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Feeling depressed

Posted , 16 users are following.

nicole1990
nicole1990

I posted a few days ago about my new diagnosis. I am 25 years old. I really feel that I need to express how I am feeling right now because I am driving myself insane. I am currently having a lot of redness and burning. I was on the phone with this guy in London who I have been dating for three months and all I wanted to doo was cry on the phone. I feel like running away so I don't need. To explain what this is it what I am going through. I told a few of my friends and they don't really get it At theoment I am feeling very hopeless

I am frustrating because when I had the biopsy done the doctor said this is a classic case of lichen sclerosis. She didn't tell me how I would feel after the biopsy or what I could do while travelling without any steroid cream. She just booted me out of there and I took the underground back home in tears. I now look all scarred down there and it has made my self esteem go down very low. I feel like since I am so young who is going too accept me like this?? I have been using coconut oil and tries to find some pure aloe vera but I haven't come across it yet. I am travelling by myself in Europe and all I want to do is go home. Can someone please provide me with some positive feedback. I am crying everyday.

2 likes, 31 replies

31 Replies

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  • j02359
    j02359 nicole1990

    Posted

    The other thing to remember is that for some people the treatment stops any further damage to the vulva - your diagnosis doesn't  mean that you will experience any of the worst aspects of this disease.
  • lyn4668
    lyn4668 nicole1990

    Posted

    I purchase my 100 percent liquid and 98 percent salve aloe at health or vitamin stores in the U.S.  Amazon carries George's online but that is difficult when traveling.  Aloe does help immediately for the burning.
    • nicole1990
      nicole1990 lyn4668

      Posted

      Thank you very much, Lynn. I am on the hunt for pure aloe! Xx
  • sampleremix
    sampleremix nicole1990

    Posted

    I am also young 29, I had my LS confirmed at 21. It was a long battle to get where I am now. But where I am is my LS is under control and I have be able to have sex for almost a year now ( hoorah!).

    It will get better.

    Can I recommend asking to see Dr Walsh at Kings College London. She sees me and has made such a huge differance on my LS. I use Diprobase as a moisterizer in the day and tend to use after the loo.

    At home I use Eperderm.

    I also use Deromvate once a week as advised, this is a maintance dose to keep my LS in control.

    Its tuff, no denying it. Be strong. You will heal, if you tear with intercourse I recommend saline soultion (cold) after going to the loo and diprobase.

    i do still tear after sex sometimes. Not much but it can happen. When I do I follow the above and im healed in a few days. I also can not recommend lube enough! Get a good quality organic pure lube.

    Also the thing that helped me a lot was my vibrator. So much nicer than those cones, I had the cones for years and didnt get very far. But a vibrator works both as its more bendy and the vibrations stimulate your blood flow making you mpre relaxed down there.

    I was scared about telling my partner but he understood and was very supportive. Its best to be open about this.

    Take care

    X

    • nicole1990
      nicole1990 sampleremix

      Posted

      I am so glad to hear that sex is possible for you now. I am at the point where I am not sure if I am able to. I had sex before I left for my travels a month ago- but I don't know what changes have occurred and if I can now. I have just started in a new relationship - I don't know what to say to him/ no sure if I should try to have sex?

      I am going to pick up a vibrator once I return to London . Thank you very much for your support!

    • sampleremix
      sampleremix nicole1990

      Posted

      If your in london go to Sh in old street. Its a sex shop for women only. No men allowed unless with a woman. The sales staff are fantastic. They will help you and give you advise on lube for extra sensitive skin down there.

      id say for me the key was stretching, using a vibrator every other day. Massaging the area with moistorizer. It will involve effort on your part but worth it! Id say if I dont have sex/use my vibrator for a week I def feel it and sex is a littke painful. We have scar tissue and that doesn't stretch so we have to keep it stretchy.

      If your not happy to talk to him just yet wait. I waited about 4 months as we wasnt in a single us relationship. The end of the day you dont want to have negative thoughts on sex if it hurts. Positions can help and hinder it. I had such negative thoughts on sex my body actually tightened up on trying to have intercourse which made it worse! I did sew a sex thearpist that helped me.

      The lube will help a lot dont be afraid to put loads on smile

    • nicole1990
      nicole1990 sampleremix

      Posted

      Thanks for the advice! I will check out the shop when I return to London. See my problem is that since I have already had sexx I feel as though I will have to say something if all of the sudden I am nervous about it/ I feel like the redness/ scarring has gotten worse and I'm embarssed for him to see it. I really like this guy.. A lot. I don't want to ruin things. I just don't know how to go about it. Thanks for your help!! P.s. lube will be a must!!
  • carolina80209
    carolina80209 nicole1990

    Posted

    Hi Nicole,

    So sorry to hear about your situation, I am 26 with LS so I do understand and that was the first thing that crossed my mine, who would accept me like this? I was diagnosed on february this year, was suposed to go to turkey for a year but instead of that use all my money to see an specialist on USA because I live on Ecuador and there are no doctors here. I was very depressed pretty much suicidal, meditation and deeksha which is a practice that helps you be more in contact with God(did not believed in God at that time) pretty much saved my life.

