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Female urethra problems

Posted , 7 users are following.

heather96919
heather96919

I am wondering if anyone can help me....I have been to a number of specialists and they keep giving me the run around...I have basically had problems with my urethra for 2 years now....it will feel fine for a couple of weeks an then swells up and feels like something is stuck inside it and feels very sore inside the tube...they said could be a diverticulm or structure but the MRI showed up clear so now I'm very confused and worried 😩

0 likes, 18 replies

18 Replies

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  • deb2722
    deb2722 heather96919

    Posted

    If it's a stricture you will find that you need to go to the loo all the time, but that you can't get much out when you go (very restricted flow).  I don't know what a diverticulm is, but hope that helps.

    • heather96919
      heather96919 deb2722

      Posted

      Yes that's how it feels when it flares up...but would it then settle for a while?? It flares for a week and then calms down for a few days an then flares up again??

    • robert02169
      robert02169 heather96919

      Posted

      NOBODY KNOWS UR BODY BETTER THAN U -DO NOT LET THEM DISMISS U-U MUST GET PAST THE DESPAIR I GUARANTEE IF U SIT DOWN AND COME UP WITH A PLAN OF ATTACK U MENTAL FOCUS WILL SHIFT-
  • robert02169
    robert02169 heather96919

    Posted

    HEATHER I DO NOT KNOW WHERE U LIVE BUT IF UR IN THE STATES I SUGGEST U CONTACT THE MAYO CLINCS URUGOCIAL DEPT-THEY R EXTEREMLY HELPFULL-I HAD TO HAVE AN SPC INSTALLED ABOUT A MONTH AGO I THOUGHT I HAD ASKED ALL THE RIGHT QUESTIONS PPRIOP TO THE SURGERY -SPOKE TO MY SURGERON ABOUT WHAT TO EXPECT CAME TO DISCOVER HE WAS LESS THAN FORTH COMING -HE DID NOT GIVE ME ALL THE THINGS TO EXPECT--HAVING SAID THIS I DECIDED TO TAKE THINGS INTO MY ON HANDS-U HAVE TO TAKE CHARGE OF THE SITUATION-OR ELSE U WILL BE CONSTANTLY FRUSTRATED -TO THAT END I SOUGHT OUT A SUPPORT GROUP -CAME TO FIND OUT WE DO NOT HAVE ANY IN MY AREA SO I AM IN THE PROCESS OF WORKING WITH MY SUPPLIER OF MY UROGICAL NEEDS TO DO SO-AGAIN FOUND OUT THERE R MILLIONS SUFFERING FROM UROGICAL ISSUES-AND THIS POPULATION WILL CONTINUE TO GROW AS THE POUPLATION CONTINUES TO GROW-BELIEVE ME I APPERCIATE UR FRUSTRATION. ITS ALL ANOUT THE QUALITY OF LIFE-WHICH THESE ISSUES STEAL FROM US-I KEEP A DAILY JOURNAL SO I CAN ADJUST MY GAME PLAN ACCORDINGLY-ILL BE DAMMED IF I WILL LET MY SITUATION STEAL THE DAY FROM ME-MIND U I HAVE DOWN DAYS-IN CLOSING THE BEST ADVICE I CAN OFFER U IS TO PUT TOGETHER A PLAN OF ACTION TO ADDRESS UR SITUATION DO NOT LET THE ISSUE MANAGE U-U MUST MANAGE IT-JUST REMEMBER WE TEND TO SEE THINGS IN ISOLATION-REMEMBER U R NOT ALONE-I WILL HOLD U UP IN PRAYER-GOD BLESS-IF I CAN BE OF SERVICE TO U DO NOT HESITATE TO REACH OUT -A FELLOW CLUB MEMBER--BOB J
    • heather96919
      heather96919 robert02169

      Posted

      Thankyou so much, I am in the U.K. And they have given me the run around for 2 years, I KNOW something is in my tube as I can feel it and sometimes it gets really sharp, I don't think they have done all the tests that they should have!! I think I will look for another opinion from different specialist as this one is just saying he will try and dilate my tube an hope this helps!!

    • deb2722
      deb2722 heather96919

      Posted

      If it is a stricture then it is all the time - it eventually gets to a point where you can't wee at all, then an emergency dilation or a supra-pubic catheter are the only solutions.  If it goes away and you can wee normally it doesn't really sound like a stricture.  

    • deb2722
      deb2722

      Posted

      Forgot to say - the dilation does 'cure' the stricture, but it tends to come back again ( the supra-pubic catheter is just a temporary measure until the dilation).

    • robert02169
      robert02169 heather96919

      Posted

      JUST FYI ALL THE INFO I RECD CAME FROM THE UK THE US IS DEVOID OF ANY REAL SUBSTANCE REGARDING THIS ISSUE ON LINE-I APPERCIATE THE FACT THAT U HAVE TO DEAL WITH NHC--AS I SAID U KNOW UR BODY U HAVE NO CHOICE BUT TO PUSH ON DONT GRT DISCOURAGED -BY THE BY IN MY YOUNGER DAYS I SPENT A LOT OF TIME IN THE UK AND SCOTLAND LVD EVERY MINUTE OF IT--AGAIN IF I CAN BE OF HELP CALL ON ME-PLS KEEP ME POSTED ON UR PROGRESS IF ITS APPROIATE HAPPY MOTHERS DAY UR US BUDDY
    • robert02169
      robert02169 deb2722

      Posted

      IN MY CASE AS A RESULT OF A RADICAL PROSTECMY 20YEARS AGO AND SUBSCOQUENT RADIATION TREATMENTS I HAD TO MAKE A DECISION GET THE SPC OR CONTINUE TO GO INTO HOSPITAL TO OPEN IT UP AGAIN AND THE LEAKAGE THAT CAME WITH IT THE LAST THREE YEARS HAVE RESULTED IN MY DECISION😊

  • Insomniac87
    Insomniac87 heather96919

    Posted

    I have this where it feels like something is in the urethra. I've had it now for 5 years. I had to have a urethroscopy with hydrodistention. Where they place a camera inside your urethra while your in twilight sleep. They went clear up into my kidneys to check everything out. The hydrodistention was where they fill the whole bladder full of a water mixture to check for interstitial cystitis. Thankfully I did not have I.C. however, I was diagnosed with female urethral stricture disease. Apparently my urethra is a size 4 french. Most average adults size urethras are around a 31 french... huge size difference! Mine now finally comes and goes. I had it very bad for the first 5 years I had it. I had given vaginal birth then a year later had my gallbladder removed. Then I developed the annoying urethra problems. I am not sure if it was due to having a catheter placed or what but I am assuming that's what lead to the urethra tingling sensation. I know that there is now times where my urethra bugs me too much and other times very minimal. Also now after just having my second son I noticed there is times when it doesn't bug me at all... I also notice sometimes after pooping it throws my urethra into a spasm. It seems like even though a urethral stricture is a structural problem that it also ties into your many nerves thats tied into that area. I was diagnosed with female urethral stricture disease which is claimed very rare. I hope this info helps you out at least somewhat... 29 female USA

    • heather96919
      heather96919 Insomniac87

      Posted

      Wow!!! Thankyou so much for that! Everything you said is so similar to me! Even down to the pooping causes it to flare up sometimes!! I had my third child 3 years ago and to start off with it was constant for about a year, now it seems to come and go! The urogynae that I last saw said when he felt my urethra it felt rigid which made him think I have a stricture, I'm currently waiting for a cytoscopy to have a look in there, is there anything you do to help the horrible feeling when it flares up?xx

    • Insomniac87
      Insomniac87 heather96919

      Posted

      You're very welcome! smile There isn't a whole lot to combat the flare ups but what I do is try to walk a lot. Trying to stay on the move or using a heat source on the outside area or even a massager till it feels numb...

    • heather96919
      heather96919 Insomniac87

      Posted

      Can't believe it that's one thing that really helps is to keep moving till it seems to pass!! So so strange and horrible 😣😣

    • Insomniac87
      Insomniac87 heather96919

      Posted

      I believe when it flares up it goes into a spasm... It has just gotta be tied into nerves. There is several nerves that run right in that area. So I really think on top of having the urethral stricture that it spasms due to the nerves and also possibly some pelvic floor disfunction going on.
    • tinabee68
      tinabee68 Insomniac87

      Posted

      I have been looking at your conversations with Heather96919 and I can’t believe it. Your conversations are like me telling my doctor my symptoms! Thank you ladies you have helped me so much and put my mind at rest I thought I was going crackers. I have had a ultra sound scan and are awaiting the results but I have got the same problems as you have been say
    • Insomniac87
      Insomniac87 tinabee68

      Posted

      You're welcome tinabee68! That's why I am on here to try to help! Best of luck to you! smile

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