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I am sorry to have a moan I just feel crap, I found out I had ckd almost 8yrs ago i was 28% then and stayed that was for over 5 years then dropped to 21% and within 8 months from that I was at 12%, then 10% 3 months after that but stayed at 10% for a year (which is so frustrating because you dont get dialysis at 10% you just struggle everyday... I am now at 9%, I dont know my creatinine or urea because my last 2 lots of blood results havent gone on my patient view which I am not sure why but thats annoying, I know my creatinine is about 600. I just feel awful and fed up of being like this!! I was told if I went down below 10% in april my dr would put my tube in ready for dialysis which weirdly made me happy because I am sorry ready for dialysis, I am praying it will help and make me feel awake and just feel a bit more myself again not feeling like a 90yr old ill person... im 30yrs old and have just had enough!! I go to get my bloods done monthly (I havent been told how often to go have my bloods done) and my pd team make me feel like I am some hypochondriac who should only have my bloods done before clinic which is every 3 months, I am not getting any help. I dont complain ever! even on my worst day I never moan or complain, I only go to the hospital once a month to have bloods done, My dietitian and Neph are so so nice and caring but I seen them once every 3 months.
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