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Fibro pain or something else?

Posted , 13 users are following.

nonickname1
nonickname1

I've had increased (tremendously) within this last year of Fibro pain. I truly don't believe it is all due to Fibro. Does anybody hurt from the top of their head, to the bottom of their feet? I mean everything hurts. My calves, elbows, toes, fingers, horrible headaches, temple pain, eye pain, neck pain, just pain! Everywhere. I am on medication because I simply will not live in this sort of pain. I used to be very athletic, but I can't even get out of bed w/out groaning like I am 90 years old. I am 60, female. I began physical therapy a few weeks back, and the amount of exercise I do, a gnat could do it, but for days following, it feels as though I've lifted 20 lb. weights. My entire biceps, triceps, everywhere is just ridiculously sore and painful. Again, I know healthy pain as opposed to this weird pain. It simply should not feel like this. Any other people experience this? Have had Fibro, Chemical Sensitivity, Chronic Fatigue going on 16+ years. I've had mri's, cat scans, blood work every 3 months and yes,I do get tested for deadly black mold as well. Many thanks.

4 likes, 25 replies

25 Replies

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  • jacqui1980
    jacqui1980 nonickname1

    Posted

    Hi yes I have fibro also and I have this type of pain it is horrid I have been the hospital and had every type of test and scan going and all thy say it is fibro but I think there us more going on if u want to speak in more detail inbox me if u want xx
  • donna76140
    donna76140 nonickname1

    Posted

    Hi my doctor who is awesome has told me physical therapy isn’t good for fibromyalgia it just aggravates it acupuncture is apparently the best it gets the blood flowing to the spots that hurt the most I’m like you I think it can’t be fibromyalgia just fix me fix what is causing all this pain but you symptoms are very common for people with fibromyalgia I’m

    With you on the pain medication I can simply not fuctiom with out them I have ordered some hemp oil to try and help me with the pain some good reviews some not but at this stage I’m willing to to try anything my doctor put me on milnacipran which is meant to be a wonder drug for fibromyalgia but it just doesn’t agree with me it put more serotonin in your brain and is meant to block out your pain my neck MRI has come back with a few things that could be causing my neck shoulder elbow pain so now I’m having a whole back MRI so I can actually see what’s going on hope I’ve helped you a bit with some information wishing you all the best but if I was you I’d definitely stop the physical therapy and start acupuncture give it a go can’t do much worst than what your going through 😘

    • donna76140
      donna76140

      Posted

      I don’t know how to inbox ? But happy to talk to you xxx
  • delores08034
    delores08034 nonickname1

    Posted

    Yes, I have days that are exactly how you described the issue. It's horrible I know. Won't type long because I'm dealing with the same issue right now. Take it slow and if you need to lie down, do that, I do. I pray that you feel better soon. Take care of yourself.

    • nonickname1
      nonickname1 delores08034

      Posted

      Hi Delores, I am sorry for your pain as well. It's a relief to hear other people having the same only because it gives it validation instead of feeling like people try to make you feel, like a hypochondriac...oohh boy, that word should not even exist. That word was only made up for Doctors that have no idea and don't want to waste their time figuring it out. If we don't fit the mold, forget it..., moving on, you've used up your 5 minutes with me, says the Doctor...for the record, I live in Az., and I do have a wonderful Doctor who specializes in these areas. People fly in from the states to see this man and he IS taking new patients.

  • mandy23334
    mandy23334 nonickname1

    Posted

    I feel exactly the same really gets you down wish there was a miracle drug to make us even human for just one day

    • nonickname1
      nonickname1 mandy23334

      Posted

      Hi Mandy, 

      Isn't that a song too? "Human for just one day?" If it's not, it should be! lol.

      Thank you for your response. The best to you.

