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fibromialgia and excersise

Posted , 5 users are following.

tiswas24537
tiswas24537

listening to 5 live this morning there was a gp on talking about excersise

someone phoned in with fibro , and asked the best excersise  for people with fibromialgia , and he said the same as my gp did, walking , not even swimming , just walking he said .

3 likes, 21 replies

21 Replies

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  • hope4cure
    hope4cure tiswas24537

    Posted

    Lets get get a mall group together in our area. It's a lot cooler this time of yr.  I live on several acres out in the boonies beleive me I get plenty of walking. Plus a bowling ally ranch style home. Hec the mail box is a block away. Sometimes in the winter I take my car to the mail box.. lol

    • tiswas24537
      tiswas24537 hope4cure

      Posted

      i dont no what your saying , i was just reporting the best form of excersie

      for people who want to know whats the best form of excersise is for people with fibro as reported by the programe.

      i wasnt saying any one was lazy .

       

    • tiswas24537
      tiswas24537 hope4cure

      Posted

      oh good thought id upset you , its my ASPERGERS  dont always get it when people are being funny .unless  in verbal  conversation
  • brenda59210
    brenda59210 tiswas24537

    Posted

    Dear Tina,

    I wish I could walk but I have had bilateral heel spurs with plantar fasciitis for the past 26 years. Surgeons in this country at least do not like to operate on these because of the nerve fibres that are located in that area and there is some doubt re whether the spurs cause the problem or are just incidental to the damaged area. It is the most painful condition I have ever known and I have tried everything, including radio therapy plus 2 operations on one foot which did not help. If you are ableto walk then I urge you to do so because people take for granted their ability to walk until they lose it. Being loose jointed has not helped  me either as I had to have hip replacements. If they can replace feet one day and I am still around I'll be first in the queue.

    Best wishes

    Brenda

    • hope4cure
      hope4cure brenda59210

      Posted

      Brenda    I too have the whole 9 yards. U described my issues to the tee! Hips too...Except I have Mortens nurosa in my toes.I will say after years of suffering walking was like turning golf shoes upside down like walking on tacks poking in my feet each step was so bad. 

      I finally tried every shoe insert and arch from stores and online till I found one that took the pressure off & no pain . I never walk barefoot..but the shoes and arches is worth the search. Just get out there like UR on a mission. Research and experimentation... Takes awhile but don't give up u will find the magic combination. 

      Good Luckcheesygrin

    • tiswas24537
      tiswas24537 brenda59210

      Posted

      ah bless i know what you mean we take so much for granted we dont know what we have till its gone, yes iv known others who have had heel spurs really painful , i hope something turns up in the near futrue that will help .things are changing every day.try and have a good day.
    • brenda59210
      brenda59210 hope4cure

      Posted

      Dear hope4cure

      Thanks for your advice. I had special moulded inserts made by a podiatrist but they help support my arches without relieving the pain much.

      I wanted to tell you that I had moreton's neuroma in my left foot and it was my first operation. The pain was dreadful like a knife cutting in between my toes but they removed the neuroma and the pain vanished just like that. I wonder if it could done for you. I thought that my heel spurs could be dealt with  by surgery too but what a disappointment it was when I had a partial release of the plantar fascia (where the strong tendon under the foot is attached to the heel) and it made no difference to the pain.  Had you taken any medicine like diazepam before your problems started?

      Best wishes

      Brenda

    • hope4cure
      hope4cure brenda59210

      Posted

      Hi, Brenda, biggrin

      I had custom made arches from my podiatrist too.. And they were useless as well. Not even  grocery or drug store arches or band name inserts helped. I've tried them all I was so desperate. The arches that finally worked was a blind find . I remember thinking I will try them but didn't have my hops up as so many failed before. At that time I was making my own arches . Learning hoe to stop the pain from trial and error. The arche supports online and nothing like the styles in the stores and they r cheap and hard but flexible and soft with support in the right areas . They r designed to change metatarsal area in foot in support arch with several heights for a good fit.  It's tricky to explain.  Were as u know some arches in foot stores cost a lot.these r not spendy.

      I had severe PF. FATTY PADDS bottom of feet gone,fallen arches, heel spurs, arthritis and Mortens nurosa in between my toes. Even injections in the bottom of my feet did not help. Believe me I was in severe pain & been thru all the fixes podiatrists have to offer. 

      I had gotten so fed up with my podiatrists ( 3 of them) all they wanted to do was surgery. I had seen so many friends go thru surgery ending up with more problems. I was highly motivated to fix my feet without surgery or I wasn't going on vaca to Hawaii ! That was when I was making my own shoe inserts. Worked well but they didn't last long. It was a daily hassle actually. But it worked so that was my only pay off ...less pain. Then I found the arch supports on line. I was so surprised they worked and no daily hassle making my own. 

