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Fibro pain or something else?

Posted , 13 users are following.

nonickname1
nonickname1

I've had increased (tremendously) within this last year of Fibro pain. I truly don't believe it is all due to Fibro. Does anybody hurt from the top of their head, to the bottom of their feet? I mean everything hurts. My calves, elbows, toes, fingers, horrible headaches, temple pain, eye pain, neck pain, just pain! Everywhere. I am on medication because I simply will not live in this sort of pain. I used to be very athletic, but I can't even get out of bed w/out groaning like I am 90 years old. I am 60, female. I began physical therapy a few weeks back, and the amount of exercise I do, a gnat could do it, but for days following, it feels as though I've lifted 20 lb. weights. My entire biceps, triceps, everywhere is just ridiculously sore and painful. Again, I know healthy pain as opposed to this weird pain. It simply should not feel like this. Any other people experience this? Have had Fibro, Chemical Sensitivity, Chronic Fatigue going on 16+ years. I've had mri's, cat scans, blood work every 3 months and yes,I do get tested for deadly black mold as well. Many thanks.

4 likes, 25 replies

25 Replies

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  • nonickname1
    nonickname1

    Posted

    FROM: nonickname1...Hi. I should of mentioned I am a new member here. So bear with me please*. I am trying to send back a sincere "thank you" to those of you that replied... I cancelled out my Physical Therapy today. I was relieved to read that there are others that it simply doesn't work for. You begin to feel like a freak or something, especially when you're told, "we have many Fibro patients and it's helped them." Well that's them, and good for them. 

    *please inform me where I should be posting the "thank you's." I am not real good on the technology side of life. 

    I have been wondering how well massages and hot tubs would work...I do know my insurance would consider that a luxury and would not pay for it, so that would not happen because I can't afford out of pocket. I will try the acupuncture which I think insurance pays that. 

    Thank you all very much. If we can all work together and share details, even what you might consider a very insignificant one, could be the missing puzzle piece to another person's illness-disease.

    One last thing, I see where people say, "post privately, (or something to that affect)...does that mean I can not go in to detail here?

     

    • delores08034
      delores08034 nonickname1

      Posted

      Hi, welcome, I have had good success with water therapy. It's less strain on your body. The gym that I go to has many types of classes in the water and the pool has sea salt in it which makes your body feel good but the on land physical therapy is a crock of you know what. Good luck with getting what you need. My way is to ask for what I want.

  • christine26761
    christine26761 nonickname1

    Posted

    Right on there nonickname, I’ve had it for 30years now...the first years were my worst. I would feel like I had been run over  all over my body by a Mack truck. But it does get better, I only have flare ups now, which is manageable, very sore though all over.be blessed and have a lovely day.also stress is the worst thing ever for fibriomyalgia...it loves it, it’s very hard not to but try not to stress💐💐

  • donna76140
    donna76140 nonickname1

    Posted

    Your very ei hope acupuncture gives you some relief I can’t see hot tub or a spa hurting you but it may aggravate it so maybe not just see how you go with acupuncture first I’m not sure about the private messages either lol or how that works hopefully someone can tell us wishing you all the best thank god you canceled your appointment I was worried that it would make your pain even worse xxx
  • DawnRenee
    DawnRenee nonickname1

    Posted

    I also have Fibro. I have had it for about  14 years, and through some of the worst times of my life. i've tried every med available on this earth it seems, and nothing has taken care of it. I was first way back when put on Celebrex, and that did nothing. I've been on etodolac, cyclobenzaprine, gabapentin, and tried using over the counter aspirin..

    for a while now ive been on Cymbalta and Lyrica. They somewhat seem to help at times. But now ive been diagnosed with RA too.. So is it the RA or Fibro? Ive tried exercising, not exercising, water aerobics, biking, .... exercise IS NOT THE ANSWER. They also now have me on Tizanidine and I am getting infusions of Remicade also which seem to help. But there are still days when the barometer drops that I feel awful in my shoulders and arms and hands.. Recently the Dr put me on a Medrol Dose pack and now im taking prednisone in a small amount which seems to help too.. Im sick of not feeling well....and the pain is absolutely terrible..

    • DawnRenee
      DawnRenee

      Posted

      But actually the Lyrica has helped a lot . I also take 325mcg of Percocet 3x a day. Doc says that Lyrica and Percocet work together.. They definitely do.. Finally ive found something were I can go to work and not feel like a zombie
  • Guest
    Guest nonickname1

    Posted

    It took 2 years to get Atypical and Typical Trigeminal Neuralgia diagnosed.  I had brain surgery in December of 2009. Pain is now worse. The tests were unending. I found getting the diagnosis at least helped me feel I wasn’t crazy. Then later came fibromyalgia. I take one day at a time. I lived my entire life, until i was in my late 40’s, pain free. I have great empathy for those suffering with chronic pain. I take the bad days with the good ones. My emotional support cat, Baby, helps a lot. She seems to know when I’m hurting and lays on my chest. What a blessing she is to me. I journal my pain, as I’m sure my family gets tired of hearing it. That helps me a lot though I don’t go back and read it. 
  • donna76140
    donna76140 nonickname1

    Posted

    They say you can’t tell from blood tests and things like that but to me it definitely sounds like fibromyalgia have you asked your doctor for milnacipran it’s supposed to help block the pain I tried it but didn’t agree with me physical therapy is no good for fibromyalgia it aggravates it acupuncture is great it’s really up to your GP to diagnose you and a specialist arthritis rheumatoid is the best person to actually diagnose it I’m 47 feel like 99 with out my pain meds I wouldn’t be able to get out of bed wishing you all the best ❤️
  • hedy62689
    hedy62689 nonickname1

    Posted

    Yes yes and yes !! as suggested to others I started cbd from Holland and Barrett 3days ago. Google it for reviews it’s natural without side affects good luck 😉 

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