Fibro/ Restless leg syndrome

Posted , 13 users are following.

I have restless leg syndrome, some of the sensations you can have are, Burning, Crawling,Creepy and a tugging sensation. I have had the burning sensation. It has been very painful. it has caused me to have sleepless nights. Have any of you ladies gents had this  x

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  • Posted

    Hi, yes I have had this for over twenty years now and without medication it is impossible for me to sleep. I take Ropinirole 2mg and Pregabalin 150 to 225mg per day, however there are times when even this fails to settle it.

     

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    • Posted

      Hi glenys58335 blimey over 20 years, I feel for you. Ive had it for 2 weeks thats been enough the burning sensation has been driving me mad.  Its a new symptom for me, fibro loves throwing new things at us.. I cant take tablets for fibro Ive had severe reaction to everything Ive taken.I only get relief from hot waterbottles and wheat bags. take care gentle hug
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  • Posted

    Not that I can recall. Sounds like it would be a challenge to get any rest.
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  • Posted

    Hi Kaz

    Sorry  I don't have any miracle cures - it's truly horrible. Have you tried ice packs?  I had it back last year and could not have even the lighest clothing or sheets anywhere near me. I found aloe vera gel helped a little with the burning.

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    • Posted

      Hi Maggers I havnt tried ice packs but will give that a go. I cant bear any sheets clothing on me at the min they are so painful also. Im nipping out in a bit will grab some aloe vera gel try that also thanks for that maggers. take care .
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  • Posted

    Hi kaz, I was diagnosed with Fibro a couple of years ago but have suffered with restless legs and severe cramp's for over 10 years. It drives me mad I take Baclofen and Pramipexole which usually keeps it under control also Gabapentin for pain and muscle stiffness,Omiprazole for acid reflux, Metroclopramide for nausea and Colofac for IBS.

    I am suffering with restless leg's at the moment. Hope you feel better soon Caza x

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  • Posted

    Hi Kaz

    I get that too, it is horrible makes me jump sometimes.Good luck at hospital todaybiggrin

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