Fibro Fog?

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Hello all

Just wanted to share something..so far all my fibro symptoms have been physical, all the usual pain symptoms and lack of sleep. I know I get my words muddled up and am getting more forgetful and clumsy, but had a horrid thing yesterday evening. I couldn't remember if I had eaten dinner, went to bed early and had all these waking dreams and I sort of lost the plot. Just couldn't remember where I was, so difficult to explain but I felt quite scared about what was happening. Feel better this morning and putting it down to sleep deprivation. Can anybody else relate to this? Would really appreciate some comments. Many thanks.

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  • Posted

    HI Sarah, just wanted to support you, I have never had symptoms that bad but have had weeks of bad sleep which really makes you feel disorientated so so awful, the past 6weeks have been listening to sleep tapes, the paul mckenna tape downloaded in apps, its brilliant and really seems to have helped,

    I wish you a peaceful night sleep tonight

    best wishes, christine

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    • Posted

      Hi Christine

      Thanks so much for your kind words. Yes I think 'disoriented' pretty much sums up how I feel at the mo. I will be buying the Paul McKenna tapes as soon as I finish here. Thanks again, and hope you continue to sleep a bit better.

      All good wishes

      Sarah

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    • Posted

      good luck sarah, really hope you start to feel better, I Am going into hospital tomorrow they are going to moniter my sleep, saw a lovely consultant who thinks he maybe able to help me with the pain at night and I am more than happy to try anything that might help, so fingers crossed x

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    • Posted

      Hi again, well that sounds promising, good luck! I wonder what they will come up with? At least you have someone on your side and being proactive, that has to be a good thing. Hope all goes well x

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    • Posted

      i want through a patch of not sleeping it was to do with the death of my mum, then i seemed to be ok,then i want through another period of not sleeping only getting 3 to 4

      hours,so my gp put me on phenegan 4 x 5ml but it was to strong,so i went down to 2 x5ml which was better for me, my gs put me on it again in the last 8 weeks i have been getting 3 to 4 hours,so i am sleeping during the afternoon or evening one i went to sleep at 10.30pm and i didnt wake up till 1.30 am on the thursday. judith

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  • Posted

    This could also be symptoms of Perimenopause depends on how old you are. It can start in your late 30s.

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  • Posted

    possibly sleeping next a router, elctronical devices, those electronic waves like 5g do u harm.

    Also maybe switch to keto (the diet) if not doing so, excess sugar causes all the brain fog and muddled thinking.

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  • Posted

    Sarah Fibro fog is very real. I often get like this. Can't remember short term memory, sometimes I find I'm just looking at something figuring out why I came to this point, and getting frustrated because I can't remember. This is worst when I'm anxious about something or stressed. Perhaps start writing a diary to see when these things happen? I know it helps me. But Sarah you are not alone.

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    • Posted

      Bless you..thanks for your help. This is the first time I have found this horrible illness a bit scary. So your support is really appreciated. Will think about writing a diary, feel a bit too frazzled just now, but it's a good idea.

      Thanks again and all good wishes.

      Sarah

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  • Posted

    Hello Chris

    Many thanks for your reply. We don't have a mobile signal here (middle of nowhere), just have a lap top in the living room, so that's not an issue. Am very interested to hear what you say about Keto though. Have been toying with the idea of doing it, but am not a big meat eater, so not sure how I could get it to work for me. However, I completely cut out all wheat/gluten 1 week ago and am just wondering if this is some sort of reaction? Hmmm....interesting.

    Hope you day is good one and thanks again,

    Sarah

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    • Posted

      THEY are the main foods that can trigger off fibromyalgia i don,t have sugar in anything at all,and i am allergic to caffiene,everybody is different with food and allergies.

      specially glutensome friuts and veg potatoes,and tomatoes

      i am also allergic to sweetcorn and pastery plus i don,t eat

      tomatoes anymore ,i have lost alot of weight about 6 stones

      but it does,nt matter what i eat that does,nt trigger of my

      fibrmyalgia it seams to me,if i i am just trying to shop.or have a few appointments like i have on wednesdas and thursdays.It does,nt help with the other problems i have got

      which is clonus.neck and lower back,both hands,feet calfs,

      everything that i pick up all feels very heavy,dropping things

      and losing my balance , judith

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    • Posted

      Can i ask what your main macros look like:

      Like daily

      fat?

      protein?

      carbs?

      even if you avoid nightshades and do things sensibly, eating lots of healthier grains and green vegetables can still be too much sugar.

      Reason why keto is so effective and bang on is because its limited and your forced to use fat instead of sugar,

      Beef fat, liver, beef are excellent choices.

      I have lots of compassion for people suffering, and hope they ease symptoms and eventually reverse if possible.

      It sounds like you'll need a very disciplined diet and muscle relaxation type of protocol,

      Things like chamomile tea and green smoothies is what i used to think health was, but after doing keto macros and going to ketovore ive felt true anti inflammation in joints, muscles and anxiety.

      Sounds like your suffering with excess inflammation which is damaging joints, muscles and its contributing to muscle stiffness and vertigo like symptoms, things like sauna/steam room, cold showers, yoga, endurance training will give your body goodness as well.

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    • Posted

      for breakfast i have cereal granola and semi skimmed milk

      lunch will be salad, yogurt ,i drink alot of water about a 1000ml aday then i ave a cooked tea if i drink coffee or tea it as to be caffiene free also i have yogurts,fruits grapes,strawberries,peaches,melon chicken and it is not vertigo that has been checked i have seen so many consultants in southport hospital,aintree hospital,walton neuro had muscle and conductions test it showed i had clonus which is in the same group as ms and parkinson,but it is not coming from the brain,it is coming from my spinal cord,my fibromyalgia started like i had the flu,so i moitored it for a few months thhen went to the gp he did a full exeminstion from top to bottom and all blood test everything was okit is always vitamin D MY BODY CAN,T MAINTAIN apart from my vitamin Ddue b/t in sept judith

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    • Posted

      With all my health knowledge i'll give you a run down of what i see from what you've said.

      Granola-inflammatory grains, vegetable oils weaved into ingredients, modern milk has none of the original fat soluble vitamins.

      Fruits-Excess sugar, bad for liver. May contain some antioxidants and vit c.

      Teas are detoxing but your diet is lacking a full complex bio available source of vitamins, minerals and fats.

      I consumed perfect variations of paleo, vegan and bodybuilder like diets.

      All i felt inflammed, sick, brain fog.

      Vegan i had temporary highs off the sugar, but had dips, and was extremely, inflammed. (i'll post a pic below of myself on vegan, i looked athletic but i was very ill).

      Go keto/carnivore it will improve ur inflammation and pain. trust me

      None compare to keto/carnivore.

      with organ meats

      with a k2/d3 spray and some magnesium chloride.

      Change your diet i reckon, your current diet is inflammatory and low fat, its lacking vitamins.

      I reckon you'll feel tired, stiff and sore, bad mood, living off sugar and low fat and not much vitamins, the diet your on is like the special K diet some women did, with cereal and fruits and yogurts.

      image

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