Feeling depressed

Darling girl.  Please believe that your current situation will soon improve hugely.  The biopsy wound will heal perfectly.  You will soon begin treatment.  Trust that you will feel much much better than you do now.  Take that on trust for now. Re-read all the replies to your last post.  Practice mindfulness if you can, just concentrate on your breathing and everytime the fear and desperate thoughts return, let them go and focus again on your breathing.  If you knew that it would be ok, you'd feel less desparate wouldn't you?  Just believe that it will all be ok.  When are you due to return?

I have had many days like this, keep on trying different things people post on here. I use coconut oil and evening primrose oil to moisturise. Steroid gives me no relief. I'm going to vulva specialist 7th September. Hopefully get some answers I can share on here.

Hi Nicole, so sorry your having a rough time.Any chance you could get to a hospital or doctor where you are , you probably should not use steroids just yet if you have just had a biopsy l was told to just put vaseline on until it heals then steroid cream if it flares up l found the areas where l had been cut did not flare up again , dont wash the area too hard ,no soap!!! When its healed you will feel much better. After that its a matter of a barrier cream which keeps the area calm and moisterized . Are you wearing jeans ? if so ditch them and wear a skirt this lets the air circulate and prevents friction on the skin . Dont eat anything spicy and go very steady on alcholic drinks LS does not like these things . Try and relax , stress is very bad for LS . Good luck l am sure you will feel better after a few days and dont worry there are lots of nice understanding guys put there , take care xx

nicole, I wish I could say it is going to disappear over night ....

Diagnosed with LS is an emotional blow anytime,anywhere but alone travelling far from home has got to be a desperately lonely place to be.

You need time to adjust and get your head around what you can do to help yourself.

It seems to be a common complaint that the professional support system for LS suffers is virtually nilch!

Although there are more questions than answers this site has lots of helpful advice for fellow sufferers.

I think mentally you are in a bad place at the moment and stressing is one of the worst things for causing inflammation.

Whatever you think is the best thing to help ease your mind, do that.

Physically try to carry a handy spray with a diluted sea salt solution or diluted bicarbonate of soda and use to calm an irritated vulva then pat dry.

Also a suitable moisturising cream of which there are many to choose from.

Very best wishes that you come to terms and become successful in dealing with LS soon. 

Oh Nicole, I so feel for you. I was diagnosed some 2-3 years ago and I also had a biopsy to confirm it. It was not very pleasant and then was told that it was one of the worst cases that my gyny/dermatologist had seen. I was a full time teacher too but had already retired when I had the diagnosis, fortunately as I don't know how I could have coped with both the LS and the pressures of the job and all that that entails. I shower every day, using Dermol 200 as an emollient, I wash myself underneath with clean water after every wee, others on here have suggested a bicarbonate of soda spray. I also bought a porta potty for when I was travelling so that I could rinse myself properly. I am on clob twice a day for three months + due to return to my gyny in Sept. I am also very worried about what is happening underneath as it just seems to be disappearing as a structure very fast. However, I have found the support and advice on this website to be a wonderful lift when I have been feeling down. You don't look any different to other passers by and just try to raise your self esteem. You have already taken a big step by opening up your inner feelings on this site and although friends don't understand, you know you have an army of sympathisers on here. It will improve, as will your confidence with others. Nobody has the answer to all the questions and you just need to try to accept what is happening and then onwards and upwards! It is so very hard but you are not alone. The challenges of your new job will hopefully occupy your mind rather than brooding on the unfairness of it all. I do so wish you felt better about yourself and the situation. Whereabouts in London are you? I live in Essex and I have a gyny who is far more empathetic than your doctor. Good luck and keep in contact.

Nicole, I've also recently been diagnosed at a relatively young age (37) and have been feeling depressed about it, BUT everything I have read indicates that the vast majority of women are greatly improved with treatment once you get started on it, so why not us too? It's certainly not an easy process, and from what I can see, there's a lot of trial and error, but take heart from the support here and try to stay calm, because apparently emotional stress is also trigger. I know it's easier said than done (I'm not always able to stay calm) but things WILL get better.