      I also purchased a home hand held ultra sound treatment for the Mortens...it again is online cheap simple to use. When ever that acts up treatment is in my drawer. A few days of following directions improvement is such a relief. I also use toe gel pillows to place between the toe to relieve pressue causing Mortens nerve pain and a toe gel wrap, only occasionally when it's acts up , usually when I walk barefoot or wear the "BAD" shoes. That means pretty sandals.. But I have found a shoes that works for my feet and my arches . Cheap available at a local shoe outlet. It's all the little fixes together that really works. It's been my solution for 5 years. No more shots, pain or facing surgery. biggrin

      It it has helped many of my friends bypass surgery and my partner who's foot pain was so unbearable I had to fix this for him too!  I understood all to well the pain like walking on the bottoms on the spike side of golf shoes with every step.

      PM me if UR interested in the inserts. Also I use sillicone foot pads in all my shoes. Not gel...silicone...I Remove all the cheap pads glued in that come in the shoes replace them with silicone pad/liner. 

      I'm not selling or making anything here. Just a fix that I happen on by trying to fix my foot pain issues and try to share my solutions to help others.

      To answer UR other question I didn't take diazapam. Do u think there is a connection there?

       

    • brenda59210
      brenda59210 hope4cure

      Posted

      Dear hope4cure, Yes I would like any info re the inserts when you get a chance.

      I have had several lots of needes in the sole of the foot and in both heels but without any improvement to speak of. The sole injections were for the Moretons and as I said, that didn't work but the op did.

      I spent  oodles of time at the London Foot Clinic and  other places and they tried to make a variety of inserts to help but I am ready to try again.

      You sound like a very determined character who has helped a lot of people.

      The reasdon I asked about diazepam was because my heel pain started 3 months after stopping 5mg as required (diazepam) over 12 years. Apparently this medicine can cause interference with the electrical conduction in the brain. The transmitters and receptors unlearn their job as the medicine takes over and then they do not work again. There are meds to help rewire the brain but if you haven't ever taken tranquillisers this would not apply to you.

      All the best to you

      Brenda

    • brenda59210
      brenda59210 hope4cure

      Posted

      Dear hope4cure,

      I am in England. I am trying to find out if they will supply me but I haven't had any reply to my e mail as yet.

      It looks interesting but without an agent in this country it will be difficult for me to get hold of them, I think.

      Brenda

  • melanieb
    melanieb tiswas24537

    Posted

    I've had this discussion many times with my gp and my consultant and neither can agree, one says swimming is best, the other says gentle walking. I was about to start aqua aerobics but my husband who does a lot for me was rushes into hospital 10 days ago with osteomyelitis and won't be out for at least another two weeks. So I've had to walk a lot which has aggravated my lower back problem and find it difficult to do most things

    G.PS' and consultants should read from the same page and decide what's the best route in terms of exercise for fibro sufferers.

    • tiswas24537
      tiswas24537 melanieb

      Posted

      i know its a nightmare i was told walking by the specialist and gp , and in my case it is the best but i think everyone is differant , the thing is if you dont walk or swim if your up to it , the muscles become week and you get more pain

      , but for some of us if your walking and or swimming it causes you pain ,i treid gentle stretching with the easiet band thing you can buy i hurt my self really bad ,was limping for about to weeks, i think do what you can when you can is proberly best .sorry to hear about your husband hope he will be well soon .

    • melanieb
      melanieb tiswas24537

      Posted

      Thank you he's gonna lose his little toe but its better than losing his foot. I have an inflamed L5 disc and Achilles tenopthy to deal with as well as the fibro so walking is very difficult for me 
    • tiswas24537
      tiswas24537 melanieb

      Posted

      is your hubsand condition linked to diabetisiv heard that taking colleagen capsuals helps with discs and joints as does vitiamin c d and magneisum combi . worth a try . .  .
    • hope4cure
      hope4cure melanieb

      Posted

       Melamie,confused

      I've been thru a similar incident. When UR both down at the same time I find it takes a huge emotional component out of healing. As if we aren't already fighting so many physical and emotional stressors as it is. Do u have a pain management program? Sometimes it takes a combination of meds. PT.. and aides like reachers, back support etc to help u manage all the issues. 

      Best wishes for U and UR partner for recovery and for peace of mind.

      Hey my secret for getting thru the ruff patches is chocolate. It helps produce those feel better hormones.. True.. Now we have a ligitamet excuse to have chocolate. biggrin

      I am so sorry that u both are suffering. Mostly I hope u have help and support for you both at this time. Sometimes challenges in life all come at once and can be overwhelming. Keep me posted. biggrin

       

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