fellow sufferers

Posted , 7 users are following.

HI JUST WANT TO SAY TO ALL MY FELLOW SUFFERERS

THE FOLLOWING.

 YOUR NOT CRAZY

YOUR NOT LAZY

YOUR NOT SEEKING ATTENSION  

AND YOUR NOT SWINGING THE LEAD

YOU ARE ILL.

DO NOT TAKE ON OTHER PEOPLES NEGATIVE

AND NASTY THOUGHTS DONT ADD IT TO YOUR

STRESS LEVAL.

BE NICE TO YOUR SELF .

2 likes, 40 replies

40 Replies

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  • Posted

    Tina,  you are right but I feel guilty every time I have time off work for it. I have worked all my life and I am having great difficulty in coming to terms with this debilitating illness. 
    • Posted

      i know but this illness is trying to tell you something the body is knackered it needs a long rest  . i know a lot of people with this condition and the more you push your self the harder it gets , i tried doing step arobics at the begining of my illness thought i thought if i lost some  weight id feel better, a banged away at it for 3 weeks feeling worse and worse as the days went past, the latic acid built up in my limbs so much  i could hardly move took weeks to recover and i think i damaged myself quite a lot .its a case of the spirit is willing the body just cant do it.
    • Posted

      Hello Ianstokes66, I feel the same way when I have to take off work due to the issues from fibro and I work from home. But I am in front of a computor 8 hrs and that takes a tole on the body as a whole.Sometimes even sitting for a few minutes and trying to get up its a chore so, hang in there and keep talking about it, it does help when you are talking to people that understand.
    • Posted

      I am lucky at the moment, I work for Dixons (Currys PCWorld). I have a great manager and work in a great team. They have been very supportive. If I need any time off, or any type of thelp they are there for me. The main issues I have is that I can't control the pain, I am trying differant combinations of pain killers but I haved found anything that works, I get very depressed because of the pain and that I can't do the things I want to do.
  • Posted

    Thank you.
    • Posted

      no problem we all need to think like this not easy i know

      but we should try and but i our needs first .

       i blame thatcher ,because i dont know if you have noticed but this condition has only really flared up since the mid 90s

      do remember your mum or nan having this i dont

      now i no loads of women will jump on me for this ,  but i really do think that women have taken on to much, far more than our mothers

      the presure is terriable, taking kids to school picking them up doing pack ups , the washing and ironing not to mention shopping taking them to after school activites and going to work as well with all those presures .

      i am not saying that married women shouldnt work  i am just saying ,that in the past mother hood and taking care of the home was  hard physical work but if you did it well you were well thought of , now if you stay home your classed as lazy.

      how many men take care of house kids and go to work . not many .

      i think thatcher put to much presure on women , just because she had nannies and home helps . dosent mean everyone can afford it.

      fibro mainly affects women just wondered if its a kinda of alternative to a heart attack , men over do it and get loaded down with stress ,heart attack .women get this . i 'm making any sense .

    • Posted

      One thing I can say, is that my husband helps alot, he will cook and clean without asking if I need help. Ive been working for 33 yrs only taking off for maternity leave and I am tired.This makes it worse.
    • Posted

      you have a diamond in that husband of yours. more precious and priceless than anything brought in a shop. [but i am sure you know that]

      i get remarks like i v hooverd your stairs for you, iv done this  or that for you. like its a chore, even if we go any where he moans if my bladder is playing up because we have to stop a lot, thats why i put of a lot of stuff i dont need anyone to keep reminding me what a nuisence i am , but i determid to get to those musems ,even if i have to put up with him moaning. 

      by the way magneisum is reccommended for migrains . but remember its a supplement and will take awhile. but i have a friend that had tacacardi fast heart beat so much so that she was due a pacemaker to be fitted

      then she read about magneisum  thought nothing to loose tried for 3 months felt loads better, but went for the pre medical check any way to make sure it wasnt all in her head,

      they checked her out ,told her if it keeps like this she wont need the op , she had had it for 10yrs slowly getting worse, so it was pretty serious, shes now emergrated to newzealand on a parent visa to spend time with her daughter and grandchildren she has just turned 60 and has a much better life now.all from a little mineral

    • Posted

      Good morning,I say never consider yourself as a nuisence,Im sure for years you did alot to make him comfortable. My thing is, I don't like to complain and I don't ask for help. I am going to try your suggestions, it will not hurt. I am going to the Dr. today after work. As long as I push myself to keep going beause it hurts worse to sit. Have a wonderful day.
    • Posted

      iv looked up the differant magnesuim ,most people rec mag malate and to avoid citrate and oxide i prefer to apply it toppicly with the liquid

      myself, but i do take mag tissue salt .

      sitting or standing for to long is painful

  • Posted

    Hi Tina, I ended up in a and e on sat night begging for some pain relief that would work, as I just wanted to take all my pills I had had enough of fighing constant pain! Ii had oramorph, co-codamol and tramadol. My last dose of tramadol I took 4 just to try o take the edge off, then couldnt stop crying for hours, me and my partner went to chester a and e. i explained i just needed some relief even for a couple of hours As i couldnt take any more pain. They did blood test, gave me iv paracetamol, came back a little later saying there was nothing wrong, took out the canula and walked away from me looking disgusted! Why woulld I want to waste my saturday night in a and e crying ffs?! This is the attitude from so many people, its dreadful! Cos thre is nothing to prove our pain, they think we are making it up! I was in such a state i really did want to take everything I had,I felt so desperate. Feel like giving up x
    • Posted

