Fibromyalgia and Mental Health
Posted , 12 users are following.
Hi all,
I've just joined this site in a desperate attempt to find something that can help.
I was diagnosed with Fibromyalgia about 6 months ago after a few years of unexplainable pain and the usual arguing with medical professionals. It's been a tough year as the pain and symptoms are increasing all the time. I keep thinking I may have reached the peak, only to be proved wrong and reach new levels of pain.
I'm used to coping with a lot. 4 years ago I was diagnosed with Bipolar Disorder after over a decade of being seriously ill. I'm a strong person and I've never let anything hold me back. I've been teaching now for 8 years and my career is going extremely well.
I guess like everyone on here, I'm used to being strong. I'm used to smiling when I want to cry. I'm used to pretending that everything is fine.
But I worry that this time I've met my nemesis. The pain is now at the level that it's affecting my mental health. I have to work 12-15 hours a day. My work have been very understanding but in my job there are just no shortcuts.
I know I can cope with mental pain and I think I could cope with physical pain. But the combination of both is...terrifying I guess.
If anyone has any advice or experience of Fibromyalgia and Mental Health conditions I would love to hear from you.
Best wishes everyone x
5 likes, 24 replies
joy47826 Smiler1981
Posted
Getting thyroid treated after 10 yrs of struggling, got on Armour thyroid in 2002.
Then found how Vit D deficient I was in 2006 and got those levels going with larger doses of Vit D3 and now taking K2 as it's said to help with absorption.
2 Iburprofen two times per day, late morning and before bed.
Pain RX and 1/2 tylenol in between these ibuprofen..
DGL to protect stomach lining.
Vit B supplements, including 500mg Inositol a couple times per day or so, these calm the nerves...
Grape Seed Extract since 1995 for overall immune system. I don't get sick.
I worked long and hard on my sleep remedy and sleep 8-10 hrs per night....and no drugs for this combo...all supps.
I've never taken drugs for the FM except the ibuprofen and never gone specifically to an MD for the FM issues.
Now I also deal with Osteoarthritis and do a lot of supps to get me thru this mess...and now dealing with a messy hip replacement in 2010, which caused nerve damage and more OA.
Hope this helps, this is what helps me.Are you in US or UK?
Smiler1981 joy47826
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I try to exercise but it brings on massive flare ups. I know I need to find a way to manage this but I'm all out of answers at the moment!
joy47826 Smiler1981
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What I gave you worked for me.
joy47826 Smiler1981
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What I gave you worked for me.
Have you ever considered going out of the conventional MD world to an alternative MD and maybe get off some of the heavy duty meds for bipolar....just thinking outside the box as I always do.
Smiler1981 joy47826
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fibrogirl1 Smiler1981
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I hope you don't go off the bipolar meds. They may be holding you together. It's so hard to find the right cocktail, I firmly (as an LPC, Fibro sufferer, and bipolar girl) believe in sticking to it. Alternative medicine is generally woo.
I hope you're feeling better. Fibro requires you to take good care of yourself and it's hard in a career like that. I wrote a blog post about coming to terms with the losses we experience with the illness at fibrogirl.blog if you're interested. I'd love to hear any pointers you've figured out this past year. It's hard.
anne90395 Smiler1981
Posted
You are dealing with a lot! I am also a teacher but only do supply now, could not work full-time as it would be too stressful. To be honest, even if you are in the best of health this job is extraordinarily difficult! I admire you for keeping going. As for what might help, Amitriptylene 50g for pain and sleep. My doctor doesn't believe just giving me more painkillers will help. He thinks the way forward is CBT, cognitive behaviour therapy, which I am going to try. He is a doctor who is interested in this condition, so I think that is a good thing. Praps you could try the CBT and check your Doctor has an interest in this condition. Otherwise I think they only throw painkillers at you, which can have awful side effects. Goodness this is long-winded sorry! What part of the uk are you in? Take care, Anne, Portchester, Hants
Smiler1981 anne90395
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anne90395 Smiler1981
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Thanks for your reply, glad I may be of some help! I think absolutety youould not cut down your hours. I love the time I spend teaching, and also looking after my grandchildren - that's what keeps me going. But I do know I have to pace myself, if I do too much one day I will suffer for it. You take care, Anne
Smiler1981 anne90395
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Mrs_doodles Smiler1981
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Smiler1981 Mrs_doodles
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lori84254 Mrs_doodles
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terrie31685 lori84254
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Carinaeta Smiler1981
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Smiler1981 Carinaeta
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My work and colleagues are extremely supportive- I really am blessed in that respect. I get the odd negative comment, but people that have that attitude don't matter to me anyway.
I think you're completely right about self awareness. Getting through my mental health issues has been a long journey of learning about myself and learning how to cope when things go wrong, and how to plan for those times. I guess I'm starting to realise this is no different.
I completely accept that Finromyalgia is a part of my life and I want to learn to live with it, not to let it dictate my life.
Thank you so much, and best wishes to you :-)
fibrogirl1 Carinaeta
Posted
I've never heard of that medication and would like to learn more. Have you had side effects?