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Fibro/ Restless leg syndrome

Posted , 13 users are following.

kaz_40
kaz_40

I have restless leg syndrome, some of the sensations you can have are, Burning, Crawling,Creepy and a tugging sensation. I have had the burning sensation. It has been very painful. it has caused me to have sleepless nights. Have any of you ladies gents had this  x

1 like, 48 replies

48 Replies

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  • Trev1264
    Trev1264 kaz_40

    Posted

    I have had restless leg all my life, I thought it was natural and everyone had it, but this last 7 years it has gone really bad and when it comes on I even have it in my arms. To me it feels like you are half way though a good stretch but it never finishes so you are stuck with that feeling, cannot stop still, have to walk on the spot and start punching and kicking my punch bag it drive's me crazy, could punch and kick that bag too piece's, it over takes all my pain, the next day it feels like i'v gone 10 rounds with Mike Tyson and he has tried to pull my arms off, like my shoulders are coming out of their sockets, I never get it in the day though, always at night.
    • kaz_40
      kaz_40 Trev1264

      Posted

      Hi Trev sorry to hear youve had it all your life. Ive had it 2 weeks its driving me nuts. I have it day and night. Im just hopeing it will go off soon.its horrible sensation to have. I have it in my legs but not my arms hope I dont get it in my arms legs are bad enough. take care
  • glenys58335
    glenys58335 kaz_40

    Posted

    I do sympathise with all who have RLS, I know Fibro is terrible but if I could ditch one of them it would be restless legs. Before I had the Meds I thought I would go mad. I do know that those with Fibro in many cases also have RLS, you don't have to suffer your GP can prescribe for it.
  • derek1979
    derek1979 kaz_40

    Posted

    constantly all the time and i cant sleep even with sleeping pills it just wont let me sleep
    • kaz_40
      kaz_40 derek1979

      Posted

      I know the feeling derek the burning is driving me nuts hope it soon eases for all those suffering with it
    • derek1979
      derek1979 kaz_40

      Posted

      i feel like ive been put on a bbq for a 30 minutes my arms and legs are on bloody fire i cant sleep either as my dam neighboures are keeping me awake with there tv there inconsiderate and always blame me for loud music when its them making the racket and the cops wont do a dam thing about it so will have to get my wife to wright to our local mp as the housing manager always sticks up for them they have woken me up and i have had a strong dose of sleeping tablet now im awake and cant sleep nasty people they know i have fibro and they dont care and nether does the housing manager or noise pollution but ive had enough and i wont be treated like this no more i have rights to and more so then them so im wrighting to the local mp and will make sure there sorted out or they move me somewhere more suitable
    • kaz_40
      kaz_40 derek1979

      Posted

      its not nice to have at all try a cold compress see if that helps thats what Ive been doing a bit of relief is better than none.
  • charlotte1824
    charlotte1824 kaz_40

    Posted

    Yes I get that, I feel like I get that in my arms too if that's possible.

    Tonic water is supposed to help because of the quinine.

    Pregablin gave me horrendous restless legs.

    Also try cold shower over your legs, it works temporarily

    • kaz_40
      kaz_40 charlotte1824

      Posted

      Hi charlotte I will put some tonic water on my shopping list give that a try and try cold shower on my legs when go to bed in a min. Thank you for that. I tried pregablin when I was 1st diagnosed I had severe reactions to it so couldnt take it. Im no pain meds because of the severe reactions Ive had to everything Ive had. I just use wheat bags and hot water bottles take care gentle hug 
  • christine26761
    christine26761 kaz_40

    Posted

    Had RLS for years..I only get it when resting in bed and laying on a chair...I don't get any Symtoms with it.....however, my legs are soooo restless and want to keep moving..and some days they feel like they weigh a ton when walking..:-(,  I think it's from medication,..I only take one for Fibto..it must be that..be blessed Kaz and have a lovely day..:-) xxx
    • kaz_40
      kaz_40 christine26761