      Hello Shazzywazzywoo, after about the 10th time I was in my Dr's office with pain all over, and after million tests, he just looked at me and scratched his head. I had been sleeping maybe 4hrs per night broken up, trying to walk everyday at least around the corner. Migraines lasting at least 4 days, ended up getting shots in my forhead and the back of my head to give my head a break. None of the medication has helped. I have been looking into some of the ideas that I have received from Tina24537 so we will see. To be continued. Hope all goes well.
    • Posted

      i dont know how you are fixed for cash ,but please try magneisuim bath flakes from ebay they help your muscles to relax its tight stiff muscles that give the pain if you relax them your get less pain the pain.

       what we have is much like when a sports man over does it and hits the wall of pain , just he recovers with fluids and rest the pain just keeps coming with us ,i promise i do understand.its like having the worst ragging toothache all over your body.

       the magneiusum is dear but well worth it i used to buy about £100 pounds worth enough for about 3 months u can buy it in liquid form to.

      i dont have a bath anymore so i buy liquid form and rub it in my legs and thighs . helps cut down on the useage of my rhematisum oil i use that for my back neck and trunk and arms.

      i dont use the magneisum liquid on my body because putting it straight on to the skin is quite sore its a kinda of salt so you can imagine ,but in the bath its fine .

      the protein shake i mentioned yesterday , is whey protein shake by solgar vitiamin company . when iv checked my bank statement i shall be ordering some . next week .hopefully.

      at the moment its my bladder given me hell

      i am sweating so much with this heat i am constantly thirsty so i am drinking hugh amounts of decaff and water ,and peeing about 3 times an hour, its driving me mad and starting to hurt .

      i believe you as i am sure everyone on this forum does , iv been in so much pain iv even considered trying weed ,its supposed to be very good for pain , but i am abit of a coward .so i stick to what i am doing for now it seems to be working.

        dont forget to try a self help hypnoises cd for stress there not very expensive  do it every day twice aday if you can, i promise they do help because your relaxing the tense muscles its hard at first but with practise it comes easeir and there is a reall bennifit.please try i know its hard you get so wrapped up with the pain you cant think straight you just want it to stop .

    • Posted

      thanks Andrea, please let me know how it goes!  I know how bad migraines get, its awful and I am lucky I dont have them as well. They only lasted a short while with me thankfully
    • Posted

      i know Tina I have spoken to you before. Unfortunately money is tight, so I am watching every penny. Being off work since last sept has really put me in it financially, but if I can get some I will. I want to try weed too. I know it helps ms sufferers I just dont know where to get it! Lol and my children are against me taking it too whih doesnt help. You would think after seeing me crying so much with thepain that they may be a bit more understanding, but no! I take hemp seed oil but its not doing anything for me, just my dog
    • Posted

      i know, its because i wouldnt know where to buy it safley that i wont try it .

      ,yes iv heard that people with ms and athritus use it with great bennifits, sorry if i keep banging on i dont mean to i just want to try and help , peope sort the wheat from the chaff ,iv tried so much stuff over the years ,

      its been an expensive journey to where i am now i just try and help others so they dont have to waste so much money trying all kinds of quirky and sometimes daft stuff.

      i havent tried hemp oil , but iv got some hemp milk havnt tried it yet .

      if i repeat myself its because i forget who iv given advice to i am not meaning to be annoying . i will try and make a note of yr name so i dont reapet myself , but i do have a memory like a sieve at the moment .

      kids just think that your going on mines the same even my husband try not to let it get to you .

    • Posted

      The way my memory is not days, my daughter told me I sound like her grandmother, my mother inlaw repeats every few seconds. There are cannibus stores for medical purposes, I cant do it due to work.
    • Posted

      lol dont worry you are not being annoying at all! I would like to try some of the things you have suggested, but need to wait till I have enough money first. Had a good day yesterday, so inevitably suffering bad today, but it was worth it! Need to enjoy the good days when you can eh?! X
    • Posted

      WHAT IN THE UK  , never it might work!  then what would the drug companies do to make money
    • Posted

      ok glad you had a good day. i am waiting for cooler weather so i can get out i get dizzy in this humid heat.

      i am desperate to get to the york victorian  living musem .

      and around october i want to get to the musem in newcastle where the cathrine cooksons are filmed although its not that far from us ,about an hour and half

      , i couldnt do the journey and the visit and then come home it would kill me so will have to make a 3 day trip ,stopping over on the first night

      god how sad, i feel about 90 when i say things like that. so got to get a few coppers together .still not everyones idea of fun , but i cant get enough of social history, might look and see if my grans house is still there where she was born in 1911 .

    • Posted

      sounds great hope you can get out and do these things. Fr me it is national trust gardens. I love them so much! Want to go to bodnant, tatton park, dunham masseyy, chirk castle, erdigg, powys castle. We went to alton towers on tues and still havent moved since we got back! Not surprising at allm but I wanted to take advantage of a good day, they are very few and far between these days, so it was worth it, kinda. My vboyfriends first tme to a theme park, I just love it there, makes me feel young lol. We hhave manchester ship canal to tomorrow so I am hoping I can get out of bed by then, havent moved from my bed since tuenight apart from going to the loo and only two cigs yesterday! The pain was worse than the desire to smoke. I just may ask my son to get me some cannibis to try, but dont want him to get caught! Its difficult, but. Would really like to try it, everyone reckons it will defo help, even my gp!
    • Posted

      god thats alot,of stuff, .  wish they would allow it . i used to smoke but my head spins like hell if i smoke now, the same after one drink i have no vices left i dont arf miss my whiskey.
    • Posted

      hi andrea  found a U S site has loads of sraight forward info on transdermal magneisum , and you can order from them as well . transdermal mean absorbs thru skin when applied topicaly to build up the lacking mineral avoiding the stomach and the laxative problem some sensistive people have .hope you feel up to taking a look ,and that you find it helpful and interesting ,please let me know. have a  smashing day . great big gentle hugs .

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