Feeling low

Posted , 10 users are following.

So been to the doctors this morning an due to all the anti inflammatory my kidneys now are only working 50% Which as made me really dwn. So he as now give me amitriptyline 10mg an tried to get me appointment for the rheumatology but at the moment no appointments available 😢. am in so much pain this last week an feeling like I can't cope an it's killing me because my poor family dnt no how to help me other than do everything for me so heartbreaking 💔💔 xx

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  • Posted

    Hi Kirsty , tell me about it , same old story , no appts , my consultant up and left cancelled her clinic , and now we are all waiting to be referred YET AGAIN  , telling me there is no money in the nhs , dosnt help us who are in pain and distress , they want to try being in our place sometime !!!!!, .do you take your anti inflammotory after your food? or perhaps get the Dr to give you omeprazole they put a lining on your stomach , as I take daily aspirin I had to take that for a while , and also I take a glass of milk before i take my tabs , seems to help  ! I use a walking stick , cant tell you how many times I have flung it across the floor in sheer desperation and frustration ,  I was quite active , its upsetting we cant do at the moment all the things we use to do , but dont give up , where theres a will there is a way, 

    Take care x

    • Posted

      Hi lubyloo that's disgusting how can ppl be treated like that so unfair isn't it we get ppl get treated so bad.

      I always eat b4 I take them my husband always made sure of it I am on omprazole been on them for a year. I can't drink milk it makes me Bork haven't been able to drink since I was a child.. O I no ur frustration I dnt have a stick but not being able to walk or the newest thing is can't even brush my teeth without the pain.. I am trying to be so positive but it's so hard in it xx

  • Posted

    Poor you Kirsty..just dont get it from the country I live in..it just never happens..if you need to see a specialist you see one...??? I've been on Amithriptilyne for over 20years now..it's all I I take/need for Fibro...I take 25 mg at night between 6-8..it takes my pain away..better still it gives me a great nights sleep....it did take the doctor a while..like 2 years to get me on the right dose ...I was started out on 50mg...much too strong...like a zombie all day...then 10mg.,,not enough...It does take a little while to settle in your system..that's why it took soo long to get my dosage  right ...but we are all different..some people on here take10mg  it's enough for them..sometake  75mg..I'd be the walking dead...we are just soooo different..do hooe you get to see a Rhumo soon, they usually diagnose Fibro...be blessed kisty, have a lovely day..:-) xxx
    • Posted

      It's so bad with the nhs it's a joke. Well I took my 1st one last night but didn't really see any difference but I weren't expecting noting on the 1st time of taking them. I am hoping this appointment comes through soon just even to get the diagnose thanks christiene xx
  • Posted

    Hi Kirsty;  I don't want to be another problem for you, (and yes, I take Amitriptylline too); but if you are already having problems with your kidneys not working to full capacity, perhaps you may need to read the side effects of Amitriptyline too, as it can decrease the working of the kidneys..............also I feel that maybe you are taking in too much fluid (you say you are drinking appros 5 litres per day)....our body really only needs 1500 - 2 litres on an average.....so if your kidneys are not filtering at optimum capacity, this maybe an overload for them???   Did your GP/primary carer comment re your 50% kidney functions?   has there been a mention of referring you to a Urologist/kidney specialist?   This I feel is a must for you, as if not treated now, will be a big issue in the future.......perhaps it may be helpful for you to do some researching on many web-sites and get as much information as possible and take this information  to your GP.........Bron
    • Posted

      Hi bron thanks for replying my husband read the side effects last night an seen this so I dnt think it would be wise for me to take them. I will not be drinking as much now either I get a dry mouth a lot so think that's why I tend to drink as much.

      I am already under the urologist team as have been for some months now I have recently had a scan as well on kidneys so have to wait for the results of them.

      I will do that as my go didn't really tell me nothing about it apart from it weren't good an that I have to go bak in a couple of weeks to get bloods done again xx

    • Posted

      Morning Kirsty......am continuing on from previous input and your reply re "dry mouth".......this maybe due to other meds.....or even your kidney function.....sometimes when our kidneys are Not functioning properly, we can end up with Other "not wants" in our bloods (ureaic acids ect/glucose etc)....these can make us thirsty, too......do you have "itchy skin"?    this is a good sign for Kidney probs, too......just some more "reading matter" for you to research.........happy reading (and I Do hope this is  not the cause, but more to do with the meds that you are taking, making you thirsty).....Bron
    • Posted

      Afternoon bron yes I do get Itchy skin bad some days thanks again for the advice kirsty x
    • Posted

      Morning Kirsty; can you let us know how you get on with ultra-sound and other results.............am hoping that we can find some real answers for you.....Bron
    • Posted

      Hi Kirsty; just noticed that others are giving you some hellos;  wondering if you have had your kidney/uroligists appts yet, and wondering if it is safe for you to take your amitriptylline/??...............Bron
    • Posted

      Morning bron I have app to see my uroglist on the 3rd of Nov. Waiting for bloods app to come to get kidney function checked. I voiced my concerns to the doctor about amitriptylline an he said I am ok to take them Kirsty xx
    • Posted

      Hi Kirsty; just noticed your reply re the taking of Amitriptyline, and am pleased that you can at least take a small dose, as anything will be better than none..........all sounds good so far.......................Bron

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