      Posted

      morning christine how are you today? did you manage to sleep ok? I was at hospital yesterday that went really well. an op I was suppose to have I dont have to now unless the problem flares up again heres hopeing not.yesterday was along day with me at hospital then went to the drs with hubby. then went looking in currys for anew laptop. mine is ready for pegging it. by the time I got home I was exhausted in pain just wanted to go to bed. I didnt sleep last night as charlie my dog had a restless night. hope you have a lovely day christine take care gentle hugs xsmile
    • kaz_40
      kaz_40 christine26761

      Posted

      hi christine mine is in bed and when sitting they are burning like mad, and their very restless when Im in bed. I have problems with my left leg where some days Im having to drag it when walking, put all my weight on my right leg, then that starts playing uprolleyes I cant win with my legs at the min never mind plod on onwards upwards christine take care hope you have alovely day x
    • christine26761
      christine26761 kaz_40

      Posted

      Poor you Kaz...not good, I had a knee op 3 yrs ago due to OA..it still feels odd, so when I get RLS in bed...I am soooo careful not to hurt it..we live with such beautiful issues don't we...? Gee we must be extra strong people for sure...Be blessed Kaz, have a lovely day...do hope it's not a painful one..:-) xxx
    • kaz_40
      kaz_40 christine26761

      Posted

      Morning christine How are you today? hope you slept well and your not in too much pain. Ive got IBS the stomach pains are really bad they keep coming going I keep feeling sick. I didnt sleep last night my brain wouldnt switch off it went into over driverolleyes.we are really strong people to have to cope with this.take care christine hope you have a lovely day xx
    • christine26761
      christine26761 kaz_40

      Posted

      O' poor you Kaz...another autoimmune problem..grr...that's really painful..:-( my friends whole family-(all adults now) has that., after years of troubles..one lives in the US, .they all went Paleo style eating...some do the autoimmune protocol Paleo...crythey said they wished they knew about it years ago...have a lovely day and be blessed..:-) xxx
    • kaz_40
      kaz_40 christine26761

      Posted

      Morning christine how are you today? how did you sleep? I actually managed to sleep last night. I had to be up early this morning as had blood test. she did my bp reading it was sky high, she did it 3 times. Ive got to go back and see her.in 2 weeks time and have it rechecked.I checked it when I got home it was even higher. Sun is shinning here at the min which is lovely to see. Take care christine hope you have alovely day gentle hugs smile xx
    • christine26761
      christine26761 kaz_40

      Posted

      Had a great sleep last night..as usual..sorry to hear about your BP's being sooo high..that's terrible, hope it goes down soon..I've been flat on my back for a few days due to muscle prob's in my lower back..but I know it will go soon...I've had it before, just hate not being able to get about albeit as slowly as I usually do...it's been freezing here today..very windy and rain...come on summer!! So glad I'm in side actually..sooo cosy and warm, however my husband says I smell the house out like a footy change room..lol...all that Dencorub...be blessed Kaz, hope your having a great day..fab you managed a sleep.
    • kaz_40
      kaz_40 christine26761

      Posted

      ooh bless you hope your probs in your lower back soon ease. you have my every sympathey. as all my pain for my back is centered in the lower back. last year I had an mri it showed a tear in a disc. it still hasnt healed a year on. I was walking round yesterday like a little old lady. my back was hurting so much. Sounds like your better off intoday and in the wamth. its looking like rain here now. its 10.05 in the morning here. Take care christine rest plenty gentle hugs xx
    • christine26761
      christine26761 kaz_40

      Posted

      Poor you Kaz. it's terrible when you have back prob kens..mine is only muscle, thank God...hate MRI,s with a passion..it's awful things that help us are nit good..lol..it's 10 to 7pm here, can't say I'm all settled in for the night as I've been like it all day..lol..but gotta say I had hot water flowing down my back sitting in the shower, it was just lovely....pity I can't do that all day mmm hot water bottles will have to do...they are my saviour at the moment. Be blessed Kaz...:-) enjoy your day...
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