  • donna76140
    donna76140 nonickname1

    Posted

    Thank you ladies for your kind wishes sending you both my love and support ??😘😘

  • charlotte1824
    charlotte1824 nonickname1

    Posted

    You said weird pain which resonated with me, sometimes my shoulder or my knee hurts and I always say oh thats ok with me because its real pain and I can live with that, its the weird pain that comes from the inside that I struggle with. I had shoulder pain the other day and everytime if lifted my arm it was really painful but i didnt mind it at all because it was a true pain that hurt when i moved.

    The pain i struggle with is the weird pain from the inside out, its not a pain that is familiar with anything pre this weird pain syndrome. Its a feeling/pain that makes me squirm, ill be constantly stretching trying to relieve it but it doesnt go away until it just spontaneously does until the next time. 

    The only thing i can liken it to is indigestion in your bones, joint and muscles

    • nonickname1
      nonickname1 charlotte1824

      Posted

      Hi Charlotte, I was sitting down to answer back. But now exhaustion has taken over and that's literally, all she wrote for now. Hope your day is somewhat pleasant. Thank you for sharing your information.

  • lesley59234
    lesley59234 nonickname1

    Posted

    Unfortunately it sounds exactly like a horrible 'flare' of fibromyalgia. Flares can last a long time and the physical therapy is just exacerbating it to the 'nth' degree. I agree with the others who suggest stopping that, it doesn't actually help and can just make things worse. I have just started with hemp oil (CBD), it tastes vile but I will give anything a go. Too early to say yet if it works.

    They say fibro doesn't get worse and as it doesn't end up killing you, like say Motor Neurone disease, it's not considered 'serious'.  But I believe it does get worse because as your body ages naturally all the things that come with 'normal' old age are massively increased due the the sensitivity and inflammation already present. I think living in massive pain IS life threatening, if only in terms of a life worth living.

    Hopefully if you cease the physical therapy, your flare up pain might subside, unfortunately this could take weeks or months.

    • charlotte1824
      charlotte1824 lesley59234

      Posted

      Here here Lesley, totally agree, just because something is not life threatening chronic pain with no real help from meds or other techniques = a life ruined. I’d find it easier if there were specific answers and proper treatment plans but no one has any bloody idea what it is, what the cause is and how to effectively treat it. Maybe in 20 years there will be some proper information on Fibro but everything I read now is speculative. To be honest I want to live so badly because of my son, I want to see him grow up but if I hadn’t had him I would have topped myself by now. I’m not depressed and say that from a simple place of I don’t want to live in pain and there isn’t sufficient medical treatment.
    • donna76140
      donna76140 charlotte1824

      Posted

      Omg you do sound like me it’s a awful thing to wake up and be in pain every day most people don’t understand or have no clue I’ve tried to educate my family they are still trying to adjust with it all I just want to be healthy and happy I find it hard just to be happy I’m not mentally depressed but physically depressed my back shoulders neck and elbows are my worst with out pain meds I’d be stuffed I’ve just ordered some hemp oil I’ll try just about anything right now stay strong for your son I’m only 47 feel like 90 my kids are 12/22 years old my husband works away I think he is sick of my whinging all the time I feel like you just have to suffer in silence because they don’t understand thank you it’s just what I needed to read today having a bad day wishing you all the best ❤️
    • ToniCookie
      ToniCookie donna76140

      Posted

      Same with me i just posted today about same weird pain thats always there sometimes “turned down” other like past few days painful deep aching burning tingling pulling feeling as if been in gym doing weights or carried heavy shopping bags that ripping pulling inside muscles fibers feeling, no one understands what i mean other than my sister who has the same and was just diagnosed with fibro yesterday aftwr 10 years of going gp with same things mines been from 9 years some and 6 years other bits adding on untill last year but got worse in last 3 years since lost my dad suddenly to undiagnosed bone cancer x
    • ToniCookie
      ToniCookie donna76140

      Posted

      I feel like everyone my kids other sister my partner think im just whinging but i never used to feel like this im 38 and feel like im 90, i feel this is fobro i have as even walking makes my arms legs get tighter and tighter butning tingling deep pulling pain in the 5 mins walk from off bus to home or vise versa im in agony and want to cry and i do sometimes it awful    
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