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Feeling weighed down by Chronic bile reflux

Posted , 11 users are following.

joseph20778
joseph20778

Hi all,

I've been having heart burn issues for the past like 7 years. For the past 1 year, this condition worsened and i developed symptoms similar to those suffered by patients having stomach ulcers i.e. burning sensation in the tummy and terrible hunger pangs when my stomach gets empty. I had an endoscopy done last year and the results indicated that i had an inflammation of the stomach lining ( gastritis) and chronic bile reflux condition, Hpylori tested negative. I always wake up with an irritated stomach..kind of burning sensation which lasts until i have my breakfast. I really try to avoid foods that trigger my condition but it seems like almost everything triggers my condition.

I was put on esomeprazole and itorcip for two months and was ok while on medication but once the medication was over, my condition recurred. My medication was changed to Ilaprazole and Itoprid which i just completed about a week ago and my condition still hasnt changed.

Wonder if there's any of you who has had this kind of a condition....

2 likes, 27 replies

27 Replies

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  • ruth10869
    ruth10869 joseph20778

    Posted

    Hi all,

    I guess we are all in the same boat (and it certainly isn't a pleasure cruise liner). I have suffered for years with these problems and have been taking Lansoprazole (previously omeprazrole for years and years.I have probably had about 6/7 gastrocopy tests - the latest diagnosis was Hiatus Hernia, Gastritis and  Oesophagitius (reflux). My last attack was so severe they doctors thought it was my heart - due to the fact the pain was all over my chest.  However, tests revealed no heart problems. I am at my wits end, as this pain in taking over my life and it really is miserable - so my sympathy goes out to all you fellow sufferers.

    The severe pain has calmed down due to my Lansoprazole dose being doubled (don't want to even think what the side effects will be) I now am left with a constant gnawing/empty pain in my stomach, constant nausea and I generally feel so weak and tired and always seem to be expecting the next horrific attack of severe pain.   I do believe there is an operation available but I don't know enough about it at the moment.  I have tried so many ways to help myself but not found the answer.  I just want to know ARE THESE SYMPTOMS NORMAL for this condition and do we just have to learn to live with it.  The doctors just shrug their shoulders - which is no help to me.  I do wish you all well and hope you get the help you need. Dont  give up.

    Ruth

    • ted41159
      ted41159 ruth10869

      Posted

      Ruth I am sorry to read of your AR problems again and going by what you have written and so many others I must be at the beginning of an awful journey. Mainly because my symptoms to be mainly of having a stomach ache continuously and an occasional pain in my shoulder.Yesterday I went without my daily dose of 30mg Lanso but because I felt awful for most of the day and night I took it again today.

      I had read on here about a self help cure but to be honest I think I would rather risk taking the Lanso continuously even they in the final analysis it could be detrimental health. My wife has been taking it for 4 years now and fingers crossed shes yet to have any ill effects from taking it.

      I suppose the biggest question we all have is when will our doctors take us more seriously when it comes to AR and its consequences. Best of Luck to everyone suffering Ted

    • joseph20778
      joseph20778 ruth10869

      Posted

      Hi Ruth,

      Thanks for the encouragement.

      In a sense it helps to know that one isnt alone in this thing and to have someone encourage you. I wish I knew more about this condition....my only source of info is the internet coz all my doc tells me is that my L.E.S allows bile to flow in the opposite direction hence the discomfort.

      The best i could do is wish us all well !!

    • ruth10869
      ruth10869 joseph20778

      Posted

      Hi to Joseph and Ted, I appreciate your memos.

      Nobody can feel another person's pain and I feel so sorry for each and every person who is suffering.  It is a horrible condition and even though I do get some weeks when things settle down slightly, I feel it is impossible to plan ahead because you never know how the pain is going to be from day to day.  I have never used or thought of using a forum before but, in a moment of desperation, I wondered if anyone else out there would understand and I can see how many sufferers there are (on this website alone).  Obviously none of us have any real answers.  We must never give up,  however difficult it  becomes, there must be an answer out there SOMEWHERE.

      All the very best to you all

      Ruth

    • shellmybell
      shellmybell ruth10869

      Posted

      I feel the same, Ruth. I pray for relief, a cure. Every day is excruciating...

      Tomorrow I go in for a Single Balloon Enteroscopy. They will be going in through my mouth, down my stomach, in to my small intestines. It's a couple hour surgery and I'm more than a bit nervous. I don't do well being put under. I pray they find something.

      Wishing everyone better days ahead.....

    • ted41159
      ted41159 shellmybell

      Posted

      I am sure we will all be thinking of you tomorrow and of cause we all wish you well. Tried not to worry too much and get some sleep tonight.

      When you can please let us know how you got on Ted

    • shellmybell
      shellmybell ted41159

      Posted

      Thank you, Ted. I live in California, surgery is at 1:30. I will let you know when I can... Again, thank you for your thoughts. Hoping it will be worth it....

    • ruth10869
      ruth10869 shellmybell

      Posted

      Hi Shellmybell, My thoughts are with you and I hope you can get some answers and a solution so that the procedure will be worthwhile.  All the very best to you and all fellow sufferers.

      Ruth

  • anthony61049
    anthony61049 joseph20778

    Posted

    I am not sure this will help your case, but this is what happened to me. I suffered severe acid reflux for, at least, two years. I would sit up sharply in the early hours choking on mouthfuls of vomit. Terrifying! I was prescribed Malox, which had considerable calming effect, but did not stop the nasty burning sensation in my lower throat. I had, until a succesful operation, cysts in my scrotum, one of which created a Hydrocil. I, almost, never saw my Doctor's Indian partner. I found her hard to comunicate with. She decided, wrongly, that I had an infection and prescribed, first one, then a combination of two Antibiotics for my Cysts over a six month period of repeat prescriptions. In the forth month the Acid Reflux vanished and never returned. I aint daft and I looked up the likely cause of the Reflux and its sudden cure. I think it was spelt, Hiliobacter Pilori, or something like. A brilliant Doctor had figured it out, but both my Doctors were absolutely oblivious to the great Doctors findings and arguments.  Whatever the spelling that H P infection causes Cancers throughout the Throat, Stomache and Lower Gut are quite often the result following after prolonged bouts of Acid Reflux. Best, Tony
    • anthony61049
      anthony61049

      Posted

      Further to my first post here. There is a very real clue above that shows how i am very likely right when I suggest a hard hit of prolonged Antibiotics. Others here have mentioned partners suffering similar, if not as bad, symptoms. H P is an infection and can be beaten down, but a kiss from an infected loved one suffering a mild reaction to H P can reinfect. It makes sense and concurs with the findings of the Doctor who discovered H P. He proved, against all the sceptics in his profession, by infecting himself and then curing himself with Antibiotics. Heaven help us all, both my Doctors still have no knowledge of H P. Maybe they, unlike my cousin who is a highly qualified MD and Surgeon, never read up on everything new and pertinent. To simply restate... you get it through intimate contact with a loved one and or food stuff... beat it, so show no infection, though symptoms persist, only to be reinfected and reinfect your partner as you spin on a roundabout from hell.
    • joseph20778
      joseph20778 anthony61049

      Posted

      Hi Anthony,

      Thanks for your post. I actually tested negative for Helicobacter pyhlori (H.Pylori). Was talking with a GERD doctor recently who told me that as at now, there's no medicine that has been discovered to help restore normalcy so to speak to the Lower esophageal sphincter (L.E.S) so all that the doctors can give for guys suffering reflux condition is medication to manage the condition. This was not very inteeresting news for me.

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