Fibro Fog?
Posted , 10 users are following.
Hello all
Just wanted to share something..so far all my fibro symptoms have been physical, all the usual pain symptoms and lack of sleep. I know I get my words muddled up and am getting more forgetful and clumsy, but had a horrid thing yesterday evening. I couldn't remember if I had eaten dinner, went to bed early and had all these waking dreams and I sort of lost the plot. Just couldn't remember where I was, so difficult to explain but I felt quite scared about what was happening. Feel better this morning and putting it down to sleep deprivation. Can anybody else relate to this? Would really appreciate some comments. Many thanks.
0 likes, 37 replies
charlie19 sarah29978
Posted
Oddly enough Sarah all of my symptoms to date have been physical too, and of course the associated anxiety and worry, however I have been lucky that the brain fog they talk about is not there. When the anxiety eases I can focus quite well on matters and it takes my mind off the horrible other symptoms.
However sleep is a problem. The old tired but wired feeling when I first get to bed and then broken sleep. I was on melatonin for a spell which helped. Vivid dreams are also a feature....which frequently wake me up!!!
sarah29978 charlie19
Posted
Hi Charlie
Thanks for your note. This whole dream thing is a big deal isn't it...! I really feel I am awake and actually doing all the stuff in my dream, so weird (and draining). Will look into melatonin.
Thanks again, am finding this forum really helpful, it really is a horrible thing to live with, isn't it?
Take care and best wishes
Sarah
judith86633 charlie19
Posted
the only problem i have with sleep is i go off with no problems,but things are happening during te night,i am fining that my tablet is on my bed,also my mobile phoneis on the bed,and even my book that i am reading,also i t ,and fallen in my think i may be sleep walking,and also falling over.and only getting 3 or 4 hours sleep,so he has put me back on phenegan,and it does work,the maxium dosage for me is to strong,so i only taken 2 x 5ml
which is just right.judith from southport
judith86633 sarah29978
Posted
yes i have had it a few times on various things like some time i will forget if i have taken my fluoxatine i did that 3 days in a row,or someimes i will forget how many spoof fibronfuls i have taken,it can also come on if you are reading a book,you can forget if you have read that page,so you read it againor like i did the other day i was going to put a lemon and lime water on my cereal instead of milk,i alsomfine will effects my spelling,you think you are going nuts or crazy.judith from southport
at the moment i have had 3 bad days of fibromyalgia i have got 23 symptoms
the latest being the burning in my shoulders
sarah29978 judith86633
Posted
Oh poor you 23 symptoms! The burning pain in my shoulders is a biggy for me, it never really goes away grrh... Must admit, I really thought I had lost the plot yesterday, so thanks for sharing and hope you have some better days soon.
Take care, Sarah
judith86633 sarah29978
Posted
i feel better than i did on wednesday,thursday and saturday,i have put my pain patches on,taken my cocodamol 30/500 and put voltarol all over my arms and hands,plus my quads and calfs,still got the burning ,but i have just put my icebag on it and that is helping. thank you judith
christine26761 sarah29978
Posted
my fibro fog at the moment is shocking..i had a pre operation meeting at hospital through the week where you get interviewed by all the docs etc..im having a knee replaced, had one done last year too,...the same thing happened..they give you a test..to remember three words they tell you then they keep talking to you and you have to recall them at their will i got only 2 right ...i was sooo worried having to do this for weeks prior as I just didnt know what to expect the first time..i knew what to ecpect this time so I was worrued d about it all week...grrr...i keep saying to my husband 'whats their name again.. .whats that show called again." ..grrrr...then I worry about my mind forgetting things,....but I do realize it happens something sever when im worrying about something...hope it helps sarah....
PS DONT FORGET TO REMEMBER THIS...❤lol..be blessed have a lovely day..
chris78293 christine26761
Posted
question whys the knee being replaced?
are all your joints inflammed?
judith86633 chris78293
Posted
I HAVE fibro-fog,when i am reading i sometimes for get if i have read that page so i read it again,sometimes i could be reading a page get half way down then read the same lines again,the other day i was doing my cereal went to get the milk out and i got out the fruit juice,and was about to put
it on my cereal. it also effects my writing and my spelling.like just doing this to you i have i have made alot of spelling mistake,so i have had to change the words or letters,oor sometimes i forget to take my fluoxatine .i did that for 3 days in a row,i a knew i had,so i put a note on my medicine cabinet,just typing the last few lines i have made 8 spelling mistake,and had to redo that word. judith
christine26761 chris78293
Posted
i have bone on bone I also have arthritis, but fibro doesnt help i kept getting muscle spasms/cramps in my legs..grr . ended up in hospital for a month with the first knee hoping ill be out in a few days days this time which is the usual...❤
judith86633 christine26761
Posted
have you tried tonic water for your cramps,i have physio twice a week first i go on the leg machine on a tuesday for an hour,but it helps,then on the thursday,it is treatment day it could be my neck and upper back,it could be my lower back,they can,t operate on either,because i am allergic to injections and anasetics it could be my left leg,which has 5 things wrong with it so that is in aboot,plus it is the meds that i am onbecause i also have clonus
good luck for your op. judith from southport
christine26761 judith86633
Posted
thanks Judith I have tried tonic water..it did other things to my blood, such bloodshot eyes tooo , I had to stop however, I take heaps of magnesium but I was asked to go off all supplements before my tkr..when they saw how bad my cramps were and they said I didnt have to stop taking them grrrrr, it took ages for them to build up again in my system...all good now thank God..I know better now for this op..thanks for wishes, be blessed, have a lovely week...gentle hugs from Australia.❤
judith86633 christine26761
Posted
so the tonic water made your eyes bloodshot,did anybody tell you that it was the tonic water,because another sign with f b m a gis your eyes,there is a poster on the site that tells you all the different symptoms in the head eyes every part of your body,best wishes and good luck god be with you,hugs from judith in southportxxx
christine26761 judith86633
Posted
yes a professional told me it was from tonic water, the magnesium works a treat..i have it in tablet, drink and topical..it really works well..I guess taking that much its bound to..lol..i just have to rub a bit on the bottom of my feet and its really great
a tip for anyone else who is reading this : I used to put it all over my legs whenever I had spasms in my legs the therapist said to just put it on the bottom of my feet, it works really quickly too..❤
judith86633 christine26761
Posted
i ave spoken to you before about the tonic water and i had a word with a consultant and physio,and it would not have been tonic water,so have you been to see your gp or an eye specialist to have it confirmed that it was the tonic water,i always have 2 bottles one in the fridge and the other in a cupboard,i hope your eyes are better soon,i am going for a full blood test count on august 23rd,evry time i have one done it is always the vitamin D that my body is very low,it as been 35,it should be 75, I ave family out in australia,judith from southport
christine26761 judith86633
Posted
yes the dr told me at the time it was a reaction from the tonic water...it was a couple of years ago now...actually it happened about 10 years ago too, i just forgot at the time of taking it again...would be good, however the magnesium works a treat..its really only epson salts..be blessed Judy...thanks for comments..❤