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Fibromyalgia

Posted , 6 users are following.

Kipper1959
Kipper1959

I have had fibromyalgia for a long time now I tried Gabapentin and lost hair I tried pregabalin but didn't suit me.  I was put on Duloxetine 60mg which helped but it has now been reduced due to another problem side effect pain is coming back as well as pins and needles in hands and fingers.  I am not sure what other medication there is.  Does anyone know?

0 likes, 24 replies

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  • clara19942
    clara19942 Kipper1959

    Posted

    hi sorry you suffering but i have fibro but because i have a liver prob the only meds i can take are paracetamol and codeine at a push but i work with a fellow fibro sufferer and she takes amatryptaline and tramadol and has also tried Tens machine all of these have worked for her who previously took all the meds you mentioned she is also taking vitamin D which is also good for fibro apparently good luck
    • Kipper1959
      Kipper1959 clara19942

      Posted

      Thank you Clara I take tramadol for arthritis and fibromyalgia but needed something more to help.  I do have a tens machine for arthritis but will try it with fibromyalgia .
  • kaz_40
    kaz_40 Kipper1959

    Posted

    Hi kipper1959 My gp tried me on every meds you can think of turns out Im allergic to opoids. The last thing she tried me on was a pain patch where you stick it on your back. It gets into your system through the skin. I had a bad reaction to it so now I dont take anything, I just use hot water bottles. Everything is trial error with fibro trying to find what things work for you and what doesnt. what suits one person may not another.Their is liquid morphine you could ask your gp about. I would go back and see your gp see what else they can do for you. Hope you get something that works for you. take care gentle hugs 
    • Dotcon
      Dotcon kaz_40

      Posted

      Hello Kaz, I f anyone knows the answer to this,I think it will be you. Is Fibromyalgis the modern name for what was Fibrositis? Also is it anyway related to Polymyalgia Rheumatica?  Thanks Dot x
    • kaz_40
      kaz_40 Dotcon

      Posted

      Hi Dotcon fibromyalgia use to be known as Fibrosistis? fibro and polymyalgia have the same symptoms But fibromyalgia has many more symptoms than polymyalgia. take care smile 
    • Kipper1959
      Kipper1959 kaz_40

      Posted

      Thank you Kaz.  Fibromyalgia was also called fatigue before fibromyalgia.
    • christine26761
      christine26761 Kipper1959

      Posted

      Wow! Kipper, I didn't know that...I know that most Fibro sufferes get chronic fatigue syndrome too...thank for that..be blessed..have a lovely day..luv learning new things..lol..:-) xxx
    • bronwyn97278
      bronwyn97278 kaz_40

      Posted

      Hi to Dotcon and Kaz; if you both go into symtom checker for Polymyalgia Rhuemmatica, you will find that it is another condition ......it can be a lot more painful, for some, and is treated with Prednisone.....it can also settle and sometimes be cured............another condition that goes with PMR can be Giant Cell Arterites, which is an inflammed artery/ies, which can be Very painful...............research this one..................xxBron
    • kaz_40
      kaz_40 bronwyn97278

      Posted

      Hi Bron thank you for  info will have a google take care gentle hugs xx 
    • Dotcon
      Dotcon bronwyn97278

      Posted

      Thanks Bronwyn. Yes I know PMR is a very painful,debilitating condition. The reason I asked is that my elder sister has it. It took a while and several doctors before it was diagnosed. I haven't been "officially" diagnosed with Fibro yet, Waiting to see a Rheumatologist. From the posts I read on this site,I strongly suspect I do have it. But I was wondering in view of my sister having PMR whetehr the two conditions were connected. Thanks again Dot x
    • bronwyn97278
      bronwyn97278 Dotcon

      Posted

      Morning Dotcon;  I guess then that you have gone into both Check Symptoms lists and connected your symptoms against both lists, before going to see Rhuemy?....it could make all the difference to you and your control/cure of your symptoms...I don't know a lot re the personal experiences of PMR, only what I have read....(there is a lady on the PMR forum, Eileen, who I would ask for advice, as she is very knowledgeable re this condition, and has given lots of PMR sufferers her exxperiences and how to help themselves)..........I will really be watching for any more of your inputs as to how you get on, which ever comes out (the one thing that is important "I think" is if there is an ESR result in your bloods....did your bloods come back with any abnormalities????) ..........Bron
    • Dotcon
      Dotcon bronwyn97278

      Posted

      Hello Bronwyn. Thanks for your post and your interest. I will probably have to wait a while for an appointment with rheumatologist (only saw the Urologist who recommended it iast week and he has to write to my GP). I'm really annoyed with my GP that I've had to go to such lengths to get any further., He's sent me for several blood tests over the years and my CRP(don't know if that's the same as ESR)level is "off the scale". Urologist commented on this,but GP was unconcerned!!!! At the moment my back is so painful,I lock when I stand for any length of time,can't turn over in bed and for the last few days my neck has locked and I can't turn my head left nor right. Just to get a diagnosis will be a relief. I find this site so helpful and read all the posts and realise that there are many experiencing the same as me(and worse). The posters are so caring and it means a lot. Thanks again for your concen. Watch this space. Dot x
  • Kipper1959
    Kipper1959

    Posted

    Duloxetine 60mg worked really well for me. 

    it was reduced by gp because of a certain side effect but 60mg worked well.

    I am thinking of going back upto 60mg as they did help me a lot.

    • Kipper1959
      Kipper1959

      Posted

      I suppose I can cope with the side effect and up the dose again.  My gp is off for 3 weeks now so will have to wait till he gets back in meantime i'll take the 60mg and speak to him when he gets back.
  • charlotte1824
    charlotte1824 Kipper1959

    Posted

    Minalcipran which is also called savella works much in the same way as duloxetine but some people who have issues with 1 find they can tolerate the other.

    Venlaflaxin was also another option to duloxetine that I was told about.

    Nortyrptlin and amytripin work well for a lot of people.

    Also I have read Wellbutrin (bupropion) has worked for some people. I think in the states it's used to help fibromyalgia but in UK I've only ever heard of it as a smoking cessation drug, it is an antidepressant but another class.

    From what I have learnt SSRI treats depression and anxiety. An SRNI treats the above with added bonus of some pain controlling abilities and NDRI is what Wellbutrin is which also has some pain controlling properties. The website drugs dot com has a lot of info and reviews specifically for fibromyalgia.

    • Kipper1959
      Kipper1959 charlotte1824

      Posted

      Thank you Charloe I will look ino these.  Amtrityline and Nortryptaline did not suit me at all.
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