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im 35 years old and not even married or found someone and yet iv been dianognesd with LS, suffering from health anxiety .. whos gonna want me now.. feel like my life is over before its even began.
how old were you all when u were diagnosed.. how long has it been since having it..
1 like, 23 replies
Hi, im 31 and i was diagnosed about a month or so ago so i know how you feel. been having symptoms for about 2 years. A biopsy confirmed it. when were you diagnosed x
hey. i was diagnosed in may
im 37. diagnosed basically the day i met my now boyfriend. he still wanted me. still wants me. just had our 2 year anniversary.... let me mention, i also have genital herpes AND im allergic to the sun. ha! i thought id might as well hide in my house forever, yet here i am. stay strong and confident and life will treat you well.
hey! aww thats so lovely to hear..
yup trying to be strong..
OMG - of course u will find someone to love and love u...and who will understand your LS...I was 65 when I was diagnosed...many doctors have no idea how to diagnose or treat this...that is the number one issue...when u start the right medications and life style u will improve and live a better life..my doctor (he is a "vagina special", yes, seriously) put me on Estrace and Clobestasol....they were life changing...I do not like or do use any other medications...but sometimes in life u have to use a prescription medication...I have a friend whose Aunt was diagnosed at 75 and now is in the 90's - and is doing great.. (although I do not think she is still having sex, haha)....I use the Estrace (which is a female hormone) 2 times a week with a plunger insertion - and topically 2 times a week and the Clobestasol (which is a topcial steroid I use 2 X a week)) for the LS...the white (and thinning) of my vagina has improved 95 percent - the itching is gone as well as the white discharge...intercourse can be thicky but all in all I am doing wonderful...I do not know where u live BUT find someone who is knowledgeable in the field and go see them...and for God's sake "NEVER" give up...new breakthroughs happen daily...when (not IF) u find that special someone HE will understand because he loves u...there's a lot more than intercourse to keep a man happy...best of luck to u....
hey,aww thank you for that.. hug
im from the uk..
what about you?
I live in a small beach town about 2 hours South of NY...the town is called "Margate"....u know if u live long enough u realize life has many chapters...some better than others...seems like most people forget that...u will find your way - and I'm sure u will have a wonderful life...and I bet ya that "special other person" is just around the corner...****
as for the young lady allergic to the sun...what u need to do is take an allergic pill about an hour before u want to go into the sun...I live in a beach town was when I was told to do this by a doctor (dermatologist) that I worked for I did this and for the last 9 years no longer have those bumps on my chest, arms, belly or legs...give it a try....it works...honest...
Vickie, Do you mean an over the counter antihistamine?
im 17 was only diagnosed 10 years ago after fighting for a diagnosis
talking to a friend or someone you are seeing about LS is so much easier than you think, i find the best way is to be honest and straight up about it. let them know its okay to ask questions. i find that people will do some research to try and understand what you are going through
hope this helped a little
mai, are you saying you are 17 now and were diagnosed when you were 7? Not sure anyone here had it as a child. If that's the case did it get better when you started to menstruate? Have read that it often does which is further reason to believe LS is estrogen related.
Have you been using steroids for ten years? If you have and are OK I'm sure a lot of women would be reassured to hear that it's a viable way to keep LS under control.
Hi, I am 40 and was only diagnose around a week ago and felt so depressed. I dont have kids but do share mortgage with my boyfriend. However, I was diagnosed with Genital Herpes about 10 years ago, at the time i just met someone i really liked and when he found out he finished with me. I was so upset and thought i would never meet anyone ever again. The next guy i met i told straight away (on our first date as i thought there is not point wasting my time if he is not interested!) and we have been together ever since. He didn't care as he liked me and we connected. He has been good about the LS too. I dont think he will leave me but i still worry a little occasionally, natural i guess. My point is, you may meet a few guys who think the LS is too much effort but this is good because it filters out the guys you would not want to be with long term anyway. Also, there are loads of people that suffer horrible symptom of LS but also some only have a few flare ups and then its in remission. If you can find the right balance of things hopefully this will be you...and me (i am crossing everything in hope!) xxx
Hi V -
I'm 32 and symptoms started at 30. Was just "diagnosed" in April. I totally understand as I am single as well, completely feel like my life is over sometimes, and haven't been able to bring myself to dating bc I am just so defeated. I've had suicidal thoughts over it too, its just so overwhelming most days. I don't even have physical changes yet, I'm just scared of what COULD happen and be my future. I'm trying to be more present and realistic about it. I know I'll find someone eventually, just might take a lot longer than I'd hoped 😦 We are here for you!
We note from a recent post which you have made to our forum that you may be experiencing thoughts around self-harm. If we have misinterpreted your comments then we apologise for contacting you directly. But if you are having such thoughts then please note that you are not alone in this, and there are people out there that can help.
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i know exactly how u feel..
and we r all here for you too hun! anytime u wanna talk.. feel free 2 private mesge me ..
Thanks V. I'm here for you too! ❤️ I'm pretty mentally stable about it most days, I just get so angry and worried about the future state of my body. I'm doing everything I can to try to get in remission. I have appointments with a specialist in dermatology that someone in another group referred me to, a nutritionist, and an acupuncture/holistic/Chinese medicine doctor all within the next month. I'm more hopeful that they can help me rather than my "western med" doctor who is saying steroids are the ONLY thing that will help me. I know that's bullsh*t based on other women's success.
Thank you, i'm doing much better now and will make sure to call a hotline if it happens again.
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