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Fibromyalgia Diagnosis fortnight ago

Posted , 8 users are following.

Busybeemumof3
Busybeemumof3

Hi everyone, just introducing myself on the forum winkI was diagnosed recently with Fibromyalgia, it's only taken 4 1/2 years!  I'm still reading and learning about this thing and thought the best way would be speaking to the people who have real experience of it. During the last few years I've been checked out for all sorts, bloods always normal and most recently investigations for MS. Had MRIs, evoked potentials, lumbar puncture. All normal thankfully. Having a relatively good day just pins and needles in my right side of face and some thigh, hip and calf stiffness. Oh and some itching, I always itch! 

3 likes, 34 replies

34 Replies

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  • denise56617
    denise56617 Busybeemumof3

    Posted

    Hi and welcome to the site. I was diagnosed 9 months ago and started on Amitryptyline. It takes a few weeks before you begin to feel benefits. It helped with the pain and my sleep - don't have to get up to go to the toilet as often. The main down side for me is the groggy hangover feeling in the morning but this has improved over the months. I was off work for a few months but am now back at work but only 13.5 hours per week.

    I have always exercised but am now going walking and doing Tai Chi rather than more strenuous exercise. Gentle stretches in bed in a morning help with the muscle stiffness followed by a warm shower. I have also started meditating after a Mindfulness course and this helps me to relax which helps with the pain.

    I tried to read as much as I could about the illness and found a book called '50 things you can do today to manage Fibromyalgia'. It gives an overview about everything from food to medicine, lifestyle exercise etc. The book gives lots of common sense advice and helps you see that there is light at the end of the tunnel.

    I hope you improve on the medication and find other things as well to help you manage the condition.

     

    • jimtorry
      jimtorry denise56617

      Posted

      hi denise,

                      Does thai chi help as i have been thinking about taking this up?

      I used to do easy yoga and was quite good at it but then one day when i went to exercise i could not do it anymore. Weird, i have tried several times to get back into it but i can't. I agree with meditation/self hypnosis that definately helps. Personally i do healing chants as well. I am gonna check out that book you mentioned,Thanks

      best wishes James

    • Busybeemumof3
      Busybeemumof3 denise56617

      Posted

      Hi there Denise, thanks for your reply. The Amitrypyiline does help with sleep so far and less trips to the loo! I'm keeping my fingers crossed it works for me, sounds like it has helped you. I take my hat off to you and anyone here who manages to work, our days can be so unpredictable. I care for my autistic son so don't work but I think it's a positive thing if you are able  to . I meditate and did so before having Fibromyalgia, 11 years now and until my new medication was my main way of coping. Still is, it's a great life skill for anyone ill or not. I'm going to check the book out too. Thanks .:-)
    • denise56617
      denise56617 jimtorry

      Posted

      Hi James,

      Tai Chi definitely helps me. I feel much calmer and more relaxed after a class which helps with stress and the pain. I do Tai Chi for Health which is aimed at people with arthritis so is good for people with Fibro as well. It is much slower and gentler than yoga but follows a lot of the same principles. (I also used to do yoga but even a gentle class is too much at the moment - too much stretching).

      Let me know what you think of Tai Chi if you have a go.

      Best Wishes

      Denise

    • jimtorry
      jimtorry denise56617

      Posted

      Thanks Denise, i have just checked out youtube and there is loads of stuff, thanks again. In the past week i started dancing around flat for about 5min maybe longer my dog looks at me as if i had lost the plot hahaha. My lower back disna half hurt though. Just thought i would give you a laff.

      best wishes James

    • denise56617
      denise56617 jimtorry

      Posted

      Hi James, I can't get to my Tai chi class this week so I will also be dancing ( very slowly)  round the house! Should give my neighbours a good laugh. :-)
  • kari0801
    kari0801 Busybeemumof3

    Posted

    HI busymum of 3.  I am also brand new to this forum, and a mum of 3.  My FM began 16 years ago after a bad flu that never really went away.  I have gone through an arms length of symptoms over the past 16 years.  Right now I have terrible pain and numbness and burning in my back, legs and feet.  I sometimes feel like my feet are ablaze.  My neck and shoulders are tight as well and I get pins and needles in my hands but it doesn't hold a candle to the legs and feet. I was forced to leave work years ago because I worked with children and just couldn't keep up anymore.  Keeping up with my own kids has been challenge enough lately.  I am glad I stumbled onto this forum and now realize there are others like me.  I don't really have any friends or supports because I am not able to get out and be social, and all of my family lives outside the city I am in.  So realizing I am not alone in my battle is comforting.  I hope you are embraced here with open arms.  Good luck with your personal fight.
    • Busybeemumof3
      Busybeemumof3 kari0801

      Posted

      Hi there, it's difficult with kids isn't it? My youngest is 4 1/2, I got I'll after having a difficult pregnancy and emergency c section. Youngest is also diagnosed with classic autism. You'll know yourself what a struggle it can be with kids and having Fibromyalgia. I can relate to the no support thing as my hubby works away and I'm pretty much on my own. That's why these forums are so important, any illness can make you feel isolated and alone. Everyone needs some outlet. The internet is a wonderful thing. The support and advice here is invaluable. Hugs and best wishes x
    • kari0801
      kari0801 Busybeemumof3

      Posted

      Thanks for the best wishes.  Very kind.  My youngest is also 4and1/2.  The other two are 14 and 16.  I am sorry you are without help as well.  It does make things that much tougher.  I am blessed to have found  this forum as it does allow for a bit of an outlet.  You are right about that.  Bless you and good luck on your journey.
    • Lucyred
      Lucyred Busybeemumof3

      Posted

      You have your hands full I know that feeling of isolation and alone and finally I just had to make my husband more aware of what I was poing through. Support and advice from this site has helped me a lot because you all know what I'm feeling. Take care and never give up! My girlfriend has a autistic child and it's amazing how far he has come. Prayers for you!!
    • Busybeemumof3
      Busybeemumof3 Lucyred

      Posted

      Thanks for your kind words. I'm glad I joined this forum too, I had my hubby reading some of the posts with me, I think it helps him understand more. I don't know much so far about this thing, so can't really offer any constructive advice but will visit daily and can offer an ear and support you all  in any way I can. 
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