    You will accept things eventually, but know that things will get better, there is people that have very good results with steroids, some people dont, like me, but there are other alternatives. There are many cases of people healing autoimmune condition and bunch with LS that have healed by changing to organic diet and products, taking supplements and detoxifying from toxins (there is even a post here of a girl that has been cured for years) I really suggest you find a vulva specialist , try steroid but parallely start and organic diet and the other things I mentioned, this second things will healed you after several months, clobetasol relieves symptoms does not cure and you will have to use it forever, so giving the organic lifestyle a try is worth the shot.

    Things WILL improve, you need to commit on doing changes to heal and have to understand you are not less than any other girl or anyone.

    Have faith and hang on, take good caresmile

    • nicole1990
      nicole1990 carolina80209

      Posted

      My heart goes out to you Carolina!! This is not fair that we need to deal with this ! How was the specialist in the USA?

      Meditation sounds like a great idea. I feelblike I need something like that because I am feeling utter doom. I have not told my mum because she is a nervous person. It is a very isolating disease.

      I am willing to make the changes! Thank you very much for your advice !! I truly wish you the best !!

    • carolina80209
      carolina80209 nicole1990

      Posted

      Hi Nicole hope you are feeling better, I am sorry for not answering sooner. I did not told my mom right away either but ultimately she ended up being my rock through this hole thing, you need support and your mother could really help you, also she needs to understand and help you with your diet changes.

      About the doctor in USA I spent like five thousand dollars to see him and he just told me to use steroids haha and they did not worked for me so it was like a waste of money, I should have started with the organic lifestyle right away, I really encouraged you to try that alternative , seek for both the traditional and alternative treatment to get better results, and meditation to help you deal with any anxiety that comes along.

      Take good care smile

  • dertater
    dertater nicole1990

    Posted

    Hey, please know you're not alone. Look around you and think of the generations past that have had this disease without knowing what it is or what to do about it.

    I know this sounds bad but there truly are worse things. I also know I don't want to here that when I have a flare up and can't pee without burning pain.

    I suggest two things for you now.  Get some kind of ointment for your bottom that protects your skin.  I use, believe it or not, diaper rash ointments.  I bet you could find some at a apothecary.  A & D ointment is good stuff. Second, if you can get some antihistamine.  Benedryl works wonders.  Is suppresses the histamine your body is making which is causing that aweful iching/burning sensation.

    I'm sorry for you on holiday with this aweful, painful disease.  Please know I'm with you on finding better treatment.

    • nicole1990
      nicole1990 dertater

      Posted

      Thank you so much ! Honestly your response has brought me to tears because know I have the support of women like you. It really allows me to get through the day. Thank you so much. I am going to go to the pharmacy as soon as I get off this bus. Xx
  • nicole1990
    nicole1990

    Posted

    Does anyone know of any support groups in person? I am living in London and feel that it would be very helpful for me to speak face to face with some women going through the same thing as me

    • suedm
      suedm nicole1990

      Posted

      I joined a support group in Birmingham, when i lived nearby. It was a help to see all ages and stages of the condition. We were able toh have the advice of a sexual therapist  who arranged for us to visit ann summers as a group having alerted the staff of our conditon. Advice about the size and shape of the vibrators was very helpful AS WAS the ability to buy crutchless tights!

      You consultant may be able to put you in touch with others withthe condition and you could start your own group. You could phone up the clinic in Kings College Hosp they may well know of a group.

      Hopefully you will be feeling a tad better than you did 5 days ago. I have been out of town and  not on the site. Please dont worry about the future. What ever you do you wont improve the situation if you worry, in fact you could make things worse - cos you are getting too stressed. Sitting for hours on burning coals is not fun and i do feel for you. I found i have a gene mutation that could be the answer to why  i have LS and while that cant be changed there are those who believe that changing ones abitlity to digest and absorb the protective aspects of the diet can alter the course of the condition. We shall see.

      Not long before you return to the UK Good luck and your new job will help you take your mind off  your current worries. Your lovely new boyfriend will understand if you tell him the stress of travel has made your  auto immune condition worse and that you have to take things slowly and gently at first. ....

  • d7beck
    d7beck nicole1990

    Posted

    Try to keep yourself dry. Change panties when you feel damp or sweaty. Do not use any scented soaps. Use regular dove or a hypo allergenic soap.maybe talk to a pharmacist and get something temporary til you can get clobetasol. Good luck and try to enjoy your travels.

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