you for your kind words. Yes it is the rise in temperature that I don't like and the fast pulse. So not really sure what's going on ,think I am going to Shropshire Doc, as I don't like this fast heart rate.

      I haven't get had the camara, as yet,but pretty sure this is what I have. No more mucus today so that's good .xx

    • suzy94532
      suzy94532 miriam65408

      Posted

      Hi Miriam

      Yes I hate taking any medication,because of what they can do .x

    • miriam65408
      miriam65408 madeline27614

      Posted

      Acetaminophen?  Steer very clear of NSAIDs!

      I'm not here because I suffer from DD, I'm here to try and make sure people don't unknowingly get damaged by Cipro.  At least you've weighed up the dangers and know all about how devastating FQ toxicity can be.  My friend had DD and was also devastated by Cipro.

      Thank you for all the help you give others who are suffering and frightened.

      Good luck.

       

    • madeline27614
      madeline27614 miriam65408

      Posted

      Being well informed is a must but knowing when you have tried all other options and have a choice to either suffer  a perforation or like my brother die sometimes you must do what you have to do. There are risks with everything. That's why I pray a lot.🙏

    • susan79360
      susan79360 madeline27614

      Posted

      Hi Madeline. Paracetomol is a painkiller, but its not that good for this type of pain. I personally don't find them strong enough. I was on Codiene , but it makes me ill so I can't take it. I put a hot water bottle on my stomach and that seems to work a bit. I'm on a bland diet at the moment as I have had constant pain for about 3 weeks. Doctor suggested Neuropathic painkillers, but I'm already on them. Wish I knew of something to take. How do you find being on a liquid diet? I only eat soup, cereal and rice pudding. Have you any suggestions?

      I drink Ginger and Lemon tea and Camomile tea before bedtime. Both are generally good for the stomach and bowels. The only thing I find helps with the pain is concentrating on something else.

    • madeline27614
      madeline27614 susan79360

      Posted

      I only do a liquid diet for a day unless I still have pain and the heat works wonders.  I find most days now I only eat soft and easy to digest foods. I use a crockpot and make chicken a lot. I put carrots in with chicken and it's about the only vegetable I eat. I eat applesauce a lot. When the pain subsides I eat more and lately have had some peas and a small lettuce salad. I am so careful but have gained the weight I lost . I lost 10 lbs. I have 5 back on which I had hoped stayed off but when you eat mostly carbohydrates it's hard to keep the weight off. I do eat pasta.

      Three weeks is a long time to feel bad. You should start feeling better sooner than later. 😘

  • madeline27614
    madeline27614 suzy94532

    Posted

    I forgot to ask. Did you check the side effects of medication. Maybe it's not agreeing with you. There are other antibiotics that work. It's seems as though you shouldn't be having a temperature if you've been on it for more than 3 days.

  • jacqueline01135
    jacqueline01135 suzy94532

    Posted

    Hello suzy,,, D.D is a bit of a sod to cope with ,as we do have it for life, The thing is to be in control of it. and do not let it take over . I cope ,by taking probiotic capsules,, two a day. and if the pain gets  a bit niggley  I take a couple of Paracetamol which seems to do the trick. .Antibiotics are all very well, but too many kill off your immune system ,which your body does need.to take care of all your other bits.

    AND  stress is  NOT good ,so, take control. make the DD calm down ,and just regard it as a "situation" that has to be dealt with,

    Jacqueline xx

    • jacqueline01135
      jacqueline01135 suzy94532

      Posted

      Hello suzy,,, stress is a major bug bear, and affects all our body,but you can't scratch it like an itch, or rub it better... It's just not a visible body part,, just a trouble maker. You need to do things that you enjoy doing.to take your mind off of this. Go for a walk.or a drive, read, borrow a dog,,get a dog, go shopping,,,not groceries, gardening, that really gets my mind in reverse,.weed murdering..And smile ,

      Jacqueline xx

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