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Fevers of unknown origin for 2 months

Posted , 8 users are following.

Kdb2006
Kdb2006

At first I thought I was coming down with a illness of some sort. Two weeks of fevers, chills and sweats, fatigue, and extreme tiredness no other symptoms made me start fearing the worst. My husband started nagging me to go get checked out after two months of constant fevers. went to the er. They could find nothing wrong. They tested me for hiv, AIDS, hepatitis, and mono, all negative,  they also did tests for bladder , kidney, uti, infections, those were all negative.  My cbc was determined normal. A few days later I had appointment with my familydoctor. Told him about thee fevers ranging 99-102 degrees f,  chills and sweats. He was baffled. My red blood count was normal as well as the white. He decided to do a sed rate. The sed rate read as 12 mm/hr.  So that was normal.  A lot of cancers and auto immune diseases run prevalent throughout my family.  So I am beginning to get worried.  He put me on a two week course of antibiotics with a cbc after one week of antibiotics. Duracef is the antibiotic. The Cbc along with urinalysis is showing abnormal now. My red blood cell and my white blood cell are normal but have dropped to the bare minimum of what's Normal.  My urine creatinine is low.  Amylase and lipase are high now. And my urine urobilinogen is very high. My chest X-ray was clear.  I have been having high abdominal pain that radiates through my back. Does any one have any idea or clues that may be wrong that I should bring up to Doctor?  I'm I'm going on three months of fevers and becoming very exhausted!

1 like, 41 replies

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  • kristyk
    kristyk Kdb2006

    Posted

    What did your doctor say about your blood results? Sometimes they need to test a few times before they can diagnois. I have several autoimmune diseases and know it takes a wile sometimes. Have you seen a Rheumatologist yet? They would do different labs like your ana. They do extensive labs. If you family has autoimmune diseases its often considered hereditary.im definitely not a doctor but I think it makes sense. Fatigue, low grade fever, your creative, and many other of your issues should be addressed by a rheumatologist who can also rule out many of your problems. I hope this helps a little. You may need to be put on a short time with a steroid like prednisone. Good luck to you and god bless you
    • Kdb2006
      Kdb2006 kristyk

      Posted

      No I have not seen a rheumatologist yet. I see dr on Tuesday, he is absolutely baffled. And swears the antibiotic will work. 
    • Kdb2006
      Kdb2006 kristyk

      Posted

      I did have a ana a few years ago it was 1:80 read normal, maybe I should have it repeated?
    • kristyk
      kristyk Kdb2006

      Posted

      I think it couldn't hurt to check your Ana again and maybe ask for a referral to a rheumatologist. They do many labs that most doctors dont routinely do. At this point you have suffered long enough and you have every right to ask to see whatever specialist you want. If the rheumatologist orders the labs like Ana will do with tests a little differently. Like I said I'm not a doctor but if your doctor is baffled he should recommend someone who maybe can help you. I'm sorry if I seem a bit aggressive but I hate to see people like you go on suffering for so long
    • Kdb2006
      Kdb2006 kristyk

      Posted

      I will definitly ask for a refferal then. I get tired of feeling this way. Lol. I did go ahead and make a appointment with my gi dr as well to express my liver and pancreas concerns. Hoping for some answers or closer to a answer next week. 
    • kristyk
      kristyk Kdb2006

      Posted

      Hang in there and let us know how your doctor appointments go.

      God bless you

      Kristy k

    • Kdb2006
      Kdb2006 kristyk

      Posted

      Well fam doc appointment was today....he did not want to listen to a word I said. He had me repeat the amylase and lipase test to see if they are still elevated. Said my ct scan on Monday showed my pancreas as being normal. So he is at a lost. He threw in a thyroid blood test in the mix to add a little zest. He said something isn't right with fevers every day, but wbc and rbc are normal. So sent a referral in to a dr who is a oncologist, hematologist, and a internal med dr. Still seeing gi dr Thursday. Still waiting on. A appointment date call from the oncologist, hematologist, and internal specialist.
    • debbie75601
      debbie75601 Kdb2006

      Posted

      No ANA test? Maybe one of the other specialists will do it? I'm sorry family doctor wasn't more helpful, but did you expect him/her to be really? I find they ask a few questions, act like they are listening, write a few things down, and throw meds at you, and rush you out. Terrible that medicine is so specialized nowadays! Let me know how your other appointment goes! Hope you get figured out and feel better soon😊
    • Kdb2006
      Kdb2006 debbie75601

      Posted

      Well gi dr doesn't suspect pancreas, she also redid lipase and amylase levels, and test for hep c. Appointment on Monday with obgyn. Gi dr thinks I have fluid from a ruptured cyst in my abdomen. I see oncologist, hematologist, and internal medicine dr on Wednesday. Fingers crossed! 
    • debbie75601
      debbie75601 Kdb2006

      Posted

      Well, at least you seem to be getting somewhere! I need to see gyno and have all my girl parts checked. Was supposed to have ct scan of bladder and kidneys Tuesday, but insurance hasn't approved it yet. I hate my insurance! I'll keep my fingers crossed for you, keep me posted!
    • kathleen39
      kathleen39 Kdb2006

      Posted

      Hello Kdb

      ​I have been reading about you on here and i wonder if you should have a thyriod Function Test done (blood test) has you could have a overactive thyriod thats a autoimmune daese too.i have this and at the moment i am waiting for medication and my body is attacking it self and i have weird things happening to me.

