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  3. Polymyalgia Rheumatica and GCA

Feels like muscles/tendons being pulling from my bones

Posted , 37 users are following.

Kim_S
Kim_S

Hello,

I am 51 years old and just recently I was a fit as any 25-year old and was quite certain I was going to live till I was 150. Now I feel like an 80 yr old lady. I've been suffering w/ this pain now for over 3-months. Went to four doctors prior to being referred to a Rheumatologist. A Physician's Assistant friend of mine told me to look up PMR on the internet. My symptoms fit to a T, so I thought. Increasingly elevated ESR (sed rate) and C-Reactive Protein levels. Rheumatoid Factor (RA) was negative twice. Pain startedin my hip flexors and then into my shoulders.

My description of my pain (and I have a very high tolerance) is the most prominant during the night and in my shoulders. I have not been able to sleep lying down, but must sleep in a chair. I have lost range of motion in both arms and my strong muscles are all but gone. If I move my arms to far, too fast...it literally feels as if someone has ripped my arm off. I scream, cry and am wrything with pain. I've fallen a couple of times. I have had some moving around type pain to left knee and now both hands (which feels like joint pain).

The Rheumatologist I saw last week (after 5-minutes) told me I had Rheumatoid Arthritis and that there is no cure and that I would just need to come to grips with it. He wanted me to take an injection of Prednisone, which I refused until the labwork that he did is back. I don't buy the diagnosis of RA.

I am currently being treated via a doctor in the UK (Psionic Medicine) with homeopathic remedies. I do not wish to mask my pain w/ Prednisone, but I will probably need to bite the bullet soon as my pain persists (although somewhat improved) with homeopathy.

My question for anyone on this website with PMR is I want someone to describe their pain. Does anyone feel like it's deep in the muscles and tendons vs. the actual shoulder joints?

I have searched and searched and I don't think the doctors have a clue what this pain is like.

I was a nurse for over 20 years and I know what Predinisone does and I do not wish to be on it at all, let alone as a long term solution. Nor do I wish to take Methotrexate or Plaquinill.

I don't mean to be negative. I am searching for answers.

Very Sincerely,

Kim S (USA)_ [color=indigo:b9a7bd32c2][/color:b9a7bd32c2]

2 likes, 50 replies

50 Replies

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  • judy65735
    judy65735 Kim_S

    Posted

    I do not have pmr . My muscles aren’t stiff. They are pulling me out of my body. ESP my glut muscles. I am very anxious too and have trouble walking. I will check out ur suggestion. I live in the USA. Do u take meds? 
  • Wendyyoung
    Wendyyoung Kim_S

    Posted

    Hi kim,  not sure you will see this as your original post is 8 years old but, I was just searching for something to describe how I feel my shoulder ligaments feel like they are stretching when I saw your post.  You describe similar details.  8 years on , are you seeing any improvement.

     

  • dawn_05418
    dawn_05418 Kim_S

    Posted

    Hi kim,

    I have been having some of these same symptoms. Have you ever gotton any answers.

    Thank you

    Dawn Cowell

  • judy65735
    judy65735 Kim_S

    Posted

    Kim,

    I do not have RA or Pma. I do have very high anxiety. My body and muscles feel like they r pulling me off my feet from my head to my gluts. My body is bouncing around. 

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