    • Kdb2006
      Kdb2006 kathleen39

      Posted

      Just had a tsh ran it was 1.910 . I had hypothyroidism and poof out of no where i was back to normal. I was weaned off the levithyroxine and was told I do not have it any more. That was four years ago. 
    • Kdb2006
      Kdb2006 debbie75601

      Posted

      well this weekend was no good. Sunday I was back in the hospital. Out of nowhere I started urinating blood and blood clots. They did another urinalysis, when dr came to tell me results, he high fived me and congratulated me on having the worst urinalysis he has ever seen. He immediately reffered me to a urologist . I am on antibiotics and stuff untill I see him. I got the call from his office yesterday. His receptionist wanted to know where to collect my records from. Told me she would call later. Apparently after he got my results and viewed them he said I need to be seen ASAP! But of course only opening they have is Wednesday of next week. 
    • Kdb2006
      Kdb2006 debbie75601

      Posted

      Well hematologist/oncologist ordered Ldh blood work, and creatine values, and a upper ct scan. He found a few swollen nodes I had no idea about. My throat and arm pit both left side. He said it is probably not a leukemia or a lymphoma but he wants to make sure. 
    • kristyk
      kristyk Kdb2006

      Posted

      Oh my goodness you are having too many issues to deal with at the same time. I am so sorry. At least they are checking you out from head to toe and back again. You have got to be totally exhausted. Your social life is alot like mine, doctor appointments with different doctors almost every day. I just wanted to say that I am praying for you and that the doctors figure out what is going on with your health and body. I hope you get the to feeling better soon. I wish there was something that I could do to help you. Just try to rest and take care of 'YOU' I know that's easier said than done. I'm sending prayers for you and your family and I will be sending good energy your way. Hang in there and God bless you!

      Kristyk 💕💕💕💕

    • debbie75601
      debbie75601 Kdb2006

      Posted

      Wow! So many things! Sounds like me! So what's next for you? Fingers crossed for good health! I finally had my cat scan today of kidneys and bladder. Supposed to be taking antibiotics daily, but think they have made me feel yucky! You are in my thoughts and prayers! Stay strong and keep us posted!
    • Kdb2006
      Kdb2006 debbie75601

      Posted

      well, Ldh was normal at 132, also upper ct scan showed no lesions, or internal swollen nodes, so oncologist ruled out leukemia and lymphoma. Now he is suspecting possible AUto Immune issue. Getting ANA test done tomorrow, and returning back to family doc. I'm taking my concerned mother as back up. Oncologist wants family dr to do a head xray and head ct scan to rule out any chronic infections such as a sinus infection. Oncologist is discharging me as a patient, but I can call to get my Ana results. 

      Urologist ordered a IVP. And a bunch of pelvic Xrays. It was interesting to see a fluroscopy in action. He is out of state until Friday so probably will not hear anything about results until next week. He has also scheduled me for a  uro dynamics testing and a cystoscope on 27th. I'm nervous because he doesn't use any anesthesia for these test, hopefully it is not too bad. 

      Gi specialist called and now I have to also repeat my lipase test again because it came back abnormal....Again. This is the third lipase test that has been elevated. Not elevated the three fold that would normally indicate pancreatic problems but just moderately high. 

      Mean while this week has started out with 100.9 f fevers. And since my last reply my headaches are not only constant instead of coming and going but now I will get a fiery burning sensation in my head and face on one side off and on. It is painful to lay the affected side down on even a pillow. My legs have been extremely weak and often get "jello" legs off and on. My eyes and mouth have been so dry. I have been drinking more liquids now than ever because I have never been so thirsty on my life. And now my shoulder joints hurt so bad and my arms are getting locked up. My husband and I have nicknamed this t-Rex syndrome. Lol. Another issue I am having again is cold chills. The brain fog is getting worse. My mother commented it is worse than "pregnant brain". I also feel my self slipping in to a depressive state. I am tired of being sick and tired. 

      Can't wait to find some one to help me! I am asking tomorrow to be reffered to a Rheumy for a consult and getting another family doctor that may actually listen to my symptoms, rather than tell me to Sh, and tell me it's not